Polycystic Kidney Disease (PKD) Support Group

Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.

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Looking for Ruth (Ihavepkd)

Posted by: MsFur08

Last Reply: MsFur08 10/23/2020

14

Hey everyone,I joined this group several years ago when I was first diagnosed. Life went on, I got married, had kids,... READ MORE
stage 4 PKD

Posted by: jas495

Last Reply: ihavepkd2 10/23/2020

3

Hello I am Jas495 and have pkd stage 4. It goes up and down a lot. Not sure why it does this. When it goes to stage 5 I... READ MORE
new to Jynarque

Posted by: majourja

Last Reply: jolo 09/06/2019

9

Hi! I started Jynarque 2 days ago. Day one went flawlessly. Had to pee every time I turned around. Other than that,... READ MORE
My stage 3 kidney disease

Posted by: Masterajax1989

Posted: 08/03/2019

0

Hi, my name is Alan. I currently have stage 3 PKD. And I only have one kidney. My kidney has failed 10% in 6 months.... READ MORE
Market Research for ADPKD Patients

Posted by: OLG

Posted: 04/16/2019

0

Are you or someone you know with ADPKD in the United States interested in participating in market research studies... READ MORE
Angry at parent for passing on PKD

Posted by: Bellz

Last Reply: Chewitt 03/30/2019

10

I'm 29 years old. Diagnosed a little while back and have been totally gutted ever since - like a shadow has been... READ MORE
Looking for friends & other young adults with PKD

Posted by: MillyT

Last Reply: puppy81 03/05/2019

10

Hi, My name is Milly, and I'm not sure if this is against the website's terms of service (I apologise if it is, and... READ MORE
Everything is so hard right now

Posted by: dealingwithit

Last Reply: Chewitt 01/17/2019

1

Been awhile. This new format, well, I just tried to post and then it went so I don't know what happened to it.Back... READ MORE
Chinese medicine

Posted by: MikeLyons

Posted: 01/03/2019

0

I posted about this before, but the post was erased. Did I click the wrong button?I was diagnosed with PKD in June... READ MORE
Polycycstic Kidney Disease stage 4. Need energy

Posted by: Festus

Last Reply: dealingwithit 11/29/2018

4

Hi every body I am new. I am in PKD stage 4 I feel tried alot. I need to know how to get some energy?
Supplements

Posted by: deleted_user

Last Reply: deleted_user 10/04/2008

4

Does anyone have any ideas on supplements? I'm taking Vitamin B, CoQ Enzyme 10, and Omega Fish Oil. I saw three... READ MORE
Anyone in Canada taking Tolvaptan/Jinarc?

Posted by: mbregg

Posted: 10/19/2018

0

I recently saw my nephrologist, and he suggested now is a good time for me to start on Tolvaptan (I'm 40, in overall... READ MORE
Will dialysis at-home be beneficial for patients?

Posted by: dialysistreatment

Last Reply: Missladyj 10/19/2018

5

Benefits of home hemodialysis Home dialysis improves the quality of life of the patient.The patient can adopt a more... READ MORE
May or may not have PKD

Posted by: Ellinsonsquared

Posted: 10/14/2018

0

Hey everyone, I am a 34 year old who was diagnosed with PKD about 10 years after I found blood in my urine. A CT scan... READ MORE
Low back hip pain

Posted by: sammyg

Last Reply: Chewitt 10/07/2018

1

For the past few month I have been having terrible low back and hip pain. I’ve was diagnosed worth PkD about 3 years... READ MORE