camybaby
Status: Happy!
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- I'm Happy to share with you after being on Prednisone for a little over 4 years my Neurologist told me i can stop taking it. That I don't need it anymore I was on 2.5 mg for the past 6 months & nothing severe happened. Thank god. But as of tomorrow...
- Hi everyone does anyone who has shortness of breath workout? If so how do you control your breathing? I went on a hike today and my legs was able to take on the incline but my breathing was way out of control I felt shortness of breath. I was...
- I tried it for the first time today and I loved it. Is it okay to drink on Daily basis? Has anyone ever felt it's triggered your symptoms? Just wondering so if it does make anyone feel worse i would prefer to stay away from it myself.
- Hi everyone how are you doing today? i hope great. i was actually able to access my computer today & when i do i love to hear how others are coming along. I know i might talk to anyone frequent on here but when i am on i think of my fellow MGs &...
- Does anyone ever feel pain in there hand when they are dealing with weakness..?
- Hello Everyone I haven't been on in awhile sorry. :/ but just wanted to give you guys an update I saw my Neuro and all with me seems to be going well. And I also feel great of course I have my days at times but noting severe or not manageable. So me...
- I am waiting for named to be called & as I am sitting here I was wondering how you guys spend your time during treatment..?? I like to play wordfeud on my phone or watch tv sometimes sleep. How about you..?? By the way thank you to all the ones...
- For 2 years i hated my life everyday as soon as i woke up because i didn't know how to deal with my new life with this disease. Having to go through changes of medication, up dosing & tampering with Prednisone. and of course with all the side...
- I haven't been on in awhile. Hope everyone is well. Best wishes!!
- Hi Ladies my cycle had been thrown off a lot. For 3 months I'll get it monthly then I will skip a month or I get it every other month. I was thinking maybe it's because of the tampering with prednisone & my medications. Has this happened to any of...
- I just wanted to say Hi & I hope everyone is doing well! I haven't been on in a while. In October my neuro decided to lower my dose of my prednisone & IVIG & it didn't go well so 2 weeks ago we up dosed my IVIG again and I am just recovering and I...
- Four Months ago I lowered my prednisone from 10mg to 7.5mg. Nothing much happened just a lil nasal voice during the last few days when I was due for my next IVIG. Which I get 2 days every 3 weeks. Yesterday I saw my neuro and she said the nasal...
- Hello everyone I am here for advice. My dad has been an alcoholic for years now I wanna say ever since i was 12 and I am now 21yrs old and I am sick of it. I wish I can understand him on why he contines to Hurt me and my family by doing this because...
- Hi Everyone has anyone ever had tongue or Jaw pain. For the past two days I've been feeling this way and I notice more so after I eat. Is this due to MG. if so what do you guys do for relieve? I'm waiting for my doctor to get back to me at this...
- Yesterday I almost choked on chow mein & it brought me memories from my crisis I had 2 years ago & I freaked out and panicked. And I worked my self up to b scared to eat and I feel like I can't breathe. I think I am fine with breathing. But whenever...