Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Been on 20 to 60 mg pred for5-6 yrs mostly 40 mg ,can't reduce ,done every med,this spring I developed multiple sacral fxs without a fall or anything, then 3 different times this fall I bent over and for ribs. Now I slipped in snow Fri am .pretty sure I broke leg but waited,forgot pred would reduce swelling and pain,walkin sat pm yes you broke fibula,see ortho mon,brace it non weight bearing crutches. How in the he'll am I going to use crutches and use one 1 leg to hop on?yes I roll on seated walker but it doesn't get into kitchen or ladies room? My right leg is tired from a little hopping,arms tired from crutches. Any ideas?
After I got off of prednisone, I was tested and still had hypogonadism (very low testosterone due to some problem in the testicle production of it) and am still on it. Just visited the endocrinologist and asked her and the neuro about testosterone and MG -- they didn't think there was any research that indicated a cause-effect relationship, but did think it might be more than just chance, as MG is a young woman, older man type of disease, and hormones are connected with some autoimmune diseases. High levels of testosterone have been shown to decrease immune system activity. Mine are low normal now with meds.
Good Luck