Hidradenitis Suppurativa Support Group

Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation, culminating in drainage, often leaving open wounds that will not heal.

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  • Bmorefrank

    5 things I miss

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    I think about this daily so I'm gonna post about it and if anyone who wants to reply with 5 feel free. It's just 5 things at the top of my list I miss from when I was healthy. 1. Camping= use to love going camping but last time I went I got blood poison from bathing in stream.2. Hiking= loved just driving around, finding a trail or path and go for a long hike.3. Riding a bike= would ride for 20...
  • Sadmissy

    Happy Sunday

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    Sometimes I get all in my head about how life used to be it's Sunday and I don't have to work today so I am doing dishes surfing my tablet and I run across some new bam interviews I'm watching this one and it's just reminding me of when I was Carefree at least 15 years ago and I skateboarded all the time and I was a professional snowboarder  in Breckenridge Colorado..and how the videos that I...
  • Background Info: I have had HS for 3 years now. It started under my arms. I had the HS surgically removed and the sweat glands removed. Once the HS was removed from my under arms, it decided to travel to other places *if you know what I mean*. I have not consulted my surgeon about it because it is really embarrassing.My Main Point: One week, all the drinks that I had in my house was Cranberry...
  • erinhashs

    Hello others! Please read!

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    I have suffered with HS since I was 9 years old. I'm 18 now and I'm trying my best to live a normal life but HS drains all the life out of me... I have stage 3 -under both arms, in between my thighs, under my breast, my butt, around my groin, around my waist line, I even get them on my stomach occasionally as well as down the back of my legs. I'm in constant pain. My entire life all ive tried to...
  • Sadmissy

    Hi anyone else affected on face?

    I was just wondering if there was anyone out there that was diagnosed with this condition that had problems either on their face or neck. I have had a major problem right under my jawline and on my cheek and above my eyebrow I was just wondering if anyone else had this go on please respond.
  • mackaroo1999

    Itching + Clothing

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    Hi! My name's Mackey and I've been struggling with HS for the past couple years, only armpits, and just got diagnosed in August. I'm on clindomycin twice a day currently. The itching and burning has gotten SO bad over the last couple of days. Has anybody found anything that helps the itching in the short-term?Also, I'm having to get rid of most of my shirts because of this, and I would really...
  • Sadmissy

    Hey everyone

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    As I lay here in my bathtub soaking in Epsom salt drinking kava stress tea I think about how I don't really want to be on my phone I don't really want to go out I don't really want to do anything because when I start doing something The Blood starts rushing and then I feel pressure and throbbing and all of my ulcerations I'm reading some really good posts today and I'm sorry for not using any...
  • BluJay13

    Why

    im in so much pain right now. I have a "flare up" in my armpit. I don't know about anyone else but mine get as big as a grapefruit!!! I did more research and found out about prid I'm not too impressed with it, but today is day 4 and I put Prid on and boil ease with a heating pad. Trying to keep myself elevated from my the middle of my back up... This shit SUCKS!!! I can't live like this anymore. 
  • Sadmissy

    Low self esteem

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    I know for a fact that at the moment after dealing with this for the last 9 years I am sure my self-esteem is not where it should be I hide my scars well I consider myself a master makeup artist when I feel like doing it but lately I just need to vent and have this forum to meet other people who generally can't go meet people in person. I also look forward to hearing what works for people and...
  • Sunshine117

    Total newbie!

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    Hello! I mainly joined this sight because I have HS... but the worst part about it is I told my doctor what I had, not the other way around. I've had this for 4 years now and my doctor has given me medication apon medication to try and help these painful boils. I've been embarased to go to pool parties because I have several scars around/on my but and down my sides below my armpits... I've let...
  • Sadmissy

    Dark

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    I love having my house dark . I have a thing about being under flourecent lights that bother me. I also would like to add buying some cool most humidifiers are making a great difference in my anxiety and think it is helping my skin heal faster. I'm trying to use an ultrasonic vaporizer that u add oil to instead of candles because if they say toxins are bad in cigs and such imagine the stuff those...
  • Skin care is something that needs your most extreme consideration. In India, there are many great skin professionals who are outstanding for their skin treatments and experiences. India has a strong therapeutic foundation and medical services offices in metro cities like Bangalore, Mumbai, Delhi. If we talk about Delhi then you can find best skin specialist in Rajouri Garden, Green Park, Noida,...
  • Imissliving23

    Dating...

    How am I suppose to date again?? I'm 23 I've been dealing with this for about 8 years now and it's not getting better ya know. I haven't dated in years because of this condition which has made it's way to my butt. It's so embarrising and it makes me want to give up everyday I feel so alone at times. It's like nobody cares. I miss being intimate with someone, I miss having sex, I miss cuddling I...
  • BluJay13

    I thought I was the only one!!!

    I seriously thought I was the only one. No doctor could figure out what or why. I've had HS since I was about 10 years old, I'm 33 now and just found out a year and a half ago. This crap sucks. I'm sorry but I am glad I'm not alone
  • Jodhi

    Pls help me....

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    Hey friendsCould someone help me.... Is benzoyl peroxide really helps in treating HS... pls share your experiences