Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Very subjective though and certainly in my case very much down to the individual and how he or she feels about such things. It's often said that we're all different, especially in MG circles and whilst I'm sure that's levelled at the symptoms the fact remains that even with the same symptoms you'd get a different explanation from each and every one of us.
Bottom line being is your glass half-full or half-empty?
I feel fine by the way!
All in all
Is my life better today than it was 10 years ago.....YES
Will I recognize normal? Normal would be our old self or as close to that as we can get physically. At least that is what I see as normal. I don't really compare myself to others, just myself.
If I compared myself to others I would probably get severely depressed hahaha.
I think I have always tired out quicker than others.
1. Is anyone's New Normal like their Old Normal before MG struck?
2. What constitutes a Successful treatment plan?
3. Does anyone have Parkinson's Disease as well as MG? It appears that I have a number of PD's symptoms: Tremors in hands and arms, Slowed movement (bradykinesia), Impaired posture and balance and Speech changes. My Neuro stated that I have at least one other Autoimmune type of disease that is undiagnosed. He also stated that the treatment for this undiagnosed disease/disorder is the same for MG.
One of the ways I can look back and tell, is that before diagnosis and treatment, I often did little videos of something I was doing and what I noticed was that unless I had the camera away from my face, often I was huffing and puffing from very little exercise.
At the time, my doctor and thus me too, thought it was due to me being not in very good condition due to a lack of exercise. When I tried to do the exercise to improve, I really couldn't seem to do it and had given up -- figured it must be I was both too lazy and too far out of shape to get back into it. And that was really depressing to think it was all downhill for my future.
Then my double vision and ptosis started abruptly and I really had breathing problems and MG got diagnosed, I got treatment with mestinon and prednisone. In about 6 months (on treatment) I began to realize I was quite able physically again, much better than before diagnosis. And it made me realize that laziness was really not to blame, but MG. And I continued to improve and could do things, exercise and not so much huffing and puffing in the videos1
So, my old normal was really abnormally poor due to the undiagnosed MG. I tried to think when this had started, but it was so gradual, I really couldn't-- just years.
Good Luck
Russ
Had to quit work.
Driving is always questionable today. I have a trip tomorrow of hour and a half.
Depending on how I sleep tonight will determine how that will go.
Anway...truth....my life will never be as it was but that is ok. Many blessings have come now too.