bweeds
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- Since there are so many new people and so many of us use small screens at least part time, thought I would pass on one of my common problems. DS has very kindly set up a system so that if someone is giving you a bad time, you can ignore their posts...
- We have found some links and posts that are very helpful for new members of our group and we have to keep bumping that to the top of our very active group so that new members can find them or keep posting the same messages. Is there a way we can...
- This is for all those reading who are struggling with diagnosis and the skepticism of other people in their lives (especially neurologists). They say MG is the best understood of the autoimmune diseases--well the understanding of the rest has to be...
- DS has been notified. I don't know why there were all those duplications last night, but they tried to remove as many as they could and the engineering team is notified. It is one thing to put a silly comment on a post and another to have it...
- A dear friend's mother died last week. She would have been 97 this Christmas Eve; and although my friend is determined to make this season a celebration of her life, I know the loss will be keenly felt. Many of us, as well as those we know, are...
- Since we have so many new people on the site, I thought I would post this link which is a good overview of MG. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2211463/#__sec21The muscular dystrophy site and the myasthenia gravis foundation site are...
- Kimberly brought up a good question. Why do we drop things when it is not from weakness? and Ross answered it for me, we have neuropathy, too. For the two of us, dropping things preceded other more obvious manifestations of MG, or were present...
- Here it is almost midnight. And we have driven 500 miles today and I want to send messages to all those who have been so supportive of my trip to Vanderbilt, but I have had to be content with catching up here and there, so see you in the morning. ...
- Just had my flu shot yesterday. The nurse who gave it to me said the flu season has started early this year and they have already seen some cases. It is the same formulation as last year, but from my reaction about 12 hours later, I sure couldn't...
- I posted something like this on Advice, but thought it might be helpful to post it here so it might be picked up more easily for those searching for ways to modify their homes, especially to prevent falls in older people with MG.My father had...
- Don' t really want to start a discussion, because most things are going out in triplicate, just to say that there must be some relay malfunction that is tripling messages. I think DS is working on it because this was the first area up and running...
- http://www.ncbi.nlm.nih.gov/pubmed/2003276Although we are told not to take Mestinon or pyridostigmine before the EMG's, nobody says anything about not having coffee or other caffeine before them. Since caffiene is an anticholynesterase as well, I...
- As hurricane Irene winds down and electricity resumes, please let us know how you are doing. Over the mountais into Tennessee we have beautiful cooler weather. For gardeners it was disappointing not to get some rain as it has been dry, but are...
- Just wanted to know how people are tolerating dental work. I have to have an old filling replaced due to wear and tear. I took the part of the manual that has to do with dental concerns and left it at the dentist's, so he'll have time to read up...
- Although not all of us are going to have a respiratory crisis, almost all of us will be in the hospital at one time or another for one reason or another, and our MG may complicate our care (hospitalization and/or our care is bound to complicate our...