Common Variable Immunodeficiency Support Group

Common variable immunodeficiency (CVID) is a group of 20-30 primary immunodeficiencies (PIDs) which have a common set of symptoms but with different underlying causes. CVID's underlying causes are different, but the result of these are that the body doesn't produce sufficient antibodies in response to exposure to pathogens.

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CVID patients: did IG-therapy help with fatigue?

Posted by: Mika09

Last Reply: wawa4 12/09/2018

7

Anyone out here with CVID + fatigue who went on Ig-therapy? Did it improve or worsen your fatigue?I was recently... READ MORE
2nd Month Doing IVIG Question

Posted by: thesauce

Last Reply: stefann 12/07/2018

3

Hi everyone! I just did my second infusion of Gamunex-C. The first month they did the infusion slowly. I had 3 days... READ MORE
Bad Veins and Thinking of going SubQ

Posted by: Sheriann

Last Reply: lcmacg 11/28/2018

5

I have horrible veins and always have...in fact, I had a PICC Line because of them; in 2014, the line got infected and... READ MORE
Lupus Anyone ?

Posted by: Northernelf1

Posted: 11/24/2018

0

I have read that people with CVID can develop Lupus - it seems that is where I am at. I have been dealing with... READ MORE
CVID - How can I tell if this is me?

Posted by: Mr..Bee

Last Reply: sonnycamehome 11/14/2018

1

How can I tell if this is me?This is my list of troubles. FoodMast cell activation syndrome (MCAD)Food... READ MORE
GLILD

Posted by: barb4j

Last Reply: Sasquatch 10/17/2018

1

Has anyone here been diagnosed with Granulomatous-lymphocytic interstitial lung disease? My immunologist thinks I... READ MORE
Cvid

Posted by: Bear2beme

Last Reply: Sasquatch 10/17/2018

15

I was diagnosed with CVID about 6 months ago. There is little known about it other than very vague information. I go... READ MORE
Surgery and CVID

Posted by: tamiller30022

Last Reply: Sasquatch 10/17/2018

8

Hello,I have to have surgery for a bone spur on my foot. I asked my Dr. if there is anything special I have to do prior... READ MORE
Ituximab Infusion for CVID

Posted by: pkhanna

Last Reply: Sasquatch 10/17/2018

1

I am new to this group. I was diagnosed with CVID last week. My doctors (Immunoligt, Hematologit) prescribed... READ MORE
Bad reaction to IgG - rush, fever

Posted by: larwalk

Last Reply: Sasquatch 10/17/2018

1

Hi All,I'm new to CVID. I was put on IgG subcut first but had a very bad rash on injection sites. I was then tried on... READ MORE
Fasenra?

Posted by: carlsonamy

Posted: 10/17/2018

0

Hi all, I havent been on here for a while! I was diagnosed with CVID about 5 years ago and have a whole mess of... READ MORE
CVID low CD19 and NK cells

Posted by: megsrose

Posted: 10/08/2018

0

I was diagnosed with CVID over 10 years ago. After going through a recent stressful time, I made the tough decision... READ MORE
confused by the information i am being given

Posted by: Londongirl

Last Reply: megsrose 10/08/2018

4

I was diagnosed with CVID approx 8 years ago. I was very sick with respiratory infections and could not get well. ... READ MORE
Switched from Sub-q to IVIG

Posted by: thesauce

Last Reply: thesauce 10/03/2018

5

I just switched from Sub-q to IVIG. I did Sub-q (Hizentra) for a year. I never felt good and had bad side effects... READ MORE
CVID enteropathy

Posted by: loahli

Last Reply: colleeninct 09/12/2018

1

hi there,Only diagnosed with CVID the last year. The GI symptoms are overwhelming. I was started on Budesonide 9mg and... READ MORE