Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Sherry suggested that we add tips to our links group and I remembered this one from Davy regarding washing hair From 8/20/11.
http://www.dailystrength.org/c/Myasthenia_Gravis/forum/12613117-too-weak-wash-hair
Amy had good ideas about explaining MG to her children and there was a duscussion a while back in the fall about a short way to explain MG to people who ask casually or want to know more.
And bambee's questions about how to deal with a party where she couldn't eat the food (she put ornaments on a scarf with all the silly sayings we came up with like "feed the birds, not me" ), which might be adapted to other social settings where you want to be present, but can't fully participate.
And there was a discussion on caring for kids on 10/ 07/11.
For those of you interested in adding these links, please do so. I'll start with the hair washing one and start a discussion about other daily routines that we could add to our links group if people find it helpful.
http://www.dailystrength.org/c/Myasthenia_Gravis/forum/12613117-too-weak-wash-hair
Amy had good ideas about explaining MG to her children and there was a duscussion a while back in the fall about a short way to explain MG to people who ask casually or want to know more.
And bambee's questions about how to deal with a party where she couldn't eat the food (she put ornaments on a scarf with all the silly sayings we came up with like "feed the birds, not me" ), which might be adapted to other social settings where you want to be present, but can't fully participate.
And there was a discussion on caring for kids on 10/ 07/11.
For those of you interested in adding these links, please do so. I'll start with the hair washing one and start a discussion about other daily routines that we could add to our links group if people find it helpful.
There was a time when I had to blend everything I ate to a liquid consistency. I would always add some liquid if the food was too dry. This could be juice for a fruit item or broth for an entree.
Do note that this even works for sandwiches: Baloney sandwiches blend up well with a little liquid. PB&J doesn't blend no matter what you do. You end up with a gooey mess!
Curt