Hidradenitis Suppurativa Support Group

Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation, culminating in drainage, often leaving open wounds that will not heal.

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  • angelusx

    Tell Us your story

    Tell Us your story: how old were you when this malediction begun to manifest itself on your body? How did you cope, not only with the physical aspect of this condition, but emotionally? The methods you've employed in your attempt to deal with this horrible disease? Doctors? Treatments? All of it. I'm interested in your story. Thank you.
  • Hello all i am new to this group but so happy to have found it i never knew there was a support group for HS.i have been suffering with this for more than 30 years now i have had hundreds of not only office visits to the doctor but numerous ER visits as well only to return again and again.i was basically forced to stop working because i would have a breakout @ least once every two weeks which the...
  • Felkbodymd3

    Hi I'm new!!

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    Hi, I'm Amanda Davis, I was diagnosed with HS back in 2006-2007. I have under went pain and suffering, and surgeries and still here 2016 suffering from the same!! So if anyone can say or give advice it would be me but there's none to give. I have tried everything under the sun. So I am up for any new things or research ppl find please.
  • Hello I am 23 years old and I have had hidradenitis suppurativa for 10+ years. I have tried several conservative medical treatments, such as incision and drainage, topical antibiotics, oral antibiotics, and weight loss. None of these medical treatments have helped the problem. My condition is very localized, it is about 2cmX6cm in each of my armpits and I have a single area under my right breast....
  • Freespirit

    24 hour nightmare

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    I suffered bad yesterday due to my pain I felt so depressed couldn't get anything done ibuprofen 800 has worked for me before but yesterday I took 1000mg and was still in pain does anyone have recommended pain medication? The good news is for about 2 months I've been using hibiclens soap and tumeric power mixture 2-3 times a day In the shower and have seen great improvement, before when I had a...
  • hopingforacure

    Help!!!

    My first experience with HS happened about a month ago, I went to the doctor she gave me antibiotics and sent me on my way. She said that I had MRSA, and while I was shocked and horrified, and went through all of the proper precautions for anyone with mrsa (I also ended up going to another doctor for a second opinion, and they told me to get hibiclense body wash :-/ ). So the antibiotics...
  • Freespirit

    Hello

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    I literally thought I was one of few people who suffered from this terrible skin condition , and cryed reading some of your stories because I can totally relate I'm 23 years old and it sure has been a rough ride It all started around the time I started menstruation about 12 I would get a few here and there under my arms , it progressed to my thighs I seen mutiple doctors who prescribed me...
  • Melanieann

    Advice

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    im 16 years old and I was diagnosed last year with HS. I was wondering since I'm 16 and a female. What are some ways to keep my spots from breaking out so bad. Are there any home remedies? Any treatments? Surgeries? What should I do? Because it's too the point I'm not feeling pretty anymore, getting made fun of. Having guys and some girls be jerks to me. I just need some help.
  • Many apologies, I may be misadvising people on the subject of SCV (small colony variant) microbes as the likeliest cause of recurrence of HS following improvements caused by antibiotics. I'm still not entirely sure, it's a pretty complicated subject, but I thought I might owe people a warning.One place where I may have gone wrong is that I've seen SCVs associated with long courses of antibiotics...
  • chronic99

    My Trip to the IDS :-(

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    After waiting 3 months to see my old regular doctor (I'd gotten a great referral for my pilonidal cyst surgery) to see if I could get some decent bacteriological work done or get a referral to an infectious disease specialist, I got a prompt referral to the specialist who I saw today. They asked me how much I know about HS and when I asked if they were familiar with the work done at the Pasteur...
  • Hi, my name is So┼ła and I wuold like to know if there is someone with some tips for succesful treatment of HS. I am also interested in alternative medicine (homeopathy , accupuncture...) do you have experience??? (sorry fo my english, i am not native speaker)
  • Hi everyone, I'm new here and I'm really scared, anxious, and freaking out. I have had bumps on my inner thighs for a long time (maybe around age 14) and I'm 23 now. I was always pretty much in denial and was too scared to go to a doctor about it, so I blocked it out of my mind and lived pretty normally. However, I'm 23 now, never been in a relationship because I'm too embarrassed, and it's...
  • Odesuai

    Learning about HS...

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    Hello everyone, I'm 19 yrs old and Ive had HS since I was roughly 10yrs old. I was recently diagnosed in an ER bcus i was in so much pain. Originally I had been to multiple doctors and no one gave me a concrete answer. So when I was 15 I decided I didn't want to visit anymore doctors as I do not enjoy taking medication only for my flare ups to come back worse. I've basically taken care of them...
  • I suffered with HS for 5 years now. I honestly thought I was the only one who had this and I thought I was dying. I never knew what I had until my doctor finally told me, 2 years ago. I don't treat them, I cover them up with band aids. I spend hundreds of dollars every month by just buying band aids so I won't have to go through the pain or embarrassment. The band aids are basically replacement...
  • MsPrincess213

    Surgery

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    I am having surgery on both armpits in August. What do I need to expect after surgery? I am a Doctoral student and having a 2 year old. So, do I need to take a break from school and find help with my daughter?