Narcolepsy Support Group

A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.

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  • deleted_user


    Has anyone else on here also been diagnosed with fibromyalgia?
  • ginnyhoolat

    Rambling introduction

    i was diagnosed with narcolepsy and cataplexy 10 years ago but had figured this out at least 10 years before that.  It was the increase in the symptoms of cataplexy that prompted the diagnosis.  Venlafaxine is my wonder drug,could not function without it.  Before medication I barely spoke and walked around with an iPod so I didn't have to interact with anybody as it is other people who trigger...
  • ObserveMom


    Hello, my son was diagnosed with N w/ C at the age of 14. He is now 18. He has been off and on sick his whole life. From the outside looking in my son seems to tell me he doesnt feel well and their are days he cant even get up. Nuvigil is not helping. Never has. He was on xyrem when he was younger and we seen positive results, but was taken off of it after his "days" seemed regulated. He is...
  • Jonv

    Narcoleptic dreaming

    Soo guys, i've been a narcoleptic ever since I was 7 and got it from a head injury on the bus. Just recently though, i'd say about 3 years ago i've been able to remember sooo many dreams, last time I counted(about 1-2 months ago) I remembered 80 dreams from just 20 mins of thinking. With all the dreams i've had since then I'd say it's around 120(from just thinking about this year). Currently i'm...
  • vervaekeh


    Anyone from Ontario, Canada on this forum?
  • SMM04

    Armodafinil & Adderall

    Frustrated! Playing around with the dosages but still so tired and falling asleep. Adderall has no affect on me at all. Any recommendations to bring back to my doctor? 
  • lmthom95

    New member

    Newly diagnosed with Narcolepsy with Cataplexy. 21 year old female from Canberra, Australia. Having a lot of trouble with mood and staying positive with all that is changing in my life. Would love to hear from others of how they get through this and how they explain what their going through to those that don't understand. I have lost my independence as i can no longer drive and cannot get through...
  • NarcoKelly

    Newly diagnosed

    i was diagnosed with narcolepsy and cataplexy this past month. I was prescribed modifinil from my family doctor until the specialist did a series of tests to correctly diagnose me. They only treat narcolepsy for 5 out of 7 days leaving me to completely crash like I'm coming down from a heavy drug for 2. I am a mother, full time student and work full time.. I don't want to be on something so bad...
  • amack0601


    How many of you out there have almost or have fallen asleep at the wheel while driving?my sleep at night is a bit all over the place and I have to get a good nights sleep to go on a long drive, unfortunately I am still feeling drowsy at the wheel and I actually get a headache that I almost fall asleep at the wheel. My doctor had to ban me from long distance drives when I was pregnant as I was...
  • arfie

    Roll Call

    If my ifs are in alignment, there have been 3 newcomers here in a single week. I've been lurking in this forum long enough to believe that might even be unprecedented here. Maybe. Haven't been enthusiastic in my lurking to have kept records, but I thought I would re-introduce myself with hopes that others might introduce themselves, as well.I have been attempting to find on-going dialog since...
  • teresashinn

    Anyone in the UK

    I would love to hear from anyone who has narcolepsy and lives in the UK.
  • deadtired


    hi I'm new and just officially diagnosed last week. I have narcolepsy without cateplexia. I have a terrible time explaining what narcolepsy is like to my family and I therefore have very little support. I'm 48 with 2 daughters 9 & 11. We have live with my boyfriend now for 2 years. I have fought my symptoms for so long I have no idea how to ask for help. I am ashamed that I even need help because...
  • TampaMarty

    Dealing with Possible Narcolepsy

    I had my most recent visit to Sleep specialist today. The EDS is not getting any better even with 6+ hours sleep w/bipap device & Nuvigil 250mg...after waking up @ around 9 am by Noon I'm starting to get sleepy & by 2 pm I'm falling asleep watching TV for upwards 30 mins, during conversations with family & past instances of nodding off at stoplights even a car wash. But somehow my daytime sleep...
  • hiddenshadow

    Narcolepsy or Idiopathic Hypersomnia?

    I was diagnosed 2 years ago with Idiopathic Hypersomnia, but I have since felt like it was the wrong diagnosis. Like hypersomnia, I am always very tired. But I also have hallucinations some times at night while falling asleep or waking up. I also have night terrors, and sleepwalk at times. During the day I NEED to take 3 or so 10 minute naps or I find it very hard to stay awake. Can anyone with...
  • SleepyCourtney

    Insurance won't cover modifinal

     I experience sleep attacks and cataplexy, and meet all diagnostic criteria for narcolepsy except for early-onset REM (which was absent on my MSLT).My doctor nonetheless stated that while he believes I have narcolepsy, he was required to write idiopathic  hypersomnia as my official diagnosis, due to the REM issue.  He explained that due to the fact I take an anti-depressant  (Zoloft), my REM...