Common Variable Immunodeficiency Support Group

Common variable immunodeficiency (CVID) is a group of 20-30 primary immunodeficiencies (PIDs) which have a common set of symptoms but with different underlying causes. CVID's underlying causes are different, but the result of these are that the body doesn't produce sufficient antibodies in response to exposure to pathogens.

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2nd opinion

Posted by: carlsonamy

Posted: 05/05/2020

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Hi all, I have not veen on here in a while and am just looking for info on Covid 19 and immunodeficiencies. I get the... READ MORE
insurance premiums

Posted by: carlsonamy

Posted: 02/28/2020

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Hi All, I have not been on here for a while because things are going well with my health, ( I have CVID and severe... READ MORE
Insurance Issues

Posted by: summerskies

Last Reply: summerskies 01/04/2020

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After several years of sub-q infusions, my company prescription insurance has gotten haywire. CVS is the insurance and... READ MORE
Pneumovax test

Posted by: emmyl

Last Reply: lcmacg 12/13/2019

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My daughter was found deficient in her pneumococcal titers - I don't have the actual lab reports yet, but we have to... READ MORE
Igg results

Posted by: thesauce

Last Reply: lcmacg 12/13/2019

7

hi everyone! I have been doing Hizentra Sub-Q for almost a year now and I just got my Igg results. It only went up 100... READ MORE
Bad Veins and Thinking of going SubQ

Posted by: Sheriann

Last Reply: lcmacg 12/13/2019

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I have horrible veins and always have...in fact, I had a PICC Line because of them; in 2014, the line got infected and... READ MORE
Treatment Options.

Posted by: CVID

Last Reply: lcmacg 12/13/2019

3

Hello everyone, I would love to hear your thoughts on this.after doing IVIG for 15 years I ran out of veins due to... READ MORE
New Member

Posted by: CaneandCanines

Posted: 11/14/2019

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Hello all,My name is Annesley and I was recently diagnosed with CVID. I started SCIG and on my second infusion wound up... READ MORE
Hello

Posted by: Mel-C

Posted: 11/08/2019

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Hi there. I was diagnosed with CVID about 4 years ago and it was caused by the treatment for my autoimmune... READ MORE
cvid treatment

Posted by: momof449

Last Reply: clicchic 11/03/2019

5

I have been diagnosed with CVID for about 12 yrs. I have had routine infusions with my levels going back and forth.... READ MORE
Just diagnosed

Posted by: Liinney

Last Reply: clicchic 11/03/2019

1

I was just diagnosed yesterday with CVID. I had been seeing a rheumatologist and had blood work completed and it showed... READ MORE
Has Anyone Experienced Weight Gain with IGG?

Posted by: DLyngard

Last Reply: momof449 07/10/2019

2

Hello Everyone: I'm curious to know if anyone taking IGG infusions has experienced weight gain. In the last year I've... READ MORE
Premedicate 1st infusion?

Posted by: Liinney

Last Reply: momof449 07/10/2019

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I am new to CVID and overwhelmed. I will be doing infusions at home with a nurse with me until I feel comfortable. I... READ MORE
CIVD Diagnosis and Dr. in the Philadelphia Area

Posted by: Maggie333

Last Reply: Liinney 06/25/2019

3

Hello,I have low IGg and IGA and I went to an immunologist that really does not have enough experience in CVID. I had... READ MORE
Serious Questions for CVID Patients & Doctors

Posted by: leesburg

Last Reply: leesburg 05/13/2019

2

1) How often is it recommended to have Labs Done for a CVID Patient?2) Can anyone recommend a Lab in NC for testing?3)... READ MORE