Cleft Lip / Palate Support Group

Cleft is a congenital deformity caused by a failure in facial development during gestation. It can be treated with surgery shortly after birth with highly successful results. Cleft occurs in somewhere between one in 600 and one in 800 births. Cleft occurs in several severities and is divided in two major categories: cleft lip and cleft palate.

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  • NICUMommy25

    Frustrations

    2
    My twin sons were recently released from the NICU. One of them has cleft lip and palate. It was such a struggle to get him to eat and he had to stay longer than his brother as a result. I'm concerned that he has a negative assocation with taking the bottle. He also has bad acid reflux and I can only imagine how uncomfortable it is for him when he spits up. So when it comes to feeding him its such...
  • testtakers

    Just wanting to talk to someone like me

    4
    I have been struggling lately.  I want to pursue further reconstruction but have been having a hard time to find someone who will do it.   All the forums seem to be geared towards parents but that is not what I need.   I am dealing with this and, to be touch rude, I don't care about what they are going through.  I want someone who can at least relate.
  • Elvieflower

    Adult with cleft

    0
    My daughter had her cleft pallet repaired when she was 11 months old. She is now 2 years old. Are there any speech, behavioral, or physical issues she will most likely have in the future? As a teenager, as an adult?
  • mynameisnotlily

    Depressed

    2
    Well, guys, it's me again. Lately I've been like super depressed. I cut myself. A lot, even though I told myself I wouldn't do it again. Not just my wrists, too. My face. I'm tired of what I see in the mirror. I want to be a singer so badly, but I know this f***ing deformity is just gonna stop me. I'm ugly. I'm a creature. Please help.
  • pandora11

    Please help

    1
    I'm 32 weeks pregnant and I had a 4D scan on Sunday! It looks to me like he has a cleft lip but nothing was said! I can't sleep and I'm in such a state! I go back tomorrow for another but on my own so I can ask questions. I'm too scared to show anyone the pics from Sunday incase they see it too and mention it!!! I'm just so scared! 
  • outlaw708

    Adult with speech issues anyone relate to me?

    1
    Hi, was born with a cleft palate and lip. I had surgeries as kid, but life move on and I put it away when I probably should not have. Now I'm adult and have a short palate, I speak nasal it's basically taking down my life I know it's bad and being aware is really bad to. I have went and saw 2 cleft teams, the second has the approach of the speech bulb to cut air off. Anyone gone through anything...
  • Elvieflower

    Changing specialists

    1
     how difficult is it to Switch specialists and or cleft team?
  • deleted_user

    living with a cleft palate

    4
    Hi, my name is Matilda. I'm 20-years-old and I was born with an incomplete cleft palate. I had my first surgery when around 9 months old in Anchorage, AK where I was born. They decided to leave the cleft palate partially open for growth. It was about five years ago that I started a palatal repair and orthodontics process through Children's Hospital in Seattle. Having one surgery to expand my...
  • chrislawrence

    Embarassed

    7
    i am so sad to say this about my shallow self but to be truthful. I'm embarrassed by my  baby with cleft palate/lip/jaw. She looks like a creature. I'm having a hard time looking at her and won't take pics or let people see her. I'm ashamed I am struggling and think I'll always feel this way. I think my parents and family feel the same way. She'll be a freak all her life.i knowi'm terrible but...
  • miyi007

    Losing faith in true love

    0
    Being a woman in today's society is hard enough..however being a woman who has a cleft lip in todays society is far from challenging...I'm 33 and was born with unilateral cleft lip & palate. I would think that my life would be better by now after years of going to school and managing a normal life around mean and shallow kids one would think that it has prepared you for the real world...but truth...
  • badger

    I'm new here

    2
    Hey loves,I'm new to the daily strength forum but not new to living with bilateral CL/CP. Lately, I have been struggling to cope and feel beautiful. I find myself holding onto years of agonizing memories and anger from countless surgeries and bullying. After reading your posts, I was immediately comforted to know that I am not alone. Some of the posts are word-for-word my exact thoughts and...
  • DinaK

    Future mother to a future cleftie...

    1
    Hello everyone,First, I admire all of you for what you're going through and how good you take it.In three weeks I'm going to become a mother for the second time and am due with a little girl who has a unileteral cleft lip (Doctor's 99% sure the palate isn't involved).I'm so nervous, for her and for myself. I must ask, as selfish as it might sound: Are your daily life infected by the clefts? If...
  • mynameisnotlily

    Self-Concious

    3
    Hi, my name is Stella and I'm in middle school. I have a unilateral cleft lip and palate. I'm really self-concious about my looks and I'm worried that people will find me weird looking. I'm also worried that people will put my birth defect before my personality. I'm scared no guy will ever like me because I'm "too ugly." Do you guys have any tips for me so i can be less self- concious?
  • Z94

    Just need to get stuff off my mind

    1
    Hi I'm 22 yrs old was born with a cleft lip/ palate. My life has always been hard from the daily struggle to gain acceptance from parents to simply being different from everyone. I use to be able to keep my head held high with all my plans for the future but recently life has been really hard and my whole appearance has really been getting to me. Well I don't know what else to say this is my...
  • AmberIrenex3

    Conflicted

    0
    My lips have always looked a little different throughout my 17 year treatment for my bilateral cleft lip and palate. My upper lip has ALWAYS been extremely thinner than my lower lip. When I had my jaw surgery, the discrepancy between the two was minimized greatly however, my upper lip remained much thinner. When asked if I wanted to surgically change my upper lip, I declined. That decision is one...