Common Variable Immunodeficiency Support Group

Common variable immunodeficiency (CVID) is a group of 20-30 primary immunodeficiencies (PIDs) which have a common set of symptoms but with different underlying causes. CVID's underlying causes are different, but the result of these are that the body doesn't produce sufficient antibodies in response to exposure to pathogens.

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Ituximab Infusion for CVID

Posted by: pkhanna

Posted: 05/18/2018

0

I am new to this group. I was diagnosed with CVID last week. My doctors (Immunoligt, Hematologit) prescribed... READ MORE
Scalp Pain

Posted by: deleted_user

Last Reply: joe1974 05/16/2018

9

I don't know if we have ever had a discussion about this topic, or if anyone else experiences a similar problem. I... READ MORE
Subq reaction/supplies

Posted by: Lexi7

Last Reply: Lexi7 05/16/2018

2

Does anyone have a reaction to the 60ml syringes used for subq? Lately I have been having allergic type reactions to my... READ MORE
Igg results

Posted by: thesauce

Last Reply: thesauce 05/14/2018

2

hi everyone! I have been doing Hizentra Sub-Q for almost a year now and I just got my Igg results. It only went up 100... READ MORE
Looking for insight!!

Posted by: Jessk77

Last Reply: sonnycamehome 05/11/2018

1

Hi everyone! I am turning to people who live with immune deficiency's to help point me in the right direction. I am... READ MORE
Sub q question

Posted by: Lexi7

Posted: 05/08/2018

0

I was drawing up my 3 bottles of Hizentra into the 60ml syringe. The first two went great. When I pulled the spike... READ MORE
Mystery pains with CVID

Posted by: phxguy

Posted: 05/07/2018

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I was curious if anyone else has had "mystery pains" with their CVID. In 2008, I developed a right flank pain, in the... READ MORE
Surgery and CVID

Posted by: tamiller30022

Last Reply: phxguy 05/06/2018

7

Hello,I have to have surgery for a bone spur on my foot. I asked my Dr. if there is anything special I have to do prior... READ MORE
Hyzentra issues

Posted by: tstrong824

Last Reply: L-A 05/01/2018

4

Hello my fellow zebras. I just recently had to go to the emergency room for anaphylaxis(swollen everything and couldn't... READ MORE
Can't afford co-pay for IVIG for CVID HELP

Posted by: RubyWitch

Last Reply: JenniferLeigh 04/21/2018

3

Hello. I'm a 66 y/o woman and was diagnsosed with CVID two years ago. It took the doctors at the hospital a YEAR of... READ MORE
leg and feet cramping

Posted by: blynn5

Last Reply: blynn5 04/15/2018

2

Hi All,I wa diagnosed about three years ago with CVID. I have been doing sub-q Hizentra since then and really have... READ MORE
GLILD

Posted by: barb4j

Posted: 03/23/2018

0

Has anyone here been diagnosed with Granulomatous-lymphocytic interstitial lung disease? My immunologist thinks I... READ MORE
Insomnia

Posted by: deleted_user

Last Reply: Satish 03/22/2018

10

Anyone ever have insomnia as a side effect of IVIG? I have not been able to sleep this weekend, and my nerves are very... READ MORE
Shingles again!!!

Posted by: sp33

Posted: 03/22/2018

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This is the 4th time having shingles!! I am annoyed to say the least. I know infections have become a part of my life... READ MORE
Igg levels

Posted by: yukonwhitehorse

Last Reply: sp33 03/22/2018

1

i do 40 mg of Hizentra infusions at home. My immunologist will only check on me every 6 months. I live in Waterloo,... READ MORE