Common Variable Immunodeficiency Support Group

Common variable immunodeficiency (CVID) is a group of 20-30 primary immunodeficiencies (PIDs) which have a common set of symptoms but with different underlying causes. CVID's underlying causes are different, but the result of these are that the body doesn't produce sufficient antibodies in response to exposure to pathogens.

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Infection

Posted by: pault

Posted: 09/28/2024

0

I had cvid since birth but didn't find out till age 13. By then ear and lung damage was severe. I am taking hizentra... READ MORE
Travel

Posted by: deleted_user

Last Reply: asengjo 12/16/2023

5

I am leaving on a short trip on Wednesday. I need to fly and I need to take my SubQ equipment. Does anyone know if I... READ MORE
Interstitial Lung Disease Support Group

Posted by: kelli1b

Last Reply: bcade 01/09/2022

16

Hi everyone! I just started an ILD support group here on DS! It was time. I know there were several of us who have... READ MORE
CVID returns after 2yrs remission

Posted by: deleted_user

Last Reply: sonnycamehome 09/17/2021

11

I was diagnosed with hypogammaglobulinemia 7yrs ago. I got extemely sick and was house bound and in and out of the... READ MORE
living with a chronic disease.......

Posted by: deleted_user

Last Reply: TinaMichelle 07/28/2011

14

and not driving your loved ones insane.......i was at my infusion the other day and decided there are some crazy... READ MORE
vaccine

Posted by: carlsonamy

Last Reply: Zenaby719 05/16/2021

3

Hi All, Has anyone heard anything about the effectiveness/risk of the covid vaccine on CVID patients? Our state just... READ MORE
Hello

Posted by: Mel-C

Last Reply: jpowers1976 02/25/2021

2

Hi there. I was diagnosed with CVID about 4 years ago and it was caused by the treatment for my autoimmune... READ MORE
leg and feet cramping

Posted by: blynn5

Last Reply: jpowers1976 02/25/2021

4

Hi All,I wa diagnosed about three years ago with CVID. I have been doing sub-q Hizentra since then and really have... READ MORE
Love to find support

Posted by: DanieleShannon

Last Reply: NemoCW13 12/25/2020

1

Is this group active?
Introduction - newly diagnosed with CVID

Posted by: NemoCW13

Posted: 12/25/2020

0

I was diagnosed with CVID last week.My first serious infection was at least 26 years ago. At that point, I was told... READ MORE
Are there any groups that meet online for support?

Posted by: Alissa0123

Posted: 10/07/2020

0

I have had Cvid for about 10 years? Maybe more. Overall, I do pretty well but have had some major events, like dvt that... READ MORE
Would anyone dare join a Gym?

Posted by: stimpy

Last Reply: Alissa0123 10/07/2020

6

Just curious to know, would anyone join a gym knowing you have CVIDS? I ask, because I would really love to join one... READ MORE
2nd opinion

Posted by: carlsonamy

Last Reply: Alissa0123 10/07/2020

1

Hi all, I have not veen on here in a while and am just looking for info on Covid 19 and immunodeficiencies. I get the... READ MORE
insurance premiums

Posted by: carlsonamy

Last Reply: Buckeyegirl 08/11/2020

1

Hi All, I have not been on here for a while because things are going well with my health, ( I have CVID and severe... READ MORE
Insurance Issues

Posted by: summerskies

Last Reply: summerskies 01/04/2020

2

After several years of sub-q infusions, my company prescription insurance has gotten haywire. CVS is the insurance and... READ MORE