Buttercup-Kitty
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- Meow,Hey Friends...Hope Everyone is having a great start to the New Year.I think I actually have Inclusion Body Myositis instead of Poly.What has caused me to suspect this, is I'm not regaining any muscle strength and my CPK stays out of range. ...
- Meow,I just finished a month's worth of Rituxan. One bag every Thursday, for a total of 4. The first series was in the beginning of this year, and really brought down my CPK. From over 1000 to around 250..I also got 1000mg liquid Prednisone with...
- Meow,I started a forum for PM patients. It is limited to PM only, due to the differences in the disorders.It is: http://www.poly-needs-a-steroid.proboards.comPlease check it out. It is not intended to replay any other PM site, just add to all the...
- Meow...Hello Everyone,I was reading some stuff about Polymyositis, and some of the patients who have it are still able to run and do yoga on the floor. If I got on the floor, it would take 2 people to help me back up on my feet. When I hit the...
- Meow,Last infusion was Fri, Aug 1. Felt like I had the flu all day Sat, but felt a bit better on Sun. Then came Monday.I requested an appointment with my Rheumy mid-way thru the infusions. I got one on 8/4. He was very understanding, and ordered...
- Meow,Am scheduled for IVIG starting tomorrow. One per day, ending Friday. My CPK is only 545. I'm so sad. Those of you who have taken this infusion....what did it do for you? I came through 4 bags of Rituxan a couple of months ago. Now this . ...
- Meow,Today, I'm being evaluated for Assisted Living.It is a big step, and I'm not sure I'm ready to go to the Community, but we'll see.Also will be getting info on what benefits I qualify for in my state.I'll post again after my interview.Any...
- Meow,Today, I don't want PM. I've done everything I know to feel pain-free, and nothing is working. It's only 11:45 am, and I feel like crappola is coursing through my veins.I'm not suicidal, cause I believe I was born with the attitude of...
- Meow,I had to quit working due to Fibro in 2003. One of the reasons, was my brain fog causes me to forget the last thing I try to remember. There are other symptoms, but the fog keeps me from multi-tasking and remember important information. I...
- Meow,Right now (4/24/14) I feel good. Medicines seem to be helping like they should, and all diseases seem to be under a bit of control. So, I think I'm on a semi-remission and able to make up for lost time.But am I really? Now, I'm a tad afraid...
- Meow,My current CPK number is 293. Should I be worried about it? I'm trying to find ways to naturally lower my inflammation. I only drink 1-12oz tall mug of coffee with breakfast, and I have stopped eating any chocolate. I don't drink tea, cause...
- Meow,Got good news from my Rheumy today. I have to do a six day step-down, but on 4/23, I'll be Prednisone-free for 3 months (until July 18). I don't have to have a blood test until then, and I might also get better on my Diabetes. Here's hoping I...
- Meow,Hello. I'm new to this group, but can be found on a couple of others (Polymyositis, Diabetes 2, Fibromyalgia).Suddenly have developed what I have come to think is RLS. I have those other two autoimmune diseases, so one more isn't surprising. ...
- Meow,My fasting @ 7am today was 109.After I ate my 15mg of Prednisone w/Breakfast it rose to 241, but that can't be helped right now. Hoping to reduce the drug soon.At least I'm under 250. I put off insulin as long as I could, but now (hindsight) I...
- Meow,I started out with 6mm on my Levemir Pen, and at first those needles didn't sting going in my abdomen. Yesterday, they really started to sting. I almost couldn't find a place that was bearable. This was the 12noon injection. So, I called my...