I've been receiving IGG infusions since 2003. I am chronically fatigued... I cannot tell the IGG infusions have helped with fatigue. However, I MUST have the infusions or I will not live long.

I did a year of Sub-Q (Hyzentra) and never felt good or had energy. I switched to IVIG (Gamunex-C at an infusion center) and had my first infusion 3 weeks ago. I am sleeping better, I don't have brain fog anymore, and I have more energy. My family said I seem happy the last couple of weeks. From what I have been told, it will take up to 6 months to be feeling alot better. I hope this helps!

Hi , I have been on ivig and scig . Diagnosed with cvid in 2011 . On SCIG ( Cuvitru) for the past 7 months . I am on weekly infusions . I feel that SCIG gives me a bit more energy following each infusion but I tend to overdo it when I do get that burst of energy and crash the following day . I am trying to pace myself better to reserve some of that energy so it can be more evenly distributed throughout the week instead of playing myself out in one day . I think fatigue is something quite common among us .

You could always give it 6 months and see if it helps. I was diagnosed in 2015. I’ve done IV and SQ. My biggest complaint was they overwhelming fatigue. It was awful. Ig therapy has helped me tremendously. Can play with my kid, exercise, and work. I feel pretty good most days. Start out with the infusions going slow. Lots of info at primaryimmune.org

I had a very similar history as you when I was diagnosed nearly 9 years ago. My respiratory problems had lasted several years but had calmed down for a few years prior to dx. I too was left with crushing fatigue and an intolerance to exercise.

I've been on IVIG all this time and it has given me a life back. It has continued to protect me from respiratory infections, allowed me to exercise and on a good day my energy is back about 65%. On a bad day, I'm still improved by about 30-40%.

It's hard to be totally accurate about the extent of my improvement since I'm getting older as well (pushing 65) and I can't fairly compare energy levels from my 30's and 40's. My opinion is to give IG therapy a try and keep an open mind for 6 to 18 months. Best of luck.

I was diagnosed with CVID in July of 2017 and exhaustion was one of my biggest complaints. I had a hard time getting out of bed in the morning and was constantly fatigued. I do IVIG gammunex c every 4 weeks I have definitely noticed an increase in energy. Took about 12-15months for me to really notice a difference. I will aslo mention that I have little to no side effects with the infusions. I know everyone is different. Staying hydrated during the infusion the day of, the day before and the day after helps tremendously. Hope this helps.

After spending two weeks in the ICU on life support almost three years ago, and then continuing to get extremely sick, I was finally diagnosed with CVID. I was told that the infusions would help with the fatigue, but after 1 1/2 years, I still have extreme fatigue. I had such hope that the infusions would help, but they didn't. I also have extreme achiness all the time. But, on the bright side, I'm alive.