Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
I am slowly losing more & more function.
I know we all are.
I am trying to deal with it, but it is hard.
I live in a long term hospital so my options are limited
I read to cope with anything. Reading helps me cope with the long nights of pain. Or when I am having a day when I can not get out of bed.
I am bound to a wheelchair. Losing the ability to walk was a hard one.
Now from muscle spasms I am losing the use of my hands. I am referred to speech therapy they are going to train me to use the software to control my pc with voice.
It seems to me that MS hits you where it will hurt the most.
My eyes are being affected. A couple of yrs ago I lost part of my vision, I woke up one day & 1/4 of my vision was gone. They did a mri & told me I had a lesion in the vision center in my brain. I did get the vision back after a few months. Now I having trouble reading. I have what they call a print disability. I was told I have an 80% chance of going blind. Now I can not read all night anymore. I have to try to find other ways to cope. I am having a hard time doing that.
What could I do to cope (from my bed)???
I need something to keep busy when the bad times come.
I know we all are.
I am trying to deal with it, but it is hard.
I live in a long term hospital so my options are limited
I read to cope with anything. Reading helps me cope with the long nights of pain. Or when I am having a day when I can not get out of bed.
I am bound to a wheelchair. Losing the ability to walk was a hard one.
Now from muscle spasms I am losing the use of my hands. I am referred to speech therapy they are going to train me to use the software to control my pc with voice.
It seems to me that MS hits you where it will hurt the most.
My eyes are being affected. A couple of yrs ago I lost part of my vision, I woke up one day & 1/4 of my vision was gone. They did a mri & told me I had a lesion in the vision center in my brain. I did get the vision back after a few months. Now I having trouble reading. I have what they call a print disability. I was told I have an 80% chance of going blind. Now I can not read all night anymore. I have to try to find other ways to cope. I am having a hard time doing that.
What could I do to cope (from my bed)???
I need something to keep busy when the bad times come.
Remember, you are still Kayce, the same person you have always been. Your wheelchair does not define you!
i'm a political creature & like to listen to political talk shows--i know you are lin canada-so your politica are not as screwed up as our's are, but you might find it entertaining how screwedf up they have thingsa down south? and of course they are talk shows on a variety of subjects-even comedy....i really like "wait wait don't tell me on saturdasy morning or by internet pod cast. i choppel told me about that radio show.
lots of people here want to find a niche for you...poltics are really a good way to waste time & find the less than bright
http://tunein.com/radio/Wait-Wait-Dont-Tell-Me-p46/
http://www.iheart.com/talk/
http://www.themic921.com/main.html
http://tunein.com/radio/Browse-Locations-r0/
"In a word, shes hot."
http://www.themic921.com/articles/on-air-lineup-386654/stephanie-miller-6727798/
you have itunes on your computer to get free podcasts? Radio or Not is a a good one too--nice host, single mom, lots of free subject materiasl to listen to to keep you mind active as you body gets less so.
http://www.apple.com/itunes/download/?cid=wwa-us-kwg-music-itu
I have been in a chair for 4 yrs & accepted that it loosing my eye sight & hands that I have to accept.
I have to learn to do other things but what??
I am looking for things to do from bed in the evenings or during the nights when I can not sleep.
Have you checked on line for blind or vision impaired websites to check what their suggestions are?
Have you asked your activities person if they have any suggestions for you for in bed?