brendacaytonwhite
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- I was diagnosed almost 2 years ago and have recently noticed new symptoms. Do they ever stop? Have they always been here but unnoticed because I have so many other things going on? I noticed that I have muscle spasms in the rear, left side of my...
- I have spent my entire adult lifetime taking care of myself and my children. I didn't really have anyone other than paid babysitters to help me at all. Now that I am stuck with PM, I have to ask for help in many areas of my life and it is so hard....
- With my lousy memory, I can't remember if I have posted since having the IVIG infusion. It was five days of sitting in a recliner for 6-8 hours while having the blood by product given to me by IV. It was painless, which is a good thing for a body...
- I don't know what is happening, but every once in a while I have dreams that are so weird that I feel if I fall back asleep I may die. When I first started on the Opana Er I would wake every couple hours and still do many nights. I also...
- I am as a little child today. I start my IVIG treatment tomorrow and wish that I could sleep until 8am when it starts. The Opana ER that I have been taking for the last few months no longer works at "all". How does a class 2 narcotic stop...
- I hope that I am not repeating myself, but I don't believe that I was on here yesterday after speaking with my neurology nurse. God is so good. She had informed me last week that my medical insurance approved my IVIG treatment and that she would...
- Okay I have been away for a while and come back with all of these new issues. I have been itching as if I have fleas. The new primary that I saw told me to use a lotion that at first sounded pretty good until I realized that I would have to have...
- The pain has gotten so severe over the past few months that I have just about lost it. My daughter doesn't allow me to pity myself, but there are many days that all I want to do is cry and scream. After over a year of pain without any treatment...
- As some of you know, I was diagnosed with Polymyositis last July. I worked in the healthcare field a few years ago and understand the meaning of the Poly, mo, sitis, pretty well, but I never knew anyone with this illness and had never heard of it. ...
- I finally saw a pain specialist and she gave me a fentanyl patch 25 mcg and it isn't helping at all. I change it every 72 hours and have not seen any relief. Has anyone else tried this? If not what have you taken for pain relief. She wants to...
- Hello Friends. I have made it through 2012 without many negative additional problems with the disease. I have been spending more time with my grandchildren who range from 13 months to 16 years. I had a wonderful visit from my sister who lives in...
- I can barely believe that my year-2012-that is what I titled it is almost over. I did accomplished a lot in my book. I moved, but plan to move again in Feb. I and my apt do not like each other. I need better amenities for my money. I found my...
- I have ben a lousy friend/supporter lately. I have been so busy, or thinking that I am busy, that I have not been online, for anything in quite a while. Forgive me for not showing y face in the place. That is a saying from the 70s. I don't mind...
- Hello all. I haven't been feeling that great lately. The pain in my legs seems to be increasing. It isn't any more severe, just covering more of my legs, but what is really concerning me is my memory loss. I can barely hold a decent conversation...
- Most of us experience some type of pain 24 hrs a day. It is how we handle the pain that makes the most difference. I do a lot of praying over my pain and have pretty much gotten use to it, so I try my best not to let it interfere with my day to...