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- I was surprised to see that Carla was online, and messaged her. In reply she explained that she has not been doing well, even worse than when she last posted. Unfortunately her problems have not been solved and in addition to everything else, two...
- This is an excellent review of what is known about the presentation, evaluation, and outcome of patients with Gillian Barre and Myasthenia Gravis:http://www.rcjournal.com/contents/09.06/09.06.1016.pdfThanks , Rhonda, for posting the link.
- Some people are sensitive about using walking aids and perhaps a hiking pole would be more acceptable. These are hiking poles that my daughter's in-laws have used for over 15 years for hiking in rugged terraine such as the Rockies and walking long...
- For those of us who are seronegative, EMG studies become a very important part of the diagnostic work up and we are often given very little information beforehand as to how to best prepare for testing. This article covers many of the issues:...
- For those of us who are seronegative, EMG studies become a very important part of the diagnostic work up and we are often given very little information beforehand as to how to best prepare for testing. This article covers many of the issues:...
- Still don't have a viable theory about why when we are worse or tapering drugs our Mestinon starts to give us trouble at doses previously tolerated. Evidently acetylcholine has a very short half life and couldn't stick around long enough to get up...
- On a less serious but certainly annoying note, does anyone else have a massive over responsiveness to ordinary bug bites? After a couple of bites the area swells, is warm to the touch, has definitive borders and eventually looks bruised if not...
- Please if you find any difficulty with the links in the Link Member Group posts, let Jen or an administrator know. Bruce found a couple of links didn't work yesterday, and those have been corrected.Once more a plea to not only utilize the link...
- The ER section in this Manual Healthcare for Healthcare providers is on page 60 of the manual http://www.myasthenia.org/LinkClick.aspx?fileticket=S472fPAE1ow%3D&tabid=69The rest of the manual is helpful to have on hand as well.The emergency handout...
- This is Gwyn's reply to an older vet (but has broader application):http://www.dailystrength.org/c/Myasthenia_Gravis/forum/14149501-meeting-mg-expert/lastpageThis is my first post about dealing with neurologists andnwhat you can expect on the first...
- This is the beginning message for this topic including washing hair and using a hand...
- These are a few of the things that I have picked up on site that make a difference every day:electric toothbrush saves your arms for other tasks and your teeth, toodon't put things away that you will need within the next 24 hours or so (this has to...
- Sherry suggested that we add tips to our links group and I remembered this one from Davy regarding washing hair From 8/20/11.http://www.dailystrength.org/c/Myasthenia_Gravis/forum/12613117-too-weak-wash-hairAmy had good ideas about explaining MG to...
- Here is a site that lists drug interactions:http://www.drugs.com/drug-interactionsand this is the MGFA medications and myasthenia listing of drug interactions with MG (also found in the topic to have in case of emergency/hospitalization...
- For everyone: There is a main board for MG, but also the option for a member to start a "member group" for a specialized purpose or to concentrate on some aspect of a problem. I thought it would be nice to put a lot of our links that were getting...