so sorry stimpy.... i have been battling the exhausion lately... yesterday i got up showered and dressed by 7:30 folded 5 baskets of clothes marinated chix for dinner layed down and was awake from my first hr nap by 11:30 am!!! i was ready for my second nap by 2 pm!! and still went to bed by 11 pm!

i this from the person who thinks sleep is a waste of time!

i have been battling nonstop asthma attacks and a cold i think that is the root of the extreme exhaustion...but boy is it bad!

nothing to do but give in and rest.... i talked to my daughter today (one with cvid) i could hear the exhaustion in her voice... she is dragging

I can't lie down or shower when my asthma's bad--both will make me feel like I'm suffocating. I just wear scrubby clothes that are loose and easy to breathe in and sit up...even when I'm exhausted...until my chest loosens up. I haven't been this bad for a long time.

Hey Stimpy, if your levels aren't low, read the post that Octoberelle made about the Mycoplasma infections...it's very interesting.

Princess,

Where is the info from Octoberella???

Stimpy, I'm sorry your feeling so tired.

I go to bed at 9:30 at the latest and work from 7-5pm. By 11 in the morning I am so tired I could fall asleep standing up. On my days off I don't get up until around 11 and I am ready for a nap by 2. I got up at 10:30 today and was tired by 1:30. My sister has a degree in dietetics and she tells me a lot of my exhaustion has to do with malubsorption which is very common for people with our condition we just don't realize its happening. Our bodies aren't absorbing the nutrients we are consuming, and with always fighting against everything we get tired very quickly. She also told me that absorbing the IVIG or Sub-q can take days if not weeks for our bodies to work it out, which also burns up our energy.

Princess suggested a vitamin called ALIVE. They make it for men and women. I started taking it about a week ago and I already notice a big difference in my energy level. Also try to keep your electrolytes up.

I hope you feel better.

Aw stimpy I am sorry. I think thats a great idea about the blood draw. I know what my levels are every month (demand a copy of my labs). I am so exhausted right now NO one wants to be around me. I am not tolerable, hateful. Gosh. Hugs to you ((hugs))

Here's the link to Octoberella's post about the Mycoplasma infection: http://www.dailystrength.org/c/Common_Variable_Immunodeficiency/forum/10536645-mycoplasma-infection

As I said in reply to that post PB IS OH MY GOD. What if I never had Valley Fever (since I dont produce antibodies and they were just "guessing") and I had that? I wonder if its called a mycoplasma test? Will this allergist I'm seeing with 1 whole cvid patient even know what the heck I am talking about?

Try googling it...you might get some valuable info. If you are up to please paste a link here...I'll look later when I take another work break. I'm trying to put in some extra time this week to make up for the infusion day off...

I decided to not work any longer today...I'm melt-down tired. Here's a link to information on it: http://emedicine.medscape.com/article/223609-diagnosis

There are many ways to test for it, and I wasn't aware that it is walking pneumonia! That's what nearly killed me when I was 7!

I found out last year that I have antibodies to Epstein Barr, so duh, that will factor in whenever I am tired. Right now, my mind is a fog.....

Thanks PB - I didn't have any respiratory symptoms so thats not it (sigh)

I wish to god they could tell me I had epstein barr or even cancer, I could deal better with that. I went to my class yesterday all with old people, and I was barely in my right mind, I forgot to bring basic items, I had to leave within 45 minutes I just want to scream to the world how shi$$y I feel. I am just full of fear because I don't know when this is going to end. Went to dr. today he took my blood, going to have my next infusion wesdnesday, I take liquid b-complex, b-12, multi-vitamin, vit. C and try to exercise, but I can't. All I do is sit and watch t.v., if I do the dishes and a load of laundry and feel like I just won the olympic gold. I try to push myself, but pull back when I get weak. Is it me? God I have a friend that is 100 lbs. overweight needs a total hysterectemy and needs a knee replacement and she is an RN and works 10-12 hour shifts per day and rides her horses all the time. She never lets anything hold her back, I just feel so ashamed to complain. Man, I was told, or I heard that a 54 year old menapausal woman cannot get low iron, because you are not menstrating, but do you think I should get that checked out? I mean maybe anemia?

Kelli, please read more about mycoplasma. From what Octoberelle says she's found in her research, it can affect every part of your body, even causing symptoms of fibromyalgia, MS, and extreme exhaustion. It would be worth checking out, and is diagnosed by blood test. I guess only certain labs have the capability of performing the test.