loveyalots143
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- I went back to the PCP yesterday who sent me straight to the ER. After more bloodwork and another scan, they told me something about acidosis and to skip taking Diamox last night and reduce the dose of Diamox to 500 mg twice a day. I don't...
- I know u all get tired of seeing these. My head hurts, it's throbbing. I can only move my head very slowly without intense pain and dizziness. My eyes hurt to move. When I try to walk I'm very unsteady and weak. I called the dr and he's not...
- Ok, I have not hit my head, but behind my left ear I have a bump and now a dent forming (if that makes any sense). It's extremely tender to the touch and my pain in general is super high. I don't have a shunt so I don't have anything like that to...
- Short post I promise. In all the "excitement" of the last month I had forgotten about the neuro-psych testing I had agreed to scheduled for tomorrow. Can anyone give me any idea of what awaits for me now?Thanks,Kristena
- I apologize in advance for whining, complaining, not being very nice, etc here. I am beginning to think I'm just up a creek with no paddle and I've got a hole in the boat.You all have listened to me as I have whined and been confused and haven't...
- I'm not going to whine, at least I'm going to try really hard not to.I took a visual field test today, and I'm pretty sure I failed it. There's a lot of darkened areas compared to bright, but I'm still waiting for confirmation from the...
- Ok, warning I'm just venting/whining/frustrated/in pain so take this for what you will. I know the world does not revolve around me and my problems. I know there are many, many people who are in need of urgent doctor care more than I am. However,...
- Tuesday night I was back in the ER, which I had already posted about. Well yesterday the fuzzies and squiggles were Really bad so I called the opthamologist. They got me in and did lots of lovely eye tests. Good news, my retina is ok. Bad news,...
- Ok so my normal headache has came back. It did that a couple of days ago. Yuck but move on. This morning I woke up and the pain level has like tripled, but only on the right side. It feels like someone is in the back of my head ripping my head...
- I had an LP last Tuesday night. I had noticed Saturday that if I laid on my left side there was no ringing, but if I laid on my back or right side I had the ringing. Today, it doesn't matter if I'm sitting, standing, laying, it's back all the...
- I ended up going to the ER last night for my head, the pain had just gotten to the point of being beyond overwhelming. To make a long story short the ER doc finally agrees that an lp is the route needed to go. They get all the supplies ready,...
- My neurologist has decided to take me off of Topamax - slowly. I was taking 150 mg twice a day now I'm down to just 50 mg at night (this has been over the last two weeks). On the plus side, I woke up this morning and my brain felt like it was...
- I am really not sure but I think I have been ran over by two Mack trucks here. I was referred by my neurologist to the neurosurgeon who I saw yesterday. She firmly, but politely said that since IIH is 100% curable by losing weight, and I do not...
- I don't know if anyone else has experienced this but I thought I would ask. Last night we had some pretty intense storms roll through which of course meant a pretty intense headache. Well, while lying down to try and sleep before it got any worse...
- Normally when I see the little warning stickers on pill bottles I ignore them, however I am quickly learning this may no longer be a good idea. Up until recently I have been a person who loves being outside in the bright sun - now that I have a...