doublenjenn7's Posts | DailyStrength

Status: Haven't been around in a long time but I feel I need this group again.

Mood: Ok

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My doctor is "moving on" :(

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This is just a vent really:Today I visited my doctor and didn't even find out until checking out that this would be the last time I would see him.He didn't even tell me! Maybe because he thought I'd be too upset.The new doctor that's replacing him...
I've missed you all!

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I went away when I needed you most it seemed!Most days I couldn't get to the computer.I have a lot of updates but I'm giving the super duper short versions.I figured out a big cause of my pain and nausea I was having in my abdomen. I had a huge...
My mouth won't stop watering :(

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I also have been having diarrhea the past couple of days and have been vomiting at least every other day for the past week.Is any of this PKD related?I'm nauseous all the time from pain and that can cause me to throw up but it seems to be more than...
Frustrated and Confused

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Hi everyone,So, I've been dealing with the PKD symptoms for 2 years now.My kidney function's good, my bp is regulated now that I'm on my meds, and my new anti seizure meds for my epilepsy are making my seizures more tolerable. (Although I know...
Exercises

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Hi everyone :)I've been feeling pretty good lately and want to try and keep active because even though I have to take afternoon naps it helps me feel better to be doing something. Also, I did gain a little weight that I would like to go away...only...
Weird question

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This might seem funny but does anyone experience like a vibrating feeling in their kidney areas? It's like I can feel something contracting in there....I have daily pain....can cysts move and would a person be able to feel it like that?
Depakote and Polycystic Ovaries

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I didn't see anything on this and wondered if anyone had any experience with this.I have polycystic kidney disease and seizures and they don't know what's causing the seizures or what type or anything.I tried Topamax in the past and had a horrible...
Airplanes

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I haven't been on a plane since my seizures started and I know barometric and altitude changes can cause me to have seizures and confused states.I'm kind of concerned and this may be a silly question but it's not possible for me to do any kind of...
For the ladies: Frustration with menstruation

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Ok....I don't know if anyone has ever had this go on but I figured I'd give it a shot and maybe see if anyone has advice or info.When I got my first period at 17 it was very heavy and very miserable....I even stayed home from school one day. Then...
Please send good vibes to my fam

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Hi everyone!I wanted to let you all know my family here in MI has been doing a TON of fundraising for the PKD Foundation....we're going to the walk in Troy on Saturday and we have almost $900 raised.I would like to ask you all to please pray, send...
Just checking in

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It's been about a month and I just wanted to let everyone know I'm loving it here in Michigan and that my health has been doing the best it can.I can't get on the computer much anymore but I will be sure to check back.I hope everyone is feeling well...
Help :(

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I'm at my wit's end here and I don't know what else to do.For the past few months I've been short of breath and have been extremely weak and tired.I mentioned something to my neph and he felt it wasn't kidney related. After listening to my heart he...
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Cystoscopy Anxiety

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Hello all. I'm going to be having my first cystoscopy (and some kind of bilateral something or another....I can't remember exactly) but basically they're taking the camera all the way up into the kidneys and into a cyst and they want to try and see...
Questions about calcium

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I was told that because of my PKD that I should lower my calcium but I didn't really understand what that meant.I know your body needs calcium so I don't think that means to avoid it at all.Does anyone have any suggestions for me?I don't really...