I'm 29 years old. Diagnosed a little while back and have been totally gutted ever since - like a shadow has been cast over my entire life.
Most of all, I'm incredibly angry and resentful towards the parent who knew they had this disease and suffered its effects from a young age, watched their own parent suffer from the disease, and consciously made the decision take the 50% risk of inflicting an incurable, untreatable, painful, disfiguring, life-threatening genetic disease on their own children in order to fill a personal void. I never understood or agreed with my parent's logic in this area, and now that I'm suffering with this disease, I am utterly repulsed by their decision. And then, of course, I feel guilty for feeling that way. I still love my parent and would never tell them any of this, but I've been holding it in forever and just needed to tell someone.
I sincerely apologize if this offends anyone. I understand that not everybody thinks about this the same way I do, and I respect that. I'm just struggling so much and hurting so badly, and needed to tell somebody how I felt. Has anybody experienced similar feelings, or does anybody have any advice on how to handle the psychological aspect of the disease?
Thank you all.
Been awhile. This new format, well, I just tried to post and then it went so I don't know what happened to it.Back into the dark as I call it. I've been doing so good these last four years with the PKD. Unfortunately hit my head on my cupboard door, got rear ended, flew with permission of my doctor and came back drooling, couldn't talk, couldn't draw a rectangle and other objects try as I...
Hi every body I am new. I am in PKD stage 4 I feel tried alot. I need to know how to get some energy?