cgoyergrand7
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- Hi all, I have a va shunt with my last revision 5/16. Was doing wonderful but last 4 weeks been in a lot of pain. CT scan shows collapsed right ventricle. Anyone have any experience with it and what to do about it.
- Can someone give me the address for the iih symptoms spreadsheet and the password please.
- I know nothing more then I knew before I went in. I went into the ER last Wednesday of a large Medical Facility. My eyes have been burning for days because something in leaking into them and making the the eyelids swell up. I also have leaking ...
- I have had my vp shunt for just over 2 years now. It is on the right side and I can move the valve up and down under my scalp with my fingers. I can feel it scraping on my skull. It is really weird! I'm not sure if this is new or normal or if...
- Yesterday while looking up something on my computer, my eyes started to burn and swell. My eyelids swelled so much that they were almost closed. My eyes felt like they were on fire and when I opened them up they were full of so much fluid...
- Has anyone been told that they have a dysfunction Vestibular system? Your vestibular system has a lot to do with your balance. I saw an ENT a few weeks ago and he ordered a VEMP test and according to the technician my left side was not responding....
- I have finally made an appointment with a doctor recommended by a member of DS. My appointment is 5/16. This dr is in Boston and I certainly hope she can help me. My family doctor says "his bag of tricks is empty" and since we get no support for...
- Even though I have a VP shunt I was having a lot of headaches and eye problems the last 6 months. The neuro eye dr ordered a spinal tap and the OP was 26 so they drained off 21 cc of fluid. I felt great! that was on Thursday, 3/7. On Tuesday,...
- I had a LP today because my headaches have been pretty bad lately. My vision has decreased. Neuro says probably migraines come back in4 months so the eye Dr ordered the Lp. Opening pressure was 26 and I am on Diamox and have a Vp shunt. But oi sure...
- Does anyone know of a good neurologist in New York or any surrounding state? I live in the Albany, NY area and my family doctor calls it "smallbany". We can't seem to get anywhere is finding a neurologist who truly understands IIH.
- I need a little help from everyone. I had a visual field test today and failed it miserably. The eye dr contacted my MD immediately and they decided to put me on diamox. I was wondering what dose most people usually take that are on this. they...
- This afternoon was one of those really bad head pain days so I took 2 Lortab and laid down. Finally I got some relief but a few hours later my husband told me that when I talked the right side of my lips were not moving correctly. My speech was a...
- I live in the Northeast and now that it is getting cold. My hands, especially my fingers tingle to the point of hurting terrible when they get cold. they use to do that all the time when I was on Diamox but I've been off of that since my shunt...
- My long term disability through my company was NOT approved. They feel I have no impairment. As my husband said "they should live with me for a week and they would change their mind". I'm so discouraged. They pick and chose what they want out of...
- I had a VP shunt placed in July 2011. I really thought that was going to make everything dramatically better but it hasn't. I'm so discouraged with the ongoing headaches, the pain, the memory loss, the difficulty in speaking at times and the...