that's a new on on me....but it sounds pretty cool...gives me another reason to go out drinking with my co-workers......lol....

Actually, according to the article, drinking alcohol can make tumors worse. Apparently it stimulates vascular growth and that feeds the tumor.

i find when i work out hard they show a bit more but i am not giving that up

It also says in the article one to two drinks a day, not an occasional one. And I have also noticed mine seem to "pop out" after a workout, but then they go back to normal shortly after.

Wonder if all the drinking I did in college did anything? LOL

Oh well, you can't stop living completely.

Well the interesting thing about the finding you posted is that alcohol consumption was linked to VEGF. Some of the new and more exciting trials going on in NF right now have to do with inhibiting VEGF. While there is no research that I know of specific to NF and alcohol I would think that study could give us a pretty big hint that alcohol could at least theoretically make NF tumors worse. If that's not enough there are other facts to consider....for starters regular consumption of alcohol depletes our bodies of vitamins and some work would suggest that vitamin D deficiency may be linked to an increase in dermal tumors. Also alcohol has a negative effect on glutathione which is not only a master antioxidant but a RAS inhibitor as well. In fact, the Dr. Pawl's supplements that a few NFers are trying contains NAC, a precursor of glutathione. Alcohol also causes oxidative stress and promotes potential damage from free radicals. Alcohol and inflammation are also linked. Studies would suggest that NFers are already prone to oxidative stress and inflammation has been linked to NF tumors.

A component in red wine solids has been shown to delay the growth of NF tumors but I still wouldn't think regular consumption of alcohol would be a helpful thing at all. You can probably get some of those same ingredients from diet and consumption of green tea. Grape juice might not be a bad choice because it has anti PAK qualities that might be helpful in inhibiting certain cancers that have been linked to RAS.

That's probably an incredibly annoying answer and not what you wanted to hear. Sorry. LOL

Thanks for the great info Petals. It's good to know there may be a few things about NF that we may have a little control over.

Next time I go to a party or out to a club and I think about having too much to drink, I'll think twice. It's now worth making my NF worse.

I'm sure the risk, assuming there is one, is greatest for chronic or frequent drinkers. Don't go turning into a hermit on my say so! LOL

Yes, it does affect ALL tumors. Im only 15,im a teenager, and you know how teenagerrs are. Want to do everything they not supposed to do. Well alcohol and some drugs makes your tumors grow!! =[ So, if any of you are drinkers, i would stop if you dont want your tumors growing. And also, this is just something i heard, that drugs and alcohol can make your tumors become cancerous!

I am not sure if it is directly related to drinking, or just coincidental, but since I started drinking, I have noticed more neurofibromas on my body.

ok my mom didn't drink when she was pregnant and I developed tumors at 3 months then again around 16 years old with zero drinking. So hogwash on that anti-drinking study.. ( :

Drinking is the only factor, so you could still get tumors without drinking, but drinking could possibly make you get more and make them grow more quickly. Im also wondering if it only applies to tumors, or all NF bumps.

The article was a bummer for me, because I like to drink. I'll have to find a balance.

I say hogwash too! My NF has been fairly stable throughout/since college.....

Double Hogwash to drinking, My Day had a martini or two every day of his life. He has a vary mild case. I have more bumps than he did before I even started drinking. No one knows for sure. Hormones though do play a part in it, but that is just one of a gazillion factors.

hi there i dont know if alcohol affects nf. i have a lesion on my gallbladder. im trying to pay down my medical bills before i go
back to see the doctor. i have a high liver count and have had it for a very long time. i would take it easy on the drinks and ask for liver function test. also maybe an ultra sound may be needed. good luck. hugs cora