rave713's Posts | DailyStrength

Status: Beginning to taper the prednisone. :) Praying for the best!

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Pain & Remission

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I have been off of all medications, except for my infusions, for 5 weeks. I have felt fine until getting over my cold. I can now feel pain in my legs. Have you found that even if you've achieved remission, you have to exercise daily?
Getting off of Cellcept

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Has anyone just stopped taking cellcept. I have been off of it for 2 weeks. So far no problems. If anyone else has done this, what kind of side effects did you get from stopping cold turkey?
Working, How do you manage?

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I had after 2 years attempted to go back to work. I found what was supposed to be a part time job 10-15 hrs at CVS. They kicked it up to 30+ a week at times I pushed it for 2 months, coming in on days when I cud barely walk. Bringing my walker to...
Illness after loss

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Has anyone else became ill after a loss. My daughter was stillborn in Dec. 09 and I was diagnosed with an autoimmune disorder in Feb. 2010. How do you cope? I find it hard because the medication they have put me on isn't safe with pregnancy. So time...
Calcification

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http://magnesiumforlife.com/medical-application/calcification-and-its-treatment-with-magnesium-and-sodium-thiosulfate/I found this page online about calcification and the magnesium-calcium interaction in the body. I just wanted to share as well as...
Going Back

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Has anyone else found it hard to go back to where you layed your angel to rest. It will be 2 years in December and I keep talking about wanting to go out there.Yesterday I tried to pick out flowers to bring to her, but I couldn't even do that. I...
Methotrexate allergic reaction

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It has been many months ago but while on methotrexate. I began to get big giant red painful welps up and down my legs. I didn't know the cause and noone would give me an answer. Until today at my infusion, another woman was talking about having the...
Dancing At The River's Edge

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I don't know how many are like me but I read books constantly. Recently, I finished the book Dancing At The Rivers Edge by Alida Brill and Michael D. Lockshin, M.D . It was something we can all relate to. It changes perspectives throughout the book...
Ticket to Work Program

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They offer a "Ticket to work" through the social security program. Apparently, you can turn in your ticket to a company that is paid for you working with them. Has anyone tried this or know more about it? I feel as though I need to be helping to...
IV Port

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Has anyone had an IV port placed? I am going tomorrow to have one placed and don't know what to expect.
Calcinosis Treatment/Cure

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I just wanted to inform those with calcinosis that there is help possibly. I went to see a bone and mineral specialist. I in all honestly thought all I would be receiving was more information. Any time you look up calcinosis it seems as though there...
Diagnosis w/o biopsy

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I was just curious if any have been diagnosed without having a biopsy. I have never had a biopsy. For my diagnosis they just looked at me then lifted up my arm and legs then watched them fall as I couldn't lift them. Actually my rheumatologist...
Rituxan Fear

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My insurance has approved the Rituxan infusions. However, I found this out by a call from my doctors office. They had already set up the dates for the infusion. It sent me into shock I knew it was an option that was talked about but I am fearful. My...
1 Year

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It will be a year on the 19th of this month. I want to do something special for this day. Something positive. Does anyone have any ideas? or just in general what have you done for the one year mark. I know it is going to be extremely hard to get...
Imuran

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Has anyone experienced extreme fatigue with Imuran. That is my only problem I am having with it. My prednisone is down to 10mg so I believe that could also be causing the fatigue. I'm getting tired of being tired.