Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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camybaby 10/06/2012

Four Months ago I lowered my prednisone from 10mg to 7.5mg. Nothing much happened just a lil nasal voice during the last few days when I was due for my next IVIG. Which I get 2 days every 3 weeks. Yesterday I saw my neuro and she said the nasal voice doesn't worry her much because its not so bad or noticeable. So she decided to lower my prednisone to 5mg everyday & lower my IVIG to one day instead of two. I am so nervous that since I already have some what a nasal voice I am gonna get weaker by the lower of medication but I also deal with anxiety every time we lower my meds. But I'm hanging in here. So now I will b on mestinon every 4 hrs. Cell cept , prednisone & one day IVIG I hope all goes well!

How is everyone doing.?? Also does anyone take any vitamins that help them feel better having MG..? I only take vitamin D & calcium

txkiki53 10/07/2012

Camy,

i sure understand the anxiety of lowering the meds. I want to get much lower on prednisone (30) but know the possibility of more systems, seems I choked more on 20 ugg...

I am glad you are doing better even tho you have the nasal voice. Here's to you continuing good health.

I am still having lots of symptoms off and on, so I am now to every 10 days for plex. I am hoping it makes a difference.

I do not take vitamins, hmm maybe I should.
hugs,
Annette

deleted_user 10/07/2012

Glad to hear you are able to get your dosage down!! Hope it works! You can only try.

Bamboolilly 10/07/2012

I do take vitamins : c,b-12, plus turmeric, ginger, other herbals.

Bamboolilly 10/07/2012

Also, my dr wants mr to start taking D.

annkemp 10/07/2012

I wouldn't drop predisone that fast and I would only do one drop... of either IVIG or predisone at a time If something goes wrong you won't know what caused it. I would drop IVIG and see how that goes and then when you stablize you can drop the predisone. I would ask the doc to do it this way.
I bet she will say yes and I do think you will be better off.
Too many changes and variables could cause you to end up going up on predisone or cause issues.
And you didn't even ask for my opinion did you.
Love
Ann

catnap2 10/07/2012

But what an excellent opinion it is Ann. I would have to agree. It is no good when you can't tell what caused the increase in symptoms. Better one thing at a time.
Cathi

Bamboolilly 10/07/2012

My neuro said the same-he wants to know if my thymectomy is working before adding on another med/therapy.

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