Polycystic Kidney Disease (PKD) Support Group
Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.
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Hi, I am 59 years old and was diagnosed with PKD in 1982. Myself and 3 siblings got PKD from my Dad's side of the... READ MORE
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Hi. Does anybody else have the experience of an adult child who won’t discuss kidney failure decisions? As soon as... READ MORE
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I'm 29 years old. Diagnosed a little while back and have been totally gutted ever since - like a shadow has been... READ MORE
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I have PKD but my brother is clear. He has offered me one of his kidneys.What is the procedure to find out if he is a... READ MORE
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Does anyone with PKD have any experience of needing EPO injections? I've been told I will need these, though unlike... READ MORE
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How saving a writer's life helped my dialysis app go global http://www.bbc.co.uk/news/stories-42778554The app looks... READ MORE
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My 3 month old son was born with autosomal recessive polycystic kidney disease. He is doing okay at the moment. I try... READ MORE
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My Kidney function (eGFR) was at 54% when I was diagnosed with PKD 20 months ago here in Japan. It went steadily down... READ MORE
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My husband is 75 and was diagnosed with a massive cyst on his kidney 15 cms 3 years ago This has increasingly become... READ MORE
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Hello everyone. At the Docs office for broken rib and they told me I had PKD & PLD. I asked what that was because I've... READ MORE
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My last ultrasound showed that my largest cyst shrank from a 3.8cm to 2.4cm. It also showed that my largest kidney... READ MORE
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Hi there , I am 29 years old who inherited this disease from my dads' side of the family. Just recently I visited the... READ MORE
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I have a living donor offer, but has been diagnosed with a fatty liver. I know fatty livers are very common. Has... READ MORE
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Hi everyone. My nephrologist has just prescribed me Tolvaptan. I know there were positive results from the trial but... READ MORE
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Hi Guys - not sure if you have read this before, but have posted about this on this forum earlier.The Artifical Kidney... READ MORE
