Narcolepsy Support Group

A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.

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  • AndrewLondonUk

    Flu Vaccine

    Hi,In 2009 I had a seasonal flu jab for the first time. Shortly after I began to experience cataplexy, later the signs of narcolepsy became evident.I keep reading about the pandemic vaccination and it's role in new cases of narcolepsy. Is it just a huge coincidence that my narcolepsy began after my jab or is there a link nobody is reporting on?Advice would be appreciated.ThanksAndrew
  • alexisdanielle

    Just wish people could understand sometimes

    I was diagnosed about 2 years ago with narcolepsy without cataplexy. I have severe EDS, takes me less than 3 minutes to hit R.E.M. once I'm asleep, and I never feel refreshed in the mornings and have an extremely hard time being able to wake up and get out of bed (rather just roll over and go back to sleep. Pretty sure I'm a Type 1 even without cataplexy).As far as I know, I have had it since I...
  • spanieldad

    Advice please

    Hi allIm a 53 year old man who has had Narcolepsy with cataplexy as long as i can remember, I have never had a diagnosis as im to worried about loosing my job etc, I have Sleep paralysis, Hypnagogic hallucinations, cataplexy, automatic behaviour and sleep attacks, my short memory is appaling. I sleep  12 hours a night if i can then it's a battle to stay awake all-day, my question is can...
  • deadtired


    hi I'm new and just officially diagnosed last week. I have narcolepsy without cateplexia. I have a terrible time explaining what narcolepsy is like to my family and I therefore have very little support. I'm 48 with 2 daughters 9 & 11. We have live with my boyfriend now for 2 years. I have fought my symptoms for so long I have no idea how to ask for help. I am ashamed that I even need help because...
  • SMM04

    Armodafinil & Adderall

    Frustrated! Playing around with the dosages but still so tired and falling asleep. Adderall has no affect on me at all. Any recommendations to bring back to my doctor? 
  • sleepygirl

    Narcolepsy + Memory Loss?

    I am a 23 year old female dx narcolepsy without cataplexy. I have had trouble with my short term memory for as long as I can remember (ha-ha). As my narcolepsy has gotten worse, so have my memory problems. I forget entire events and conversations within hours of having them. I'm always losing things, despite having a place for everything, I still manage to set things down and totally lose...
  • sleepygirl

    Introducing myself..

    Well hello! I'm a 23 year old cis female recently diagnosed with narcolepsy, though it's something I've been struggling with since middle school (doctors tend not to listen to kids so even though I tried to get help way back then, nothing came from it). Personally, I find sleep attacks inconvenient and sometimes embarrassing, but they're the least of my concerns, symptom-wise. I get horrible,...
  • arfie

    Roll Call

    If my ifs are in alignment, there have been 3 newcomers here in a single week. I've been lurking in this forum long enough to believe that might even be unprecedented here. Maybe. Haven't been enthusiastic in my lurking to have kept records, but I thought I would re-introduce myself with hopes that others might introduce themselves, as well.I have been attempting to find on-going dialog since...
  • deleted_user


    Has anyone else on here also been diagnosed with fibromyalgia?
  • ginnyhoolat

    Rambling introduction

    i was diagnosed with narcolepsy and cataplexy 10 years ago but had figured this out at least 10 years before that.  It was the increase in the symptoms of cataplexy that prompted the diagnosis.  Venlafaxine is my wonder drug,could not function without it.  Before medication I barely spoke and walked around with an iPod so I didn't have to interact with anybody as it is other people who trigger...
  • ObserveMom


    Hello, my son was diagnosed with N w/ C at the age of 14. He is now 18. He has been off and on sick his whole life. From the outside looking in my son seems to tell me he doesnt feel well and their are days he cant even get up. Nuvigil is not helping. Never has. He was on xyrem when he was younger and we seen positive results, but was taken off of it after his "days" seemed regulated. He is...
  • Jonv

    Narcoleptic dreaming

    Soo guys, i've been a narcoleptic ever since I was 7 and got it from a head injury on the bus. Just recently though, i'd say about 3 years ago i've been able to remember sooo many dreams, last time I counted(about 1-2 months ago) I remembered 80 dreams from just 20 mins of thinking. With all the dreams i've had since then I'd say it's around 120(from just thinking about this year). Currently i'm...
  • vervaekeh


    Anyone from Ontario, Canada on this forum?
  • lmthom95

    New member

    Newly diagnosed with Narcolepsy with Cataplexy. 21 year old female from Canberra, Australia. Having a lot of trouble with mood and staying positive with all that is changing in my life. Would love to hear from others of how they get through this and how they explain what their going through to those that don't understand. I have lost my independence as i can no longer drive and cannot get through...
  • NarcoKelly

    Newly diagnosed

    i was diagnosed with narcolepsy and cataplexy this past month. I was prescribed modifinil from my family doctor until the specialist did a series of tests to correctly diagnose me. They only treat narcolepsy for 5 out of 7 days leaving me to completely crash like I'm coming down from a heavy drug for 2. I am a mother, full time student and work full time.. I don't want to be on something so bad...