Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
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I would request a CT scan to see what it shows. (It's been 6 months since your last x-ray and you are still having pain--I would think that fact would warrant a CT scan)
I did not have chest pain with my thymoma but know that many do.
Wishing you luck with all your testing and you get your answers. (Was AChR testing negative.)
Hugs
Sherry
Even if you don't have a tumor, I think it would make sense that your MG symptoms might be worse on days when you have more inflammation other places in your body. I hope this helps!
Genevieve
Sherry - I will ask them at my appointment on Monday, thank you, I was just told it was "Normal" My Dr told me to go back about my chest pain if it didn't settle with anti-inflammatory gel, which it hasn't but I haven't gone as I know steroids can be used to treat Costochondritis and I don't want to take them and risk affecting the Nerve/muscle tests?! So I have been waiting it out until after I have been next week. My ACHR was again "Normal" at 0.12. Thank you for the luck...I really need every bit I can get :)
Thank you Genevieve - your right, that does make sense :)
Thank you all again for helping :) x
~Joe
Good luck with everything - hopefully you can get some relief now you know what you're dealing with :)
Eve.x