Marilyn-Doss-Wright
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- My insurance is changing from Medco Accredo to CVS Caremark. I currently get my infusions at home through Medco so I assume I will have to change my nurse and get approval again. The cost is also going up significantly. Anyone use CVS Caremark?...
- My typical cycle is, I have my infusion on Friday and it takes about 6 hours. I am very tired and rest on Friday. Saturday I am tired but nothing too bad. Then on Sunday is when I feel the worst with a head ache. Over those three days I have...
- I don't know if the Smart water made the difference or not but I feel great. I was sick going into this infusion which usually means a horrible few days. I am leaving tomorrow to go to India and was dreading the 24 hrs to get there after an...
- I am proud of myself today but I still feel guilty. I feel something coming on and decided to rest the entire time my kids are in school today. I have had the very start of a sore throat since Sunday but it got worse last night. I do not have a...
- Complete Vent Ahead.I am heading to India in less than 2 weeks for a 2 week trip so I am getting a lot of immunizations. When I went to my travel clinic they were running about 20 mins late and I went off the deep end when the nurse showed up. I...
- I am due for my IVIG tomorrow and I am exhausted today. I assume this is due to the vaccines I am taking for my upcoming trip. I had Tetnus today, and polio, typhoid, HepA/HepB last week. I am suppose to take 3 HepA/HepB shots with the second...
- I am about to get my next IVIG treatment and I am concerned about how I feel. My normal cycle is that every 3 weeks I have my 40mg IVIG infusion on Friday, feel very tired and may have some minor aches and pains in my head, neck and spine that...
- I have had a few people ask if I am OK since I have not been online in a while. I have been on antibiotics twice in the last 4 weeks. My ear will has lots of pressure and it simply will not clear. It got so bad at one point that I could not move...
- I have an odd question. I anticipate moving to India sometime in 2012. My insurance company will fill a one year prescription of all medication before I leave for me to take with me or I can take a 3 month supply and get it from a local vendor. I...
- We may be traveling to Bangalore India or Taipei Taiwan. There is a good chance my husband my be asked to work in one of those regions for 2-3 years. I have concerns about my treatment and exposure to new diseases. I have looked at the CDC...
- I get IVIG at home and it is part of my prescription benefit. Under my co-pay amounts I pay $136/prescription for name brand drugs from my specialty pharmacy or $165 for a 3 month supply. However, I can not get them to send me more than one...
- I may be moving to Yorktown Heights, New York. Does anyone have a recommendation for a dr in the area who deals with CVID? Marilyn
- So, I started IVIG in September and this is the first cold I have gotten since. So far (day 6) I do not feel it turning into bronchitis or a sinus infection. I am absolutely thrilled. With the cold I feel like I use to always feel before the...
- Had my infusion on Friday and while it started off rocky, it appears I am having fewer reactions this time. My dh mixed the gammagard sd so it had plenty of time to dissolve before the nurse arrived. We were suppose to use the infusion pump that...
- I am wondering how other people do IVIG at home. Does your nurse use an infusion pump or just count to drops to figure out your infusion rate?My nurse asked me to mix the Gammaguard S/D before she arrives next time. Is that normal? She did not...