You need a Myasthenia Gravis panel (which is just a blood sample taken)

I hope that is what you get. Try mestinon if they allow.

It's can be soo hard for some mgers to get diagnosis! Mayo sounds like a good option. Is current neuro regular neuro or in large practice? It seems larger groups or university hospital drs (like mayo )offer better options. Is there a university hospital near you?sorry it's so confusing not what you are looking for solutions.

Hi Redheadnoz,
I was told by four specialists in a year to seek some kind of psychological help. It wasn't until a reasonably good neuro ran a fatigueable muscle test and did a trial on Mestinon that my case started to be taken seriously. Now that neuro says I don't have MG so I am waiting for a second opinion. I'm in Canada so going to the Mayo is a difficult thing for us. In the meantime, I keep notes on what I can and cannot do. I maintain files of appointments and tests in case I need to go on disability in the future.

I have a friend with life-threatening depression and she says her psychiatrist gets tons of referrals for people with autoimmune diseases who don't need to see her, just need an appropriate diagnosis! You are not alone. Docs go the psychiatric route far too easily.
Flutebell

I feel so much sympathy for your situation. I too was told by the 'powers that be' that I didn't have mg, but I did have a conversion disorder.
I guess it was all in my head, but mestinon worked for me and saved my life during this horrendous journey.
Shortly after I was told to see a counselor for my disorder, I did get an appointment on the off chance they were right.
I must say that I had been through so much, with tests, hospitalization, near death experiences,and then told I wasn't really sick, I got on the couch and decided I was done.
I would not see another doctor or have another test or take another mestinon.
When I had reached that point, someone was watching over me, because I got a phone call from my neurologist who told me to get to the hospital to start plasmapheresis because the test the local hospital had done before shipping me off to the 'gods of medicine' had come back positive for LEMs.
So, please don't give up. My original test for Lems was negative, but the second one was positive. Also, all my emgs, and I had plenty, were always normal, even single fiber. Those tests are guidance to a diagnosis, but 'do not' rule anything out. This past December, I had a positive single fiber, so it took four years for that to show up.
The majority of the diagnosis should be based on symptoms and clinical presentation.
I really don't see how doctors can look at an obviously ill person and refuse treatment because a lab didn't show what they're looking for.
How do they sleep nights?
Sorry for the rant, but this subject hits home with me. If I hadn't had a doctor that looked past all the criteria and saw that I was really sick, gave me treatment, I probably would not be here today to write this rant.

flutebell-Hi! Thank you for your reply! Sorry you are struggling as well. So frustrating! I pray you quickly receive answers.

limp noodle-That's what I feel like doing... giving up! It completely exhausts me & I'm already exhausted enough! I'm tired of people not believing me. Ready stop to wait & see what happens! But on the brighter side Mayo has accepted my case & I go see them July 25. Praying for answers! Thank you for sharing your passion it truly hit home!
Praying for all!

Awesome hope time flies by

Yay! That is good news. I've tried to get in Mayo from the outset. The one closest to me is in Jacksonville. But they told me to go to Rochester.
No way I could travel that far as sick as I was. Hope you get some answers.