Hello all, I'm Jennifer from Southern California. I was diagnosed a few months ago by my primary doctor with EDS hyper- mobility. I have been suffering with chronic neck and back pain for over two years now. My problem is now that even with my diagnoses I am still left with the chronic pain. My doctor does not believe in narcotic pain medication, and has me on naproxen, flexeril (muscle relaxer), and gabopentin along with physical therapy. I haven't gotten no relief from my medication or physical therapy. I've seen my doctor three times since my diagnosis, and he's old and I believe becoming senile, because each time I see him he forgets why I'm in physical therapy, and asks me where my pain is and then makes me do the same tests over and over again and re diagnoses me with EDS hyper-mobility. The last time I went in he cracked my back and held one of his hands on my spine while cracking it and said my vertebrae was popping out as well as my spine is now curved. I've asked him to send me to a pain management specialist and even a rhuematoligist and he says they wouldn't be able to do anything for me and that I would just have to keep doing physical therapy until my pain is cured. My doctor has also not tested me for any of the other types of EDS and I'm concerned I might have POTS as well based on the symptoms. I keep hounding my doctor to send me to someone else, and he's agreed that if I find a specialist then he'd refer me, but that he won't do any research on my behalf. I've called more than a few doctors because I'm considering getting a new primary doctor that can better help me, but when I call them I'm told I have to switch doctors before they'll even answer if they've even heard of EDS. I'm wondering what type of doctors do EDS patients get their treatment from, and how do you find them?
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