Polymyositis & Dermatomyositis Support Group
Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.
I have ben a lousy friend/supporter lately. I have been so busy, or thinking that I am busy, that I have not been online, for anything in quite a while. Forgive me for not showing y face in the place. That is a saying from the 70s. I don't mind showing my age, because I am grateful for everyday that God allows me to enjoy. I have endured a lot of muscle pain in my thighs and knees over the past few weeks and start the rounds of test and labwork that we love, with no answer as to why I have increased pain. As I think about it, I realize that it is mainly in the leg that had the worst muscle condition. I believe that the pain is due to my muscles healing, but my Rheumy thinks it is probably something else. I don't have decrease in strength, just everlasting pain.
I am not allowing it to stop my fun times with my granddaughters or my attending functions. As long as I can get out of bed each day, I plan to go about my life of living. I sat down in the kids pool at the YMCA water park. I wasn't sure if I could get up, but I had a 3 yr old granddaughter that needed me there with her. I sat on the floor and played the game of Life with my 11 yr old granddaughter, who moved the car around the board when I couldn't reach it.
I love the Lord and He loves me back. I will enjoy every day that He gives me with a smile and some times when I am in a lot of pain with a frown.
I am not allowing it to stop my fun times with my granddaughters or my attending functions. As long as I can get out of bed each day, I plan to go about my life of living. I sat down in the kids pool at the YMCA water park. I wasn't sure if I could get up, but I had a 3 yr old granddaughter that needed me there with her. I sat on the floor and played the game of Life with my 11 yr old granddaughter, who moved the car around the board when I couldn't reach it.
I love the Lord and He loves me back. I will enjoy every day that He gives me with a smile and some times when I am in a lot of pain with a frown.
I have been experiencing alot of achyness lately. My thights and legs and upper arms. I live about 60 miles south of Boston, MA and the weather has been changing. Brrrrrrr. The coldness seems to make my skin a deep purple again. I can feel it in my body. But I will weather through it. HAHA
I'm sorry to hear of your continued pain and discomfort. It must be frustrating not to have answers. Don't forget that PM/DM can attack any connective tissue--muscles, nerves, lymphatic system--basically anything. I recently started taking a higher dose of vitamin c, and it seems to be helping my feet somewhat. Don't know if it would help you, but thought I'd mention it. Anyway, glad to see you again. I will pray about your chronic pain. Blessing and best wishes to you. You're right, the Lord does love us. And He is good--all the time.
I also have the muscle pain without feeling weak but when tested I am actually weak. I think maybe that the pain is so strong it masks the weakness. Also the fact that you felt like you may not be able to get up from the pool is the weakness. Hope you are enjoying your grandchildren and it is not too exhausting for you. I also look after my 2 grandchildren but wonder if it is aggravating my condition.
I went in to find out why I am having pain and he caused me additional pain. But I still refuse to give in to this pain. My 15 yr old grandson is having a birthday party in the park this weekend and I plan to ride over to Orlando to help celebrate.