Within a few days I was able to eat solid food after choking on everything. Not immediate though. Never before did food taste so good to me. After you finish with the infusions, you should feel some relief lasting close to a month.

Agreed!

Very sparingly used over here in the UK, it's expensive, doesn't offer long-lasting relief. However, when it comes to bridging the gap to allow the steroid sparing drugs to take effect it certainly works well and makes things far far better.

As usual this is based my own experience, I am well aware that IVIG is near essential for some of us with MG.

Peter

I generally do feel improvement the next day or so after the side effects wear off. I generally notice a drop off from treatment bounce after about 2 weeks.

It's funny -

My wife says that she sees a difference but I do not see/feel much difference before than after my current IVIG routine.

When I was doing monthly infusions around about week 3 I could see/feel deterioration and was looking forward to the next one.

Interesting -

After IVIg, I feel I have more energy, am less tired, and am able to accomplish so much more. My wife says she notices changes within days. She says I'm more upbeat, happier, and almost like I was before MG. I do know that it helps me. I'm taking 5mg prednisone daily and 1000mg cellcept 2x daily. Also, mestinon 60mg 4x daily. My neuro. feels the IVIg will help me get to the point when the cellcept really starts to work. Hopefully, that's the plan. Good luck, Joker46

Joker

That certainly sounds like the right plan to me!

Take care

Peter

Hello. I have been getting the IVIG since January 2016. I get it every 4 weeks for 5 days. I feel the difference after about a week after the infusion and it usually last three weeks. My energy level increases and my attitude is better. After three weeks I start to feel lethargic and lazy. Very little energy.

I go Monday thru Friday every four weeks and get a four hour infusion. I tried to spread it out to five weeks, but that did not work. I went back to four. So far so good. I am well over 200 treatments since I started and don't know when it will end. My Doc wants me to consider Soliris. We will have that discussion the next time we meet. Good Luck to you.

Now that I am almost a week away from my last treatment series, - in retrospect I do feel better and a bit more energized - been this way for the last couple of days.

Find that mornings are best for me.

Thanks again for your comments. :-)