I joined this group several years ago when I was first diagnosed. Life went on, I got married, had kids, etc. Over time, I became less active on here as other life circumstances took precendent. Anyway, I can see the forum is vastly different than it was back then. I'm looking for someone who used to be on here, I can tell she's still a member, but don't see any recent activity. So, if anyone knows any way I could maybe reach Ruth (Ihavepkd), please let me know.
Hi everyone, I just stumbled across this support forum. I was diagnosed with PKD when I was 18 years old, and I'm now pregnant for the very first time at 19 years old. I have read that woman who concieve when they are younger have less complicated pregnancies and deliveries, can anyone confirm this? My kidney functions have been completely normal since I left the hospital after I was diagnosed (i...
I have PKD but my brother is clear. He has offered me one of his kidneys.What is the procedure to find out if he is a compatible donor? Do we need to be tested at the same time in the same hospital? (As I wrote in this forum about a month ago, Chinese medicine seems to be working for me. I'm hoping that I'll never need a transplant, but it doesn't hurt to get tested, I hope!)