hamby03
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- I've heard a lot of people talking about propolis, but I'm not sure if I've heard anything about a particular brand. I recently read this article on Reggie Bibbs' websitehttp://www.reggiebibbs.com/2007/06/14/hopeful-news-in-nf-research/Here's a...
- I was recently doing some research on DNA inheritance in blood transfusions to see if there was any way a person's DNA could be modified by receiving blood during a transfusion. The article I found said no, but during a bone marrow transplant, the...
- I created a Neurofibromatosis charity badge for my website last night to help raise money for the Children's Tumor foundation. Has anyone else tried this? My badge is at http://www.neurofibromatosisresearch.com/node/19There's also a link where you...
- I'm not sure if they'll keep this post up since it links to another website, but yesterday on my website, I proposed a Neurofibromatosis challenge to try to raise awareness and wanted to share it with everyone on...
- I just got home from my plastic surgeon appointment and the doctor is familiar with the ED procedure and has done it before. She wants to start by doing it in a inconspicuous spot and if it looks ok, we'll do the face next. She's also going to...
- Im not asking this question to be rude, mean, or to persecute the people who have, Ive just always wondered why someone who knows they have NF would choose to have children.Were all on this message board for one reason; because we, or someone we...
- Has anyone heard anything about if drinking alcohol affects NF? I just found this article talking about how alcohol might affect cancer tumors and wonder if it might apply to NF tumors too. I like to have the occasional drink, but not if it might...
- My wife works for a chiropractor who also practices Chinese medicine and alternative treatments and he said I might want to try a product called Haelan.Apparently it's been used to shrink and get rid of tumors and he thinks it might be worth trying....
- I've seen a few posting about similar topics and I figured I would start a posting about how NF affects the lives of those who have NF and the ones around them.One of the reasons I ask this question is because in my 34+ years of life, I think I may...
- I was wondering if anyone else gets bumps on their scalp. I had a cyst removed from the top of my head about 3 months ago, and it was soft and fatty, but I'm starting to get ones on my scalp that feel hard, almost like a bone poking through.Has...
- I wanted to start a discussion and get the opinion of everyone about if the current medical treatments are capable of keeping those of us with NF from becoming deformed and covered in bumps.I see a lot of pictures of people covered in bumps, and...
- This may sound like a weird topic for this board, but I'm not too sure where else to ask it. Also, I've been a member on the board for awhile and everyone seems pretty laid back.My wife and I are swingers and have been for about 5 years. We've...
- I've been doing a lot of research on the technique done by Dr. Weinberg, and I think I may have found a better option, but I was wondering if anyone here has had this procedure done.I've been reading a lot about the success of using a CO2 laser to...
- Hey, looks like I might be going to see Dr. Weinberg in January or February of next year and I was hoping to hear from others who have seen him to find out exactly what he can and can't do.Based on the picturs I saw on his website, it looks like he...
- Here's another rant. I know rants aren't really productive, but they make me feel SOOOO much better. :)I think it's time we hold researchers accountable and make them produce results, or tell them to take a hike.Here's the way I look at it. It's...