ShanAlis
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- Hi everyone! I'm new here. I don't have a definite diagnosis yet but my RA factor is 174...which is pretty high although my anti CCP test came back bordering normal...so she doesn't know for sure. I have sore feel and hands upon rising in the...
- Hi everyone! I haven't been too active on here lately. My Myasthenia has been pretty at bay. So when a good thing is happening why not let off another bomb right? Last night I saw my GP and he has referred me to a rheumatologist. I don't know just...
- How many of you are not on prednisone? How many of you have successfully weaned off of prednisone and are successfully using imuran or cellcept (or some other immunesuppresant) to control your disease? Or stories of never being on prednisone and...
- I have quick question for people here. I am 4 weeks out since my last IVIG and i'm beginning to feel like i have burning eyes. I have over done it lately and not got enough sleep, but i'm wondering if other people experience burning eyes as a result...
- I notice this symptom more when i'm lying in bed, and i dont notice it at all when im out and about at work or moving around. My legs have spots of muscle twitching in them. I dont know if they would be called muscle twitching or spasms? They don't...
- Hi all, It seems to be a common problem for many of this board to be able to determine whether we are taking too much or too little mestinon. I am finally improving and have a dramatic decrease in the amount of weakness i experience (likely due to...
- I'm sure not as important as many of the challenges that you face, and its not even at the top of my issues as well but something i have been searching the web for an answer to. This is kinda aimed at those who know the reason why. Why does...
- My doctor has finally given me the OK on going ahead with IVIG. Although i am desperate to get better i just want to hear from all of you possible complications, risks, and benefits you have endured with this treatment?
- These last three days my eyes feel as if they are SO strained and i have a pressure between my eyes and forehead. I have had migraines in the past but none such as this. This pressure in my eyes and forehead turned into a full blown migraine which i...
- Hi all, I started an antibiotic called APO-CEPHALEX for a week 4 tablets a day. After the first day of taking it my MG is in an extreme flare and i have discontinued using it. I dont understand how it caused me to get so bad. Does anyone else have...
- This may seem a little far fetch for many of you but i have a theory and want to hear whether or not any of you have heard of it in the research im sure many of you have done into this disease. I have stumbled upon today that they have found that...
- I find myself just wallowing in this self pity that i cant seem to shake. I just feel like im not getting better and its so discouraging. I have been on prednisone, mestinon, and imuran. Only been on imuran for a month and a half, but prednisone and...
- Hi All, I had my thymectomy on Tuesday and am happy to say that the recovery is going quite well. I got out of the hospital on Friday and am hoping to not suffer too much longer in the recovery phase. There is some air that is under my skin due to...
- I just have a quick question for others! Our disease is supposed to be characterized by weakness with activity and gets better after periods of rest.. right? How come when i wake up in the morning that i feel weak and lethargic? I can't smile very...
- I am on a low dose of prednisone, 10/15 alternate days. Sometimes, which this sometimes is mostly at night i feel like my bones and my legs ache so bad (growing pain feeling in my legs), and i feel like my bones are so weak they could snap in half...