Common Variable Immunodeficiency Support Group

Common variable immunodeficiency (CVID) is a group of 20-30 primary immunodeficiencies (PIDs) which have a common set of symptoms but with different underlying causes. CVID's underlying causes are different, but the result of these are that the body doesn't produce sufficient antibodies in response to exposure to pathogens.

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Are there any groups that meet online for support?

Posted by: Alissa0123

Posted: 10/07/2020

0

I have had Cvid for about 10 years? Maybe more. Overall, I do pretty well but have had some major events, like dvt that... READ MORE
leg and feet cramping

Posted by: blynn5

Last Reply: Alissa0123 10/07/2020

3

Hi All,I wa diagnosed about three years ago with CVID. I have been doing sub-q Hizentra since then and really have... READ MORE
Would anyone dare join a Gym?

Posted by: stimpy

Last Reply: Alissa0123 10/07/2020

6

Just curious to know, would anyone join a gym knowing you have CVIDS? I ask, because I would really love to join one... READ MORE
2nd opinion

Posted by: carlsonamy

Last Reply: Alissa0123 10/07/2020

1

Hi all, I have not veen on here in a while and am just looking for info on Covid 19 and immunodeficiencies. I get the... READ MORE
insurance premiums

Posted by: carlsonamy

Last Reply: Buckeyegirl 08/11/2020

1

Hi All, I have not been on here for a while because things are going well with my health, ( I have CVID and severe... READ MORE
Insurance Issues

Posted by: summerskies

Last Reply: summerskies 01/04/2020

2

After several years of sub-q infusions, my company prescription insurance has gotten haywire. CVS is the insurance and... READ MORE
Pneumovax test

Posted by: emmyl

Last Reply: lcmacg 12/13/2019

1

My daughter was found deficient in her pneumococcal titers - I don't have the actual lab reports yet, but we have to... READ MORE
Igg results

Posted by: thesauce

Last Reply: lcmacg 12/13/2019

7

hi everyone! I have been doing Hizentra Sub-Q for almost a year now and I just got my Igg results. It only went up 100... READ MORE
Bad Veins and Thinking of going SubQ

Posted by: Sheriann

Last Reply: lcmacg 12/13/2019

6

I have horrible veins and always have...in fact, I had a PICC Line because of them; in 2014, the line got infected and... READ MORE
Treatment Options.

Posted by: CVID

Last Reply: lcmacg 12/13/2019

3

Hello everyone, I would love to hear your thoughts on this.after doing IVIG for 15 years I ran out of veins due to... READ MORE
New Member

Posted by: CaneandCanines

Posted: 11/14/2019

0

Hello all,My name is Annesley and I was recently diagnosed with CVID. I started SCIG and on my second infusion wound up... READ MORE
Hello

Posted by: Mel-C

Posted: 11/08/2019

0

Hi there. I was diagnosed with CVID about 4 years ago and it was caused by the treatment for my autoimmune... READ MORE
cvid treatment

Posted by: momof449

Last Reply: clicchic 11/03/2019

5

I have been diagnosed with CVID for about 12 yrs. I have had routine infusions with my levels going back and forth.... READ MORE
Just diagnosed

Posted by: Liinney

Last Reply: clicchic 11/03/2019

1

I was just diagnosed yesterday with CVID. I had been seeing a rheumatologist and had blood work completed and it showed... READ MORE
Has Anyone Experienced Weight Gain with IGG?

Posted by: DLyngard

Last Reply: momof449 07/10/2019

2

Hello Everyone: I'm curious to know if anyone taking IGG infusions has experienced weight gain. In the last year I've... READ MORE