Hidradenitis Suppurativa Support Group

Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation, culminating in drainage, often leaving open wounds that will not heal.

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  • chronic99

    My Trip to the IDS :-(

    4
    After waiting 3 months to see my old regular doctor (I'd gotten a great referral for my pilonidal cyst surgery) to see if I could get some decent bacteriological work done or get a referral to an infectious disease specialist, I got a prompt referral to the specialist who I saw today. They asked me how much I know about HS and when I asked if they were familiar with the work done at the Pasteur...
  • Freespirit

    24 hour nightmare

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    I suffered bad yesterday due to my pain I felt so depressed couldn't get anything done ibuprofen 800 has worked for me before but yesterday I took 1000mg and was still in pain does anyone have recommended pain medication? The good news is for about 2 months I've been using hibiclens soap and tumeric power mixture 2-3 times a day In the shower and have seen great improvement, before when I had a...
  • hopingforacure

    Help!!!

    6
    My first experience with HS happened about a month ago, I went to the doctor she gave me antibiotics and sent me on my way. She said that I had MRSA, and while I was shocked and horrified, and went through all of the proper precautions for anyone with mrsa (I also ended up going to another doctor for a second opinion, and they told me to get hibiclense body wash :-/ ). So the antibiotics...
  • Hi, my name is So┼ła and I wuold like to know if there is someone with some tips for succesful treatment of HS. I am also interested in alternative medicine (homeopathy , accupuncture...) do you have experience??? (sorry fo my english, i am not native speaker)
  • Felkbodymd3

    Hi I'm new!!

    6
    Hi, I'm Amanda Davis, I was diagnosed with HS back in 2006-2007. I have under went pain and suffering, and surgeries and still here 2016 suffering from the same!! So if anyone can say or give advice it would be me but there's none to give. I have tried everything under the sun. So I am up for any new things or research ppl find please.
  • Hi everyone, I'm new here and I'm really scared, anxious, and freaking out. I have had bumps on my inner thighs for a long time (maybe around age 14) and I'm 23 now. I was always pretty much in denial and was too scared to go to a doctor about it, so I blocked it out of my mind and lived pretty normally. However, I'm 23 now, never been in a relationship because I'm too embarrassed, and it's...
  • Odesuai

    Learning about HS...

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    Hello everyone, I'm 19 yrs old and Ive had HS since I was roughly 10yrs old. I was recently diagnosed in an ER bcus i was in so much pain. Originally I had been to multiple doctors and no one gave me a concrete answer. So when I was 15 I decided I didn't want to visit anymore doctors as I do not enjoy taking medication only for my flare ups to come back worse. I've basically taken care of them...
  • Hello all i am new to this group but so happy to have found it i never knew there was a support group for HS.i have been suffering with this for more than 30 years now i have had hundreds of not only office visits to the doctor but numerous ER visits as well only to return again and again.i was basically forced to stop working because i would have a breakout @ least once every two weeks which the...
  • I suffered with HS for 5 years now. I honestly thought I was the only one who had this and I thought I was dying. I never knew what I had until my doctor finally told me, 2 years ago. I don't treat them, I cover them up with band aids. I spend hundreds of dollars every month by just buying band aids so I won't have to go through the pain or embarrassment. The band aids are basically replacement...
  • MsPrincess213

    Surgery

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    I am having surgery on both armpits in August. What do I need to expect after surgery? I am a Doctoral student and having a 2 year old. So, do I need to take a break from school and find help with my daughter?
  • Hi all! I am having surgery in my armpit this week (with no grafts). Has anyone had this surgery and can tell me what to expect? How long was recovery? How painful was it afterwards? Thanks for any help you can offer!
  • Freespirit

    Hello

    0
    I literally thought I was one of few people who suffered from this terrible skin condition , and cryed reading some of your stories because I can totally relate I'm 23 years old and it sure has been a rough ride It all started around the time I started menstruation about 12 I would get a few here and there under my arms , it progressed to my thighs I seen mutiple doctors who prescribed me...
  • dtesterman

    Botox

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    My daughter was diagnosed with HP in 2015, after a breakout in her armpit. Since then she has had three more breakouts which required medical attention.Her doctor has suggested using Botox to treat her HS, and she was approved by insurance. Has anyone tried using Botox? If yes, did it work to slow down the breakouts? Were there any side effects?I have looked through several of the Post within...
  • re1993

    Birth Control & HS

    4
    Ok so I just had a thought. I got the Nexplanon arm implant birth control and it has made my face acne go crazy. My HS is also worse than ever right now. I am starting to wonder if the birth control could make HS worse? Has anyone else had any experiences with birth control & HS?
  • angelusx

    Tell Us your story

    9
    Tell Us your story: how old were you when this malediction begun to manifest itself on your body? How did you cope, not only with the physical aspect of this condition, but emotionally? The methods you've employed in your attempt to deal with this horrible disease? Doctors? Treatments? All of it. I'm interested in your story. Thank you.