Narcolepsy Support Group
A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.
Hello, my name is Sharon and I have narcolepsy. I am trying to figure out if forgetfullness and difficulty with communication affects other peolpe with narcolepsy. My husband tells me I am terrible with communication.
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Sometimes, I think I have ODD. I can be oppositional. It seems that the only times that I feel like cleaning are when I should be doing something else or I have to go somewhere. Well, not everytime but most of the time. Yesterday, I was supposed to be doing online training for work but instead, I decided to work on my kitchen table. Most of the time, I don't know where to start and give...
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I have a possible new diagnosis to discuss with my therapist tomorrow. It might be the answer to a question that I have had since I was 19. It's called Rejection Sensitivity Dysphoria (RSD). It happens to a large percentage of people with ADHD, which I have. Actually, I have been watching videos about ADD/ADHD lately. I remember my Mom telling me that she watched a show on ADD and she...
The narcoleptics in my own family tree have serious memory and communication handicaps, but I feel those problems as more anxiety/PTSD related than narcolepsy related. Proof unavailable, one way or the other. Just a feeling.
It's an absolute booger bear how often symptoms from one condition bleed over into all natural side effects. It can somewhere between difficult and impossible to know where one condition leaves off and another begins.
I was diagnosed in 2002 with Narcolepsy and cataplexy. I have tried numerous types of medication and now realise that Modofinil which I am currently taking causes memory loss. I had taken it for 10 years and was upto 8 x 100mg pills a day at one time. I was then introduced to Wakix which apart from the massive weight gain and hot flushes (nothing like menopause more like sunburn all over) made me feel more like myself than anything and my memory started coming back very odd. Unfortunately I moved back to England (from France) and Wakix is not available in this country so I am back in modofinil...however my tolerance level reduced and am currently on 4x100gm a day at the moment. I am back to forgetting everything short and long term. It's such a pain.
Fellow narco Jacki