Scoliosis Support Group

Scoliosis affects all ages. Unlike the naturally occurring curves in the spine, scoliosis causes the spine to curve abnormally to the left or right.

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  • TonyaC

    Adult Braces for Posture Correction?

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    I was told I have scoliosis since I was about 11. Now that I'm 53 years old, I'm becoming more and more self conscious about it. My upper back is rounded and hunched, sticks out and clothes look terrible on me. I'm 5'2" and 160 lbs which doesn't help my appearance I know.  I do not have constant pain, but I've noticed that when I sneeze or cough, my upper back does hurt and sometimes pops. I'm...
  • 3crazygirls

    6 year old with EO Juvenile Scolisosis

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    My daughter was just diagnosed and we are awaiting appointment with a specialist. She has a 34 degree thoracic curve and an 18 degree lumbar curve. We are quite devstated and I have given myself a crash course in EO Juvenile Scoliosis. Seems we are heading towards bracing and given her curvature and age she is liekly to need surgery down the road, but we'll cross that bridge when we get...
  • As posture impacts pain, depression, the ability to breathe deeply and overall health I wanted to share that PostureMonth.org has a directory of physician, therapist and trainer facilities offering free posture picture assessments during May. It's Posture Month- and this is an annual international health initiative.  This is the first year free posture checks have been a part of the campaign....
  • Mariko

    Harrington rod surgery

    Hi,  I've had a 14 inch  harrington rod implant 41 years ago come this july.  I have constant pain and have difficulty walking now. I'm just looking for similar persons around my age to talk to. I live in Hawaii and I don't know any other person who has had this surgery done, even though it was performed at Tripler Army Medical Center. It would be nice to talk to someone who can relate to what...
  • Jansi

    New brace for my daughter

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    My 13yr old daughter has been wearing the Minnesota brace for the past 6 months.  Last week's xray showed only a 4 degree drop in the curve.  We are trying the latest Rigo-Cheneau brace since seeing other girls use it.  This brace seems more dynamic than the box-like feel of the Minnesota brace which is very similar to the old Boston brace.  Has anyone had any experience with the Rigo brace?
  • dancingbean

    I'm having trouble feeling like myself

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    Hi, I'm 14 years old and have been diagnosed with scoliosis for almost 3 and a half years and have had a back brace for a little less than 3 and a half years. I was diagnosed in 5th grade, which wasn't a good year for me in general. Once I was given my back brace, I started having trouble feeling like myself. I used to be friendly, smiling a whole lot, and I felt extremely confident in the way I...
  • Alienaubs

    My mom doesnt believe im in pain

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    I am a 21 year old with a baby. I had my first surgery for scoliosis when I was 14 and got mrsa from the rods when I was 15 and had them removed. My mom claims that I'm not in pain and that I use it as an excuse to not do anything. I was hoping I could find some one who could possibly talk to my mom or even just let me show her your story about living with scoliosis. 
  • enigmaticloner

    Adult Back Brace

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    I recently started seeing another chiropractor that specializes in scolisis and he has recommended me a back brace for me to wear a few hours a day to help prevent my curve from progressing and also to help with the back pain that I've been getting over the years. My question is has anyone here worn a back brace as an adult and if so have you seen any help with being able to stand longer and/or...
  • DawnR

    Just found out my daughter has scoliosis

    Being a mother of one and only daughter I just found out my daughter has scoliosis.. Her degree is 57.  Surgery is recommended however I am terrified! I ask myself am I doing the right thing.  Is there any other parents out there with a daughter that is 12 years old and going though the decision process of doing what's right?  Please help.. Any support would be kindly appreciated.  Thank...
  • tgclanie412

    What should I do?

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    I'm 12 years old and was diagnosed with a double curve of 30 on top and 18 on bottom. I'm currently wearing a boston brace. I really hate the brace and I'm wondering if I should just ask to get the surgery. Can anybody who has had the surgery tell me how long it takes to recover, and just the recovery process? Thanks!
  • clariRoo18

    Frightened

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    My scoliosis is rapidly progressing. Im 14 years old and I was first diagnosed with scoliosis about 8 months ago when I was at Shriners Hospitial for a check up after my last leg surgery (I had both my femurs and my right tibia and fibula sawed in half and got plates and screws putin all) and I had been having back pain for a while so I told my orthopedic surgon and he looked at my back and had...
  • lcblue

    Post surgery stories?

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    Hey everyone, my name is lauren and I'm 23 years old living with scoliosis. I had spinal fusion surgery at the age of 12. I had a 60 degree curvature so bracing wasn't even considered. I played sports all throughout high school and never restricted myself from doing the things a "normal" kid would do. I was wondering if anyone has experienced any problems with their rods. I have been...
  • MissJenn

    What does post surgery life look like

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    I am 46 and suffered with the pain of double curve scoliosis and have decided to have surgery to correct part of it. The plan is to fuse from T10 all the way down. The doc is one of the best in the area and I am confident in his abilities. I am concerned that this will bring the level of relief worth the risk of surgery. What can people tell me about their experiences?
  • caroline

    My struggle

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    Hi! I am 12 years old and got my brace August 2016. I have o wear it 12 hours a day. I will have to wear it for 2 more years.  Im really struggling with the responsibilities of the brace with my after school activities. I really want someone to talk to that is going through similar experiences. 
  • yogalove

    In the midst of recovery...

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    Hi everyone,It's been really great to read everyone's posts and realize that I have had a lot of similar anxiety and misgivings over my diagnosis and treatment of scoliosis over the years. In my experience, the diagnosis and treatment has often been confusing, with health professionals often giving contradictory information or just no answers at all. I was diagnosed with Idiopathic Scoliosis at...