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- Please be safe if you really have to go out if you're in the artic air.I have to be out several times but as much as I love cold I tend to rush walking and then get sob (short of breath) be healthy
- I had reclast 1 1/2 yrs ago on fri. Went to bed woke up sick,temp etc. Finally got downstairs late sunday. They say it gets easier each time. Anyone have this experience
- Been on 20 to 60 mg pred for5-6 yrs mostly 40 mg ,can't reduce ,done every med,this spring I developed multiple sacral fxs without a fall or anything, then 3 different times this fall I bent over and for ribs. Now I slipped in snow Fri am .pretty...
- My grandkids 6,4,3 were with us sat 11am until 5 pm tonite sun!I am so tired and legs torso soooo useless. I normally use walker in house to save strength but with all toys everywhere not this w/e. 1 was sick temp and tired but not grouchy,1 was...
- Be safe all affected by this massive snow! Remember your limitations so you don't end up flat on your back after playing,shoveling etc!
- I just started my 3 Rituxamab rx.every 6 months 2 infusions 14 days apart. I know they really help but husband said last nite my voice was stronger already. I cannot remember how fast it works. Any thoughts? I wish you all the best new year your...
- does anyone use both time released and reg? i first started reg 4 yrs ago then due to twitching and gi issues started timed rel instead. now on plasmaphersis, tr90 mg 3 a day, and 40 to 50 mg pred. dr (mg) not really in favor but gave rx with...
- PLEASE PLEASE be careful when out!! today in the grocery store i saw 4 women of different ages walk away from the cart and leave purse right out there my trick is to use the baby seatbelt ,loop through the handles and lock purse in the baby seat. i...
- to keep the story short-currently on 50mg pred,mestinonTR every 6 hrs haven't had phersis since sept 1st when my permacath that was 9 mons old got infected. been told i was very lucky it lasted so long.had 2 stage a/v fistula simple stage 1 but it...
- for new patients or those who illness seems to be escalting,try keeping track.print out a monthly calendar and divide the days up somehow. 0-good day to 10 worst day. then write down #s for morning,afternoon and evening. put star when you take pain...
- i'm in my 50's just tapering up mestinon for past 4 wks but for last 4 yrs i sweat horribly! all year long espec in warmer weather but even in cold! i'm not overweight and thyriod is ok per lab work. is it related to mg? any ideas? hope you all have...
- i'm tapering up on mestinon for 3 wks now and occ have a feeling on left wrist and thumb of like a thread there.just for a short time off and on with occ around my mouth and below my knee.it's short like 5-10 mins-i'm trying to see if it happens...
- i was jsut diagnosed abot 3 wks age.have double vision and fatigue,weakness.i am on low dose of mesitnon,taking 4-5 wks to get up to 60 mg tid. i haven't talked dr too much yet-i'm keeping diary of symptoms etc to take to next visit,also all my...
- just started on mesitnon thur.dr has me tapering up slowly to 60 mg 3xaday. i know everyone is different but any thoughts are welcome!
- even though all tests were neg. the dr has confirmed mg! double vision for last 4 yrs in past it was 1 week here and there constant off and on since nov.my dog got sick 3 weeks ago and we had to release him from his suffering 2 weeks ago. i always...