stefann

Activity

• Common Variable Immunodeficiency
  

  Discussion Comment

  Posted by: stefann

  Posted: 02/22/2019

  stefann commented on the discussion Gamunex C Question.

• Common Variable Immunodeficiency
  

  Discussion Comment

  Posted by: stefann

  Posted: 12/07/2018

  stefann commented on the discussion 2nd Month Doing IVIG Question.

• Common Variable Immunodeficiency
  

  Discussion Comment

  Posted by: stefann

  Posted: 12/07/2018

  stefann commented on the discussion CVID patients: did IG-therapy help with fatigue?.

• Common Variable Immunodeficiency
  

  Enlarged lymph nodes

  Posted by: stefann

  Last Reply: Northernelf1 03/21/2018

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  Anyone have enlarged lymph nodes? Is this normal with cvid? My left armpit node is enlarged. I had an ultrasound in Dec dr said probably beign, I go back next month for follow up ultrasound and will get a biopsy. Also saw my hematologist he felt it said it wasn't that big and they moved which was good and looked at all my lab work said everything looks normal. I know there is an increased risk for non Hodgkin lymphoma so I'm all paranoid

• Common Variable Immunodeficiency
  

  Discussion Comment

  Posted by: stefann

  Posted: 03/15/2018

  stefann commented on the discussion Rosacea issues with CVID.

• Common Variable Immunodeficiency
  

  Discussion Comment

  Posted by: stefann

  Posted: 03/15/2018

  stefann commented on the discussion Lung nodules.

• Common Variable Immunodeficiency
  

  Discussion Comment

  Posted by: stefann

  Posted: 03/15/2018

  stefann commented on the discussion Lung nodules.

• Common Variable Immunodeficiency
  

  Discussion Comment

  Posted by: stefann

  Posted: 03/15/2018

  stefann commented on the discussion Lung nodules.

• Common Variable Immunodeficiency
  

  Lung nodules

  Posted by: stefann

  Last Reply: stefann 03/15/2018

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  0

  hello,i just had a chest Ct last week and was told that I have some nodules and glass ground opacities that they would like to watch. Some have cleared up on their own. I have only been on ivig for 7 months. Anyone else go through this? I'm nervous. 

• CVID Female Issues
  

  Discussion Comment

  Posted by: stefann

  Posted: 10/11/2017

  stefann commented on the discussion CVID and UTI's.

• Common Variable Immunodeficiency
  

  Weight loss

  Posted by: stefann

  Last Reply: StaceyCA 01/21/2018

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  Hello,Just wanted to know if anyone else had this issue. I've only had two infusions and have noticed I've lost about 3-4lbs. My diet hasn't changed much except not drinking alcohol as much and eliminating dairy. Will my weight go back up after a few months once the ivig treatment starts working? Thanks for listening

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  Joined New Group

  Posted by: stefann

  Posted: 09/07/2017

  stefann joined the group CVID Female Issues.

• Common Variable Immunodeficiency
  

  Discussion Comment

  Posted by: stefann

  Posted: 09/06/2017

  stefann commented on the discussion Had 2nd infusion.

• Common Variable Immunodeficiency
  

  Discussion Comment

  Posted by: stefann

  Posted: 09/05/2017

  stefann commented on the discussion Had 2nd infusion.

• Common Variable Immunodeficiency
  

  Had 2nd infusion

  Posted by: stefann

  Last Reply: Pattiana 09/09/2017

  5

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  Hi everyone.  Just had second infusion last Thursday, this time around it seemed to go better no headaches.  Only things I've noticed this time is bouts of dizziness and no appetite at times a few days after.  Anyone else experience side effects like this? Wondering if after each infusion I may have different effects. Thanks!