I have that pain keep your head level, dont bent it, if you drive steer at the botom of the wheel, dont use the puter too much, dont cock ir head to either side while on the phone try not to talk on it, but if u do lay down with arm resting while holdong it.
My guy vigoursly massages the shoulder to include the blades, believe it or not that iss my trigger point afte he gets done the headache is gone, there is a spot on the right shoulder blade that causes those headaches. Then i alternate heating pad and ice on that whole shoulder area.
I hope u feel better and soon!

Migraine. If you lay down, or lean against pillows, lay on the opposite side. I use ice packs on my temple and back of the head until it calms a bit. Heat on the shoulder and neck. Going to sleep usually will help and I will take benedryl or unisom to sleep it off. The hospital even gave me benedryl to sleep the week I spent there trying to get rid of it. Sorry hun.

Thank you both. Trust me when I say I've tried and continue to try both remedies but here's what I woke up with today, cramps from the shoulders down (including chest and leg), vision extras (fuzzies, extra borders, that kind of thing) plus it looks like things are pixelated - kind of like an old tv. Pain level is still high in my head and increases when I move, doesn't stay at extra high level but intensifies. I'm a mess and sorry for whining but any suggestions?

Thanks again!

I don't always know what kind of headaches I'm having, and oftentimes there will be more than one kind at once. I wish I could offer you a magical cure-all hint but I don't think it exists.

One thing I will say, If you are experiencing chest pain you need a doctor to check you out NOW to rule out a problem with your heart. Even if you aren't on diamox, bad pain can make you eat and drink out side of your normal patterns, causing your electrolyte balances to be off and that can cause cardiac issues. I know it sounds a little alarmist but chest pain or pressure or something that feels like chest cramps shouldn't be ignored. Or better yet, call you hospital's nurse hotline and ask what To do. It's free and they are actual medical professionals, unlike me, who is not.

As for HA pain, I try to recline about 30 degrees in a cool dark quiet room, keep still, use ice on my neck and head and a heating pad on my back, drink water so I'm not dehydrated, and eat at least a little when I can. Mild dehydration can help IH headaches, but moderate to severe dehydration can make everything so much worse. I also have pain meds that I only take when things get to be a 9-10. I can also go into my doctors office and get an IV of something. It doesn't help a ton with pain but it puts me straight to sleep. Thats almost as good.

I hope you feel better soon.

Before I was diagnosed I had one of those headaches and was creaking out a bit. My husband took me to the ER and they gave me a migraine 'cocktail' and the headache went right away. It was 3 or 4 different shots in my IV. Can you go to the hospital where you had the LP?
Also, I'll tell you that one problem I have with headaches and pain is that I change my posture; hold my shoulder up and in, kinda fold into myself and get cramps all over. That makes all the pain worse. I have to make myself relax my shoulders, use heat, sit in quiet and dark, and try to unwind. No easy task. But this is something my neurosurgeon's office taught me and I catch myself all the time crunching my shoulders up, etc. I wouldn't have caught myself doing this if the doctors office had not coached me on this cycle of causing more pain.

loveyalots;
I hope you are feeling better today. but if not, you should probably get that checked, especially if you are having new visual symptoms. you don't want to let that go. maybe go to ER but you may want to see ophthalmology this week.

Sophiasmom,

Luckily most of the visual things have went away. Unfortunately the same can definitely not be said about the pain in my head...I'm drinking lots of water, eating what I can, and sleeping as much as possible. And waiting, hoping this will ease up sooner rather than later.

Thanks to you and everyone else for their kind words and advice!
Kristena

if you have any sleep apnea at all, sleeping will just make it worse.
http://doctorstevenpark.com/sleep-apnea-basics/upper-airway-resistance-syndrome
it doesn't take much hypoventilation in sleep to increase ICP.
http://doctorstevenpark.com/obstructive-sleep-apnea-and-intracranial-pressure

Yeah, sleeping is definitely not helping...went to bed early last night, the inside of my head feels like its been bruised. Dont know how to explain it better than that right now...waiting to hear from dr moron (sorry) my neurologist, to see what they say...

I've experienced the pixelation a few times with kalidescope, they saw me immediatly in the NO clinic to ensure there was no retinal detachment. Sounds like migraine with aura. But im no Dr.

Well, that was odd. I finally went back to the ER last night, after not hearing from my neurologist and still in gobs of pain. I have a bad feeling this is just going to be the new "normal," which totally stinks. They gave me toradol, Benadryl, and something for nausea, did a small chiropractic adjustment (very odd) and sent me home. Today I still hurt, the fuzzies are still in my vision, and I'm thinking I'm just up a creek. Sorry to whine, and thank you all for your support!

Kristena

Did you get any relief while you were there? Or did you go home feeling just as bad? Have you had a venogram lately, or a ct scan with contrast?
I'm sorry.

No, not really. The i.v. concoction helped for a bit, but by the time we got home it had worn off completely. This morning I woke up and there the lovely pain was (please note sarcasm). I'm not sure I've ever had a venogram, and the last ct was done without contrast. What is a venogram?

A MRI with contrast to look at blood vessels. I had a severely narrowed vein on my right side and had a stent put in last December to improve flow. I suffered migraines for months, before and after the surgery, but I'm much better now. It sounds like you might need to try an in-patient treatment to break the migraine. DHE given by IV for 3 days is one option. It did not work for me, but it has worked for others.