redheadnoz

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Mood: Ok

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Ok

0

I received a call from the nurse & miraculously they have found my blood work. Now I am waiting for the Dr. to review it. If this blood work shows nothing yet I have these symptoms do I still go to Mayo? The nurse eluded to the fact they look...
In shock

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As I've told you in recent posts the Neuro that I saw for a diagnosis before he even did any tests stated I did not have MG. Then before he ran the EMG he stated I neeed to see a psychologist. I have been waiting 3 weeks now to see what the results...
Weak as a kitten

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It's been a rough day. Still not on any meds. Still waiting on a diagnosis. Woke up to diarrhea all day long. My left eye is still closed. Finally thought I would try & take a shower around 4. Finished my shower & started drying my hair & it hit me,...
Forgot & Update

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I forgot during my appointment the neurologist not only told me I didn't have MG but I needed to see a psychologist to learn how to cope with stress. Yet my left eye is closed & has been since Tuesday. I went to church on Sunday & I couldn't hold my...
MG or not MG that is the Question

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Hi! Well tomorrow I meet my new Neuromuscular Neurologist & I have an EMG! I have waited for this day for a long while since May 2014 & now I have so many mixed emotions! I hope I finally get a diagnosis for all the symptoms so I don't feel CRAZY...
Amazed

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The other day I contacted the local MGA Foundation, spoke with them & they were very helpful. They sent me a packet in the mail that I've been reading through & there was a list of meds to avoid rated from 1-5, I believe. Amazingly, I am taking...
Ice on eye

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So I put the ice on my eye & it went right up but a few minutes later it went shut again. How often should I put the ice on my eye?
Question

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Hello,So my left eye has been closed now for 9 days! This is the longest it has ever been! I am still not on meds but they suspect that I have myasthenia gravis. So can anyone tell me is this unusual that my eye has been closed this long or is that...
Reluctantly starting the journey

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I've been reading on this site for some time & I finally decided it is time to join. Since May of 2015 I've been dealing with double vision when I look to my left, ptosis & blurry vision when I am extremely fatigued which is all of the time. I went...

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