Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I was surprised to see that Carla was online, and messaged her. In reply she explained that she has not been doing well, even worse than when she last posted. Unfortunately her problems have not been solved and in addition to everything else, two of her friends died. Some of this time she has been hospitalized, and she is now sleeping with supplemental oxygen.
She wrote she appreciates the support of the group, it means a lot to her, and sends all her love. I hope she will be back on the computer soon and especially on site.
She has not gotten the results of a recent sleep study and has a cardiac study scheduled. The doctors still don't feel she has MG, and has had no trial of medication in spite of the fact she is not improving and she is beginning to think that is not the problem herself. Those of us who have been through the diagnosis wringer can relate.
b.
She wrote she appreciates the support of the group, it means a lot to her, and sends all her love. I hope she will be back on the computer soon and especially on site.
She has not gotten the results of a recent sleep study and has a cardiac study scheduled. The doctors still don't feel she has MG, and has had no trial of medication in spite of the fact she is not improving and she is beginning to think that is not the problem herself. Those of us who have been through the diagnosis wringer can relate.
b.
Pray she get the answers, and so agree we have all been there.
Annette
This just erased half of my post. Am I being edited lol! I love all of you persistant friends. I had no idea that I had such wonerful, and not easily offended friends.
That was a really good post, and I forget where my own nose is, so no getting it back. The gest of it was, I love all of you very much, and you are very special people. To those who persisted in touching base, including the note on a homeade card, from the garden, I thank you. I don't feel it will be too long before I am diagnosed with either MS, MG and or congestive heart problems but you know what, I am at peace with it because it is far better to know and get treatment and it seems that my family won't be so angry with me and feel that I should be able to fix myself. I know it is not friday but this is my joke from last week.
Did you hear about the man who was in a huge accident. He cut off his whole left side.........he's alright now!!!! love you guys