Looking for Ruth (Ihavepkd)
I joined this group several years ago when I was first diagnosed. Life went on, I got married, had kids, etc. Over time, I became less active on here as other life circumstances took precendent. Anyway, I can see the forum is vastly different than it was back then. I'm looking for someone who used to be on here, I can tell she's still a member, but don't see any recent activity. So, if anyone knows any way I could maybe reach Ruth (Ihavepkd), please let me know.
Hello everyone! I'm new here and don't know exactly how these posts work, but I'm here to reach out for advice...I do not have PKD but my boyfriend was diagnosed months ago with "the worst possible case" of this disease...he's been sick for well over a year before he was diagnosed. for all of you who have it..I'm sure you can all sympathize with him. He's 29 years old. His father, aunt, and uncle...
Hi all,I wrote here about 6 months ago...i was very anxious and scared , diagnosed with pkd accidently (no symptoms)... my father was a very complicated case , died 2 years ago in 3rd transplant surgery(!). He had very big kidneys and very high blood pressure from young age.I feel better now mentally and Im optimistic.I'm 28.5 recently did an mri , my right kidney looks better than the left...
Has anyone tried supplements like L-argenine, NAC or CoQ10? I know they all help bp but not sure of thier impact on PKD?
Hi there , I am 29 years old who inherited this disease from my dads' side of the family. Just recently I visited the neuro for a twitch I was having, and although he ruled the twitch out as a minor event, He asked me if I have ever screened myself for an aneurysm?Well I have not, no-one in my family has a history and my dad is 58 years old, with one transplant. Now that he has told me about...