Ehlers-Danlos Syndrome Support Group

Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary from mild to life-threatening. Common symptoms are unstable, flexible joints with a tendency to dislocate and subluxate, and elastic, fragile, soft skin that easily forms welts and scars.

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Kayla_Drake 01/01/2017

I'm actually pretty happy that its been about a year since I've been to the hospital for stitches. I'm always getting made fun of for my stretchy skin or my scars but it'd not easy living with EDS. I'm a fighter and I try to not let others bring me down because I'm different and if you have EDS too don't let people bring out down. Just rise to the top and make the best out of life.

Beautifully-Broken 08/15/2017

Hi Kayla,
This post inspires me. 15 is a rough age, and to have EDS and be 15, well, it's the shits! I'm 34 and didn't have the attitude you do at your age. I'm proud of you. Keep it up as best and as long as you can kiddo. <3

YouSeeus 09/27/2017

Kayla, we were really annoyed that idiots make fun of your stretchy skin, but we think your attitude is awesome! And just wanted to let you know that. :D

Bananoo 06/05/2018

I have just recently been diagnosed with EDS. I am 53 years old. I knew as a young child that I was not like the other kids. Everyone made fun of my because my skin was so translucent and I was covered in bruises. I was constantly severely spraining my ankles. I have made the best out of my life, and now even more so because I now know what I have!! Be strong and know that others are suffering like you and I am here for you.

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