Narcolepsy Support Group
A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.
Hello, my name is Sharon and I have narcolepsy. I am trying to figure out if forgetfullness and difficulty with communication affects other peolpe with narcolepsy. My husband tells me I am terrible with communication.
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My day...today...misplaced my debit card...didn't realize it until I got to the register after shopping to a full cart. Used a different debit card and pulled apart everything looking for missing debit card before I left parking lot. Got home, dropped keys. So now I have a missing debit card, missing keys. A full cartload to unload and put away. I got everything put away.Dumped purse for a...
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I don't really know how to label this but I having a rough week and I can't say it's one thing.... I have a lot on my plate which is nothing new and I try to cope in many positive ways and do but I still have my moments.My kids more so my daughters talk to me about everything which I know it's cause of comfort and we are close.... however I really struggle with the venting about their dad which...
The narcoleptics in my own family tree have serious memory and communication handicaps, but I feel those problems as more anxiety/PTSD related than narcolepsy related. Proof unavailable, one way or the other. Just a feeling.
It's an absolute booger bear how often symptoms from one condition bleed over into all natural side effects. It can somewhere between difficult and impossible to know where one condition leaves off and another begins.
I was diagnosed in 2002 with Narcolepsy and cataplexy. I have tried numerous types of medication and now realise that Modofinil which I am currently taking causes memory loss. I had taken it for 10 years and was upto 8 x 100mg pills a day at one time. I was then introduced to Wakix which apart from the massive weight gain and hot flushes (nothing like menopause more like sunburn all over) made me feel more like myself than anything and my memory started coming back very odd. Unfortunately I moved back to England (from France) and Wakix is not available in this country so I am back in modofinil...however my tolerance level reduced and am currently on 4x100gm a day at the moment. I am back to forgetting everything short and long term. It's such a pain.
Fellow narco Jacki