Bluebonnet08

Activity

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  Hug

  Posted by: Bluebonnet08

  Posted: 04/15/2020

  Bluebonnet08 sent a hug to aussiedi

  Thank you for reaching out Diane. I sent a message.
• Chronic Fatigue Syndrome
  

  Discussion Comment

  Posted by: Bluebonnet08

  Posted: 09/09/2019

  Bluebonnet08 commented on the discussion New Research (2019 Symposium).

• Chronic Fatigue Syndrome
  

  New Research (2019 Symposium)

  Posted by: Bluebonnet08

  Last Reply: 2DanceAgain 09/18/2019

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  Hi Everyone- Hope you are hanging in there.  This disease can be so terrible :(  I just wanted to post some updates on the current research for ME/CFS.  For those that missed it, the 3rd symposium held by The Open Medicine Foundation was on Saturday.  I tried to watch online and am still going back to watch what I missed.  Videos are availabe on their facebook page and soon to be uploaded to youtube.  I would encourage everyone to join their facebook page and try to watch the videos if...

• Chronic Fatigue Syndrome
  

  ME/CFS Symposium (Available Online)

  Posted by: Bluebonnet08

  Posted: 06/28/2019

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  If anyone is near Stanford in California this would be an awesome symposium to attend.  The best and the brightest will be there for ME/CFS research.  The price is discounted for ME/CFS sufferers and caregivers.  It will also be live streamed and can be watched anywhere in the world!  It's on September 7.https://www.omf.ngo/community-symposium-3/

• Chronic Fatigue Syndrome
  

  Discussion Comment

  Posted by: Bluebonnet08

  Posted: 06/28/2019

  Bluebonnet08 commented on the discussion Has anyone been to Mayo Clinc in Minnesota for CFS.

• Chronic Fatigue Syndrome
  

  Discussion Comment

  Posted by: Bluebonnet08

  Posted: 06/25/2019

  Bluebonnet08 commented on the discussion How do I help my 16 year old with CFS?.

• Chronic Fatigue Syndrome
  

  Harvard & Stanford working on ME/CFS

  Posted by: Bluebonnet08

  Posted: 06/25/2019

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  Scientists from Harvard and Stanford are now working to solve and understand ME/CFS.  It's very exciting to see researchers working on this disease.  I think they are gaining some momentum.  https://www.omf.ngo/2019/06/24/me-cfs-harvard-collaboration-building-momentum/?utm_source=facebook&utm_medium=organic&fbclid=IwAR0y0SeAOpX18cjvZLz05hHenXXelx6hdcvgpTyTz8_4AdTQLNj9qxFm0kk

• Chronic Fatigue Syndrome
  

  Discussion Comment

  Posted by: Bluebonnet08

  Posted: 04/30/2019

  Bluebonnet08 commented on the discussion new device is 100% accurate in identifying CFS.

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  Hug

  Posted by: Bluebonnet08

  Posted: 02/20/2019

  Bluebonnet08 sent a hug to aussiedi

  Sent you a message! Hope you are doing okay.
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  Hug

  Posted by: Bluebonnet08

  Posted: 01/27/2019

  Bluebonnet08 sent a hug to aussiedi

  How are you?
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  Journal Comment

  Posted by: Bluebonnet08

  Posted: 01/20/2019

  Bluebonnet08 commented on aussiedi's journal I need you

• Chronic Fatigue Syndrome
  

  Poems of HOPE written by those with ME/CFS

  Posted by: Bluebonnet08

  Posted: 01/20/2019

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  These are absolutely beautiful poems/art by ME/CFS sufferers and caregivers. Worth a read.  You can vote on your favorites.  They are making the top winners into a video.  https://www.omf.ngo/poetry-submission/

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  Hug

  Posted by: Bluebonnet08

  Posted: 01/20/2019

  Bluebonnet08 sent a hug to aussiedi

  Just sent you a message :)
• Chronic Fatigue Syndrome
  

  Discussion Comment

  Posted by: Bluebonnet08

  Posted: 01/20/2019

  Bluebonnet08 commented on the discussion Struggling Terribly.

• Chronic Fatigue Syndrome
  

  Discussion Like

  Posted by: Bluebonnet08

  Posted: 01/20/2019

  Bluebonnet08 liked the discussion Struggling Terribly.

• Chronic Fatigue Syndrome
  

  Discussion Comment

  Posted by: Bluebonnet08

  Posted: 01/03/2019

  Bluebonnet08 commented on the discussion New and looking for advice.

• Chronic Fatigue Syndrome
  

  New Research- Close to finding a biomarker & test!

  Posted by: Bluebonnet08

  Last Reply: jeldredge 04/29/2019

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  This is what I received in my email from The Open Medicine Foundation - a new research study has just been published on Red Blood Cells and ME/CFS. I have attached the synopsis below. It is VERY exciting! It looks like they may have a biomarker/diagnostic test soon! Study:https://content.iospress.com/articles/clinical-hemorheology-and-microcirculation/ch180469OMF-funded Red Blood Cell Deformability Research Study PublishedWritten by Ronald W. Davis, PhDThis paper documents that red blood cells...

• Chronic Fatigue Syndrome
  

  Discussion Comment

  Posted by: Bluebonnet08

  Posted: 12/27/2018

  Bluebonnet08 commented on the discussion Happy Holidaysi.

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  Hug

  Posted by: Bluebonnet08

  Posted: 12/25/2018

  Bluebonnet08 sent a hug to aussiedi

  Thanks so much :) I agree, trying to stay hopeful for 2019 with all the new research. My husband is helping with the Open Medicine Website - I'll try to keep updated as much as I can :) Hope you are taking some time for yourself if possible. Hugs
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  Hug

  Posted by: Bluebonnet08

  Posted: 12/25/2018

  Bluebonnet08 sent a hug to triunfadora

  Merry Christmas!! :)
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  Hug

  Posted by: Bluebonnet08

  Posted: 12/24/2018

  Bluebonnet08 sent a hug to aussiedi

  Merry Christmas!
• Chronic Fatigue Syndrome
  

  A message of hope from Dr. Ron Davis

  Posted by: Bluebonnet08

  Last Reply: Rosi 12/25/2018

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  https://www.youtube.com/watch?v=VScir4Dfk58A message of hope & optimism from Dr. Ron Davis 

• Chronic Fatigue Syndrome
  

  Discussion Comment

  Posted by: Bluebonnet08

  Posted: 12/04/2018

  Bluebonnet08 commented on the discussion Newest Research - Potential Biomarker.

• Chronic Fatigue Syndrome
  

  Newest Research - Potential Biomarker

  Posted by: Bluebonnet08

  Last Reply: chronic99 12/24/2018

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  The newest research out of The Open Medicine Foundation.. a potential biomarker for CFShttp://www.bloodjournal.org/content/132/Suppl_1/4874?sso-checked=true

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  Hug

  Posted by: Bluebonnet08

  Posted: 12/02/2018

  Bluebonnet08 sent a hug to aussiedi

  How are you doing?
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  Hug

  Posted by: Bluebonnet08

  Posted: 12/02/2018

  Bluebonnet08 sent a hug to triunfadora

  How are you doing?
• Chronic Fatigue Syndrome
  

  Funding for Research

  Posted by: Bluebonnet08

  Last Reply: SadieBee 10/25/2018

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  The Open Medicine Foundation has been making a lot of progress into a possible root cause and cure for ME/CFS.  As a result of the latest symposium, 2 anonomous donors have stepped forward and agreed to TRIPLE any donations recieved for the next month.  That means $10 would be $30, $100 would be $300, etc.  I know a lot of us struggle financially because of the illness, but I thought it would be good if we could at least share the post on facebook or other sites to raise awareness to others...

• Chronic Fatigue Syndrome
  

  More research updates

  Posted by: Bluebonnet08

  Posted: 10/22/2018

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  A blood test that is 84% accurate in testing for CFS:https://www.medicalnewstoday.com/articles/322414.phpThe newest research - a must read!https://www.healthrising.org/blog/2018/10/18/the-metabolic-trap-shines-during-the-symposium-on-the-molecular-basis-of-me-cfs-at-stanford/Lastly, this video was made by a doctor at OMF, worth watching & I wish all healthcare workers would watch as well!https://www.youtube.com/watch?v=RC9TjgE_PlU&feature=youtu.be&app=desktopI have been severely ill for 13...

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  Hug

  Posted by: Bluebonnet08

  Posted: 10/09/2018

  Bluebonnet08 sent a hug to WhiteDolphin

  Glad you re-joined the forum. I think CFS can be a very lonely condition. It's hard for others to understand. There are a lot of great people on here that are very supportive. Hugs