xmas25's Posts | DailyStrength

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New place to meet?

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Anyone have a new place to keep in touch ,keep helping and encouraging each other?have a good w/e
Happy special man/men day

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Hope all the men here have a wonderful "fathers"day! You don't have to be the birth dad to touch someone'sl life in a small or big way. I'll be thinking of my dad -how much he would enjoy his great grandkids. My son in law died in Sept, don't...
Not much change in yrs treatment wise

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I had colonoscopy yestrrday. Nurse had worked neuro for yrs. She was amazed mestinon was still the basic drug. Talking about it I realized it's mestinon,prednisone, cellcept,imuran,ivig,phersis and rituxan. That's not many choices.am I not aware...
Rituxan and joint pain

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I've had at least 3 rituxan infusions. Its 2 infusions 14 days apart every 6 -8 months due to insurance fihhts.last spring I started having severe elbow,wrist and finger pain especially while sleeping. Not sure if it wakes me up or it starts...
Memorial day

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To all veterans and their families -thank you for your sacrifices. be careful in the sun/heat this weekend!!!
Trying immunosuppressants again

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Imuran for 6 months no results and tried cellcept about 1 yr later for 8 months again nothing. That was several years . Has anyone tried meds again with positive results?
Anemia

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Last week I remembered that I hadn't had iron levels drawn in probably 1 yr. Haven't been septic since Dec 2015. Not big surprise hub is 8.2 and iron 18.3. Explains some of brutal fatigue I'm having. It's been an issue for yrs with no reason...
Some day

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I keep thinking some day it'll get better. I'm a very positive thinker but some days-I know it's 90% due to son-in-law 's death and being nana,mom,dad babysitter,chauffeur etc. But I'm tired. The smiles are worth and I thank God I can do what I...
Iv prednisone

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Can't get rituxan except every 6 months. Am pretty worn-out and not due till july. Don't want to increase pred on 40-60 mg daily. Have broken ribs 3 times in fall just bending over ,broke fibula luckily since it was upper portion not casted...
Rituxan timing

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I've had several rituxan infusions 6 months apart. Told that's what medicare allows. Has anyone ever had it done more often? I'm due in July but would really like it in June just before vacation. Thanks
Drug pricing

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I'm on Medicare etc due to my wonderful age and illnesses. For those that know donut hole etc and those that just get stuck paying out alot of cash. My blood thinner this month was $380 at 2 reg pharmacies. Someone suggested costco. You don't need...
Easter

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Have the best holiday possible and don't overdo!!
Great pillow

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9 months ago I bought a pillow from hsn shopping network. 1st thing I ever bought from them. It's on special today only. 1 side is cool and other side is warm. Sounds strange but it is!this special includes 1 pillowcase which is also 1 side is...
Using walker

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I have general mg not well controlled . I use walker with seat in house to save energy and trips ,I use seat so I don't drop things ,make fewer trips room to room. I rarely take it with me due to trouble getting it out of house etc. On w/es I...
Grades of mg- never had heard of them in before

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Interesting article online. emedicinemyasthenia gravisgrades.come I couldn't decide which 1 I was in take care

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