sseibert3
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- Received this email yesterday - thought I would post - FYI MGFA MG Registry Webinar Invitation (February 2021) Inbox MGRegistry@uab.eduFri, Feb 5, 8:48 PM (1 day ago) to me You’re invited to join the Myasthenia Gravis Foundation...
- Thought this was interesting -https://myastheniagravisnews.com/news-posts/2021/01/25/covid-19-vaccines-pose-little-risk-to-rare-disease-patients-fda-cdc-officials-say/
- Hi all - Having a Covid-19 test this afternoon and if positive they wish to administer the BAM antibody therapy today. Mild headache and minor sore throat - no temp.Am wondering if anyone here have had this therapy.Am checking with my Neuro.Thank...
- Am wondering if there are Moderators on this Website that help keep conversations on track?Seems like there is some tallk on here citing Questionable Facts and not staying on topics (MG).Please advise. If this continues I will no longer visit this...
- Hope every one is getting by. :-)
- Good day -I hope this commentary finds you all in good spirits and health.Had my every other month IVIGs last week (Sept 28/30). Also had flu shot on my way out of the Debakey VA in Houston, where I receive treatments that include iVIGs.Up until...
- Hope everyone is doing OK today - Just finished my latest round of IVIGs.Currently doing 3 IVIGs every other month. This was my third round and it appears that this is what part of my treatment plan looks like going forward.There are a number of...
- Everyone OK?Been getting some execise in this hot Houston weather the last number of weeks. I am able to do some light carpenter work on a "Tiny House" that we are building behind our Daughter's house. After about 5 to 10 mins I must sit and...
- I have no affiliations with the company or any interest other than I have a Gaitor and it seems to stay cool outside, or inside, Seems to be a good product. https://www.mission.com/ I just bought 2 more and one of their hats to try.I have...
- Just a general question:For you folks that are having IVIGs -Do you feel any immediate improvement after receiving the infusions?If you do, can you share what the improvements you realized?Thank you in advance for your comments.Scott
- Thought I'd run this past you guys - My DW and I have been limiting our exposure to others since March 10th. We are in a safe one bed-room appartment with the Kids close-by for support. I am scheduled for blood tests and also have 3 concurrent...
- ------------------ I applogize to the forum if my following comments are against the rules or offensive. I always look for thiskind of stuff and thought others might as well. ...
- Am currently having IVIGs 3 concurrent days every other month. Two cycles completed. Also 20 mg Prednisdone and 540 mg mestinon every day.The last two cycles I have experiened what my wife calls - aggrivated/irrational/argumentative - behavior...
- Has any one found that the addition of prebiotics and probiotics helpful in the management of MG???https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6241162/ - says: "....... It is becoming clear that dysbiosis* may drive chronic inflamation which...
- Still being new to this MG thing....Was just wondering if I would recogonize normal?