Polycystic Kidney Disease (PKD) Support Group
Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.
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Anyone having lower GFR after Evenity shots started?Hoping my wildly fluctuating GFR is related to Evenity and not the... READ MORE
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Hello everyone!Finally some good news! I saw the new consultant yesterday and he was WONDERFUL! He actually listened to... READ MORE
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Bladder Cancer DiagnosisThe patient affected with bladder cancer may need to go through a few physical exams or... READ MORE
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Hellow,I had a kidney transplant on September 14, 2011, my kidneys weighed 20lbs each and they were removed at the same... READ MORE
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Hello.I just got diagnosed with PKD. My next appointment isn't until May. I'm in serious pain. I don't know what to do.... READ MORE
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Hey everyone,I joined this group several years ago when I was first diagnosed. Life went on, I got married, had kids,... READ MORE
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Hello I am Jas495 and have pkd stage 4. It goes up and down a lot. Not sure why it does this. When it goes to stage 5 I... READ MORE
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Hi! I started Jynarque 2 days ago. Day one went flawlessly. Had to pee every time I turned around. Other than that,... READ MORE
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Hi, my name is Alan. I currently have stage 3 PKD. And I only have one kidney. My kidney has failed 10% in 6 months.... READ MORE
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Are you or someone you know with ADPKD in the United States interested in participating in market research studies... READ MORE
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I'm 29 years old. Diagnosed a little while back and have been totally gutted ever since - like a shadow has been... READ MORE
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Hi, My name is Milly, and I'm not sure if this is against the website's terms of service (I apologise if it is, and... READ MORE
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Been awhile. This new format, well, I just tried to post and then it went so I don't know what happened to it.Back... READ MORE
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I posted about this before, but the post was erased. Did I click the wrong button?I was diagnosed with PKD in June... READ MORE
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Hi every body I am new. I am in PKD stage 4 I feel tried alot. I need to know how to get some energy?
