camba
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- I rarely post but occasionally look. I cant see the new DS site without registering so dont really understand what is going on..So does this mean RA people that we all have to re register?
- I joined a FB health group. I have been taken off my methotrexate. We have state medical support but means I have to take the generic and I think it didnt suit me. Had very scary allergic reaction which my doctor has put down to the...
- Has anyone on here used these lights for scleroderma finger ulcers? If so how have you got on? What sort did you use - just the lights or pulsed/laser light (not sure of difference myself between pulsed and laser)
- Just read a post about being someone being sensitive to noise after RA and it made me wonder if my increasing inability to tolerate certain scents is part of RA or its meds?I have been having increasing trouble at events with perfume - mostly worn...
- I went (in pouring rain) to a growing vegetables at home group (oooby - out of our own backyard) I belong to yesterday. Because of the weather there were only a couple of us. The woman who hosted it didnt know about my RA and of course being...
- Want to compare how long various of us have been on steroids?So 1. How long have you been on steroids?2. Has it been continously?3. At what strength?4. Any negative consequences?For me seven and a half years almost continuously. Started at 40mg...
- Does anyone know how she is doing? Absent after being very active and I think was about to have surgery. I know it isnt a general discussion topic but she has been a frequent contributor and this site is about us sticking together and being...
- Who gets bursitis from their RA? Has anyone had an infected one? How big do they get?I have slowly growing RA damage and over the years a few nodules. About a month ago a golf ball sized bursa came up on my left elbow.I didnt worry as due at...
- I dont have scleroderma but my daughter does and is starting the infusions. Has anyone here had them and do they help? Does anyone know whether the full five days are necessary or are shorter treatments effective?
- Has anyone had kidney issues because of RA and/or RA drugs?
- I have just got off the phone with a nice woman from a singing group I am in. She was talking about an evening some months ago of which I have minimal memory. In fact when she started talking I thought I hadnt been there at all As she continued...
- I have had RA for six years. It has got significantly more problematic for the past six months and I am taking more methotrexate and prednisone. I have very limited drug options being on a free state system here and avara was a disaster when...
- I found an internet article on curcumin which is a high dose form, mainly although with other supplements in, of turmeric. I know turmeric is recommended to help with inflammation.The article which I cannot currently find again to put up a link,...
- This is not quite an RA topic except that very often, usually when I have completed a lengthy message to a friend on DS, the site seems to flicker and the whole thing disappears. Some of my DS friends say it happens to them.This is relevant to RA...
- Wondering what sort of things others do when sudden flares hit or when that feeling hits that "by tonight this is going to be unacceptable". Aside from emergency trips to dr (and if so what does the dr do) how do you manage?