Myasthenia Gravis Links and News Community Group

This group is for keeping track of news, links, studies, and other information that is helpful for people with Myasthenia, whether you are newly diagnosed or you have had MG for awhile.

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Brain & Nervous System
/ Myasthenia Gravis Links and News Support Group

discussions with your neurologist

bweeds
bweeds
This is Gwyn's reply to an older vet (but has broader application):

http://www.dailystrength.org/c/Myasthenia_Gravis/forum/14149501-meeting-mg-expert/lastpage

This is my first post about dealing with neurologists andnwhat you can expect on the first visit (I've learned a lot since then :-) but good information here too:

http://www.dailystrength.org/c/Myasthenia_Gravis/forum/12271440-tips-dealing-mds
mgadvocate
mgadvocate
MG-QOL15 "Quality of Life" form to share with your doctor at each appointment.

http://www.myasthenia.org/LivingwithMG/QualityofLife.aspx
mgadvocate
mgadvocate
Discussion started 6/24/12 by Ginger about communications with your doctor. What work's..best approach.
Great discussion and comments by Rhonda.
http://www.dailystrength.org/c/Myasthenia_Gravis/forum/14502799-preparing-see-neurologist

MGFA presentation at the 2010 Annual Conference “Communicating Effectively with your Physician” MGFA Conference 2011.
http://vimeo.com/32141333

Bruce
mgadvocate
mgadvocate
Self advocacy resources. Very important to learn how to participate in your own care.

http://www.dailystrength.org/c/Myasthenia_Gravis/forum/16498886-misdiagnosis-importance-participatory