Hidradenitis Suppurativa Support Group

Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation, culminating in drainage, often leaving open wounds that will not heal.

0 Online
  • Nurse13

    Another problem

    2
    Hi guys I'm new at this. HS isn't my first autoimmune disorder, it's actually my 3rd. I was diagnosed with ulcerative colitis my senior year of high school and then arthritis my freshman year of college. I am now in my 4th year of college about to finish my nursing degree in December and now I have this to deal with and I'm tried, angry, upset and depressed. I have been dealing with this for over...
  • Sarahrm94

    Just found out I have HS

    6
    I've had painful cysts for as long as I can remember that would develop around my inner thighs and under my armpit area. However, I had gotten one under my breast and I currently have one that came up under my belly. I would develop about 2-4 a month that last a week tops, usually 3-4 days. My doctor would always tell me everyone's different and made me feel horrible and like there was really no...
  • JasminTyree23

    New To Group

    1
    hi,my name is jasmin and I'm new to this group,I have HS and been dealing with it since I've been 15 years old.I've been through 2 surgeries and I have yet to have any relief from pain or boils or anything pertaining to this disease.I am now suffering with a breakout today that's been hurting me for almost 4 days now.I've tried a bunch of home remedies and medications for pain relief and still...
  • bicycler

    Any other things that just look like HS?

    1
    Hey everyone!In April 2016. I bought a bike and went rather nuts with it, riding for 30km daily (after I haven't touched a bike in 15 years). Then in Oct 2016 I found a huge bump between my legs. Thought I was dying. I wasn't but my doctor didn't know what it was, gave me antibiotics and nothing happened. Then I managed to "pull" the bump out by using apple vinegar and it drained, but left a...
  • JoshM

    any help with odor

    7
    I use Dial antibacterial soap, but there are times I can't scrub hard enough to remove the odor. I know its from the infection itself, but That's not easy to explain to someone standing by you in the check out line. Anyone have an advice on body spray or deodorants that don't cause irriation that they have used? Baby powder helps but if it gets into an opening, back to the shower right away....
  • 0122

    Dermatologist/Laser Hair Removal Questions

    2
    Hi, for those of you that have tried laser hair removal. I have heard a lot of success stories now. I saw a dermatologist two weeks ago (it was not a positive experience, he shot down everything I said about HS). When I mentioned laser hair removal his response was "not related." I was actually hoping to get some of it covered by insurance as it would be for a health reason not an aesthetic...
  • Sterling

    Wound Care and Home Treatments

    6
    Good morning! My short history. It all started maybe 5 years ago under my armpits (one and then the other - initially I had just thought it was my bra irratating me - guess not) and then has since spread to my inner thigh area and under my stomach (a litte) and butt checks (a little) and under breast (a little). The absolute worst area though is inner thigh. It completely sucks. I went to see a...
  • HS_Survivor

    Zinc

    7
    Hello all, Recently I started taking a zinc supplement, to my suprise some of my lesions healed right away. This is suprising because the lesions have been open lesions for long period of time. The supplement is in no way stopping my outbreaks however even some healing is a plus. I have stage 3 HS, pretty sure if there was a stage 4 I would qualify. My outbreak even affects my scalp and previous...
  • tjt8712

    Biologics for treating HS

    1
    Hello,I recently joined this group and wanted to know what anyones' experiences have been using biologics for treating HS. I have been on weekly Humira injections since June of last year and up until the last two months the severity of my lesions had lessened and the flare ups had been reduced. Recently though I have experienced a sever ongoing flare up that is worse than any I have experienced...
  • stevethebear23

    We're In This Together

    2
    Setting: Laying on the futon in my spare bedroom, sobbing, with hot compresses under my arms. Why the spare bedroom? Because HS has caused a huge divide between my partner and I. I'm so uncomfortable, depressed, in pain, and crabby that I can't even stand myself. I can't look in the mirror, I'm horrified, how am I supposed to get into bed with my partner like this? HS is taking its toll lately....
  • Jerlenny

    Advice?

    2
    Hey all! I am 16 years old and was diagnosed with hidradenitis suppurativa. I've had it for about 7 years and lately it has been really hard and painful to deal with. I feel embarrassed about the condition and the scars. My dermatologist gave me doxycicline and I've been on it for about 2 months. It doesn't really help much and I have multiple bumps down there. I've been sad/ stressed. I don't...
  • curlysue200

    Not a good weekend

    1
    hey guys....didn't think I'd get to the point where I needed to type out what I'm feeling but it's been a bad weekend. Ive been keeping the sores under control by staying completely gluten free since last April. On Friday, I decided to treat myself to a TINY bowl of macaroni and cheese from Tim Hortons. I was out with my friends and there wasn't any gluten free options anyways. That damn bowl of...
  • Mufaris1

    Face to face

    Hello HS community !!Question, has anyone ever met/ been in the same room with a fellow HS sufferer?? I HAVEN'T! We're pretty much always alone:(I  think it would be so nice to actually meet people in person who share this! To be in a physical setting surrounded with people that get it for a change! I just think it could be good for the spirit to be in an environment of understanding as opposed...
  • stevethebear23

    Derm appointment finally scheduled!

    7
    I never thought setting up a dermatology appointment would take that much courage. I'm honestly terrified. Anyone have any tips to try to ease my mind about my first dermatology appointment? What to expect? How to get over feelings of embarrassment? What to say initially when I meet the doctor for thI first time? (((Ugh am I overthinking this?)))Also, I know it's a long shot. But I'm curious,...
  • aday2

    Autoimmune Paleo Diet and Zinc Improved condition

    3
    Hi everyone. I am currently 30 years old, and I had HS since I was 14. I started to search for a solution for HS (doctors, dermotalogist) since the age of 23. I have done the surgery, antibiotic ointments and pills, the soaps, the injections; which gave me limited and temporary results. I then read the book "The Hidden Plague: A Field Guide for Surving and Overcomming Hidradenitis Suppurativa" by...