Common Variable Immunodeficiency Support Group

Common variable immunodeficiency (CVID) is a group of 20-30 primary immunodeficiencies (PIDs) which have a common set of symptoms but with different underlying causes. CVID's underlying causes are different, but the result of these are that the body doesn't produce sufficient antibodies in response to exposure to pathogens.

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Serious Questions for CVID Patients & Doctors

Posted by: leesburg

Last Reply: leesburg 05/13/2019

2

1) How often is it recommended to have Labs Done for a CVID Patient?2) Can anyone recommend a Lab in NC for testing?3)... READ MORE
cvid and a mammogram!

Posted by: carlsonamy

Posted: 04/25/2019

0

I havent posted for a while, but I had a mammogram over a week ago and just yesterday recieved a call saying it was... READ MORE
Has Anyone Experienced Weight Gain with IGG?

Posted by: DLyngard

Last Reply: Paka 03/13/2019

1

Hello Everyone: I'm curious to know if anyone taking IGG infusions has experienced weight gain. In the last year I've... READ MORE
CVID - How can I tell if this is me?

Posted by: Mr..Bee

Last Reply: Mr..Bee 03/12/2019

2

How can I tell if this is me?This is my list of troubles. FoodMast cell activation syndrome (MCAD)Food... READ MORE
Gamunex C Question

Posted by: thesauce

Last Reply: stefann 02/22/2019

1

Hi Everyone! I have been doing IVIG Gamunex C 25mg for 5 months. I did Hizentra Sub Q for a year before that. I... READ MORE
Would anyone dare join a Gym?

Posted by: stimpy

Last Reply: Benjamin701 02/22/2019

6

Just curious to know, would anyone join a gym knowing you have CVIDS? I ask, because I would really love to join one... READ MORE
Treatment Options.

Posted by: CVID

Last Reply: Bella78 02/13/2019

1

Hello everyone, I would love to hear your thoughts on this.after doing IVIG for 15 years I ran out of veins due to... READ MORE
CVID patients: did IG-therapy help with fatigue?

Posted by: Mika09

Last Reply: wawa4 12/09/2018

7

Anyone out here with CVID + fatigue who went on Ig-therapy? Did it improve or worsen your fatigue?I was recently... READ MORE
2nd Month Doing IVIG Question

Posted by: thesauce

Last Reply: stefann 12/07/2018

3

Hi everyone! I just did my second infusion of Gamunex-C. The first month they did the infusion slowly. I had 3 days... READ MORE
Bad Veins and Thinking of going SubQ

Posted by: Sheriann

Last Reply: lcmacg 11/28/2018

5

I have horrible veins and always have...in fact, I had a PICC Line because of them; in 2014, the line got infected and... READ MORE
Lupus Anyone ?

Posted by: Northernelf1

Posted: 11/24/2018

0

I have read that people with CVID can develop Lupus - it seems that is where I am at. I have been dealing with... READ MORE
GLILD

Posted by: barb4j

Last Reply: Sasquatch 10/17/2018

1

Has anyone here been diagnosed with Granulomatous-lymphocytic interstitial lung disease? My immunologist thinks I... READ MORE
Cvid

Posted by: Bear2beme

Last Reply: Sasquatch 10/17/2018

15

I was diagnosed with CVID about 6 months ago. There is little known about it other than very vague information. I go... READ MORE
Surgery and CVID

Posted by: tamiller30022

Last Reply: Sasquatch 10/17/2018

8

Hello,I have to have surgery for a bone spur on my foot. I asked my Dr. if there is anything special I have to do prior... READ MORE
Ituximab Infusion for CVID

Posted by: pkhanna

Last Reply: Sasquatch 10/17/2018

1

I am new to this group. I was diagnosed with CVID last week. My doctors (Immunoligt, Hematologit) prescribed... READ MORE