Polycystic Kidney Disease (PKD) Support Group

Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.

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Anyone in Canada taking Tolvaptan/Jinarc?

Posted by: mbregg

Posted: 10/19/2018

0

I recently saw my nephrologist, and he suggested now is a good time for me to start on Tolvaptan (I'm 40, in overall... READ MORE
Will dialysis at-home be beneficial for patients?

Posted by: dialysistreatment

Last Reply: Missladyj 10/19/2018

5

Benefits of home hemodialysis Home dialysis improves the quality of life of the patient.The patient can adopt a more... READ MORE
May or may not have PKD

Posted by: Ellinsonsquared

Posted: 10/14/2018

0

Hey everyone, I am a 34 year old who was diagnosed with PKD about 10 years after I found blood in my urine. A CT scan... READ MORE
Low back hip pain

Posted by: sammyg

Last Reply: Chewitt 10/07/2018

1

For the past few month I have been having terrible low back and hip pain. I’ve was diagnosed worth PkD about 3 years... READ MORE
Polycycstic Kidney Disease stage 4. Need energy

Posted by: Festus

Last Reply: Festus 06/19/2018

2

Hi every body I am new. I am in PKD stage 4 I feel tried alot. I need to know how to get some energy?
Greatly improved kidney function Chinese medicine

Posted by: MikeLyons

Last Reply: Bluespark 09/09/2018

5

My Kidney function (eGFR) was at 54% when I was diagnosed with PKD 20 months ago here in Japan. It went steadily down... READ MORE
Looking for friends & other young adults with PKD

Posted by: MillyT

Last Reply: MillyT 09/09/2018

9

Hi, My name is Milly, and I'm not sure if this is against the website's terms of service (I apologise if it is, and... READ MORE
Fatigue

Posted by: cliffl

Posted: 08/29/2018

0

had PKD. Started hemodialysis Jan. 2018. Had both kidneys removed April 2018. Feel very wiped out on dialysis... READ MORE
Angry at parent for passing on PKD

Posted by: Bellz

Last Reply: Henry9315 08/20/2018

7

I'm 29 years old. Diagnosed a little while back and have been totally gutted ever since - like a shadow has been... READ MORE
New Diagnosis.Mad at myself f/not seeing it sooner

Posted by: FFman

Last Reply: FFman 08/10/2018

2

Hello,I am a new member, diagnosed (kind of) a couple months ago and just need to vent. Until about a year ago, I... READ MORE
Sudden symptoms

Posted by: globetrotter86

Last Reply: Chewitt 08/06/2018

5

Hello everyone,I have been diagnosed with PKD when I was little and I've had to take high blood pressure medications... READ MORE
There is hope

Posted by: twrlfranklin

Last Reply: Chewitt 07/12/2018

1

I was diagnosed with PKD back in 2007. I have two sisters that also have been diagnosed and one possibly going on... READ MORE
Looking for Ruth (Ihavepkd)

Posted by: MsFur08

Last Reply: Chewitt 07/07/2018

12

Hey everyone,I joined this group several years ago when I was first diagnosed. Life went on, I got married, had kids,... READ MORE
hello everyone...new diagnosis and I'm troubled!

Posted by: MarkoJ

Last Reply: Chewitt 07/02/2018

6

I think I am pretty atypical for a ADPKD diagnosis. anyone else out there like me??I am 59 years old and was just... READ MORE
Pressure and large kidneys

Posted by: Pocketchange

Last Reply: Chewitt 07/02/2018

2

Does anyone else have large kidneys and pressure because of the kidneys? Any ideas or solutions to feel better. I have... READ MORE