I joined this group several years ago when I was first diagnosed. Life went on, I got married, had kids, etc. Over time, I became less active on here as other life circumstances took precendent. Anyway, I can see the forum is vastly different than it was back then. I'm looking for someone who used to be on here, I can tell she's still a member, but don't see any recent activity. So, if anyone knows any way I could maybe reach Ruth (Ihavepkd), please let me know.
My husband is 75 and was diagnosed with a massive cyst on his kidney 15 cms 3 years ago This has increasingly become painful and his specialist agreed to do something about it First suggestion was to drain it but noone was prepared to do it as it was too big so therefore dangerous Next option removal of cyst plus kidney After numerous attempts to find out what is happening with no reply he...
Hello everyone. At the Docs office for broken rib and they told me I had PKD & PLD. I asked what that was because I've never heard of it. Prior to that I was at the hospital for what I thought was appendicitis, which embarrassingly turned out to be constipation:/. At checkout the nurse told me they found 2 tiny cysts on my liver. He asked me if I drank a lot and I said yes because... I do. Or at...