Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a debilitating condition that makes day-to-day life difficult for those who have it. Join the group and discuss treatment, symptoms, and lifestyle changes that have helped.

1 Online
  • lindasch100

    movie about CFS "Unrest"

    2
    Jennifer Brea has CFS and is a wonderful spokesperson for all of us.  "28 year-old Jennifer Brea is working on her PhD at Harvard and soon to be engaged to the love of her life when she gets a mysterious fever that leaves her bedridden and looking for answers. Disbelieved by doctors and determined to live, she turns her camera on herself and her community, a hidden world of millions confined to...
  • atfund

    Help with Chronic Fatigue

    1
    Hello Everyone,I am new to the group and am in need of some help.  I am 99% sure that I have chronic fatigue.  I am at my wits end.  I have seen doctors, naturalists and nutritionists. The naturalist helped in a way because he did much more extensive blood testing than any doctor, but holistic remidies alone do not seem to help me.  The nutritionist was extremely helpful in that I got back a...
  • Bluebonnet08

    New Test Results

    3
    I just got some of my test results back from my specialist and also had the follow-up appointment.I had extensive EBV testing, with the results coming back extremely high.  Anything over 22 was considered "high" and my number was 476!  The specialist said it was extremely high, not normal for just an exposure to mono.  All of my symptoms started with a horrible case of mono over 12 years...
  • Nina1959

    Aphasia?

    Apologies if I've already asked this.I'm seeing neuro next week, 2 months early, because I'm having worsening bouts of aphasia.Mostly when I have a headache so I am attributing it to migraine but wanted to see if it's a ME/CFS commonality as well.I'll be going along and suddenly kind of lose my mind. It's like twilight zone. I get dizzy then disoriented and can't talk correctly though the...
  • jarhead

    CFS

    4
    Hi, I’m new to this group. Want to share my issues with anyone that might have the same. I’m 66 and have problems walking and climbing stairs. Feel tremendous weakness in legs and feet. Been to many  Doctors and was told it could be Spinal Stenosis. Finally I saw a  surgeon who told me I am not a candidate for surgery, but should try Yoga and exercise. This I would like to know if there is...
  • 2Bfree1day

    CFS: About to lose my job, absences causing shame

    9
    Hi:I just joined because I needed to say this to someone, and I feel like I've been leaning on all my friends and my spouse so much lately...I'm home sick today from work -- it's always Wednesday or Thursday, because by that point of the week I'm starting to crash.The shame I feel when I can't make it into work is starting to eat at me, even though I know I'm sick, but I just don't have a way of...
  • aussiedi

    Noticeable Improvement.

    9
    Hi there. I just wanted to share with you that I have increased stamina in my body. I'm by no means feeling fantastic, but I have been able to engage in more activities and hold up better. I have noticed that if I do crash, it  does not last long and I'm bouncing back again. The only new medicine that I have been taking is a capsule ( 4× daily) containing Curcumin (derived from tumeric) and...
  • Cyberkitty

    Hello, an introduction.

    7
    Hi there, I am new to this support group! I would like to introduce myself as a young 21-year-old woman from Australia. I have had ME/CFS for roughly 6 years, developing the disease after a bout of glandular and never making a full recovery. I consider myself in the moderate range of severity as I often crash and am homebound but rarely bedbound.I have tried a lot of treatments including the...
  • Capture-ME

    M.E (CFS) photographer

    4
    Hello. I am 20 years old and have suffered with M.E (CFS) for most of my life. I am belived to be 'cured' now, however never feel this illness will be completely gone. I am a photographer and want to carry out a project based on the effects it has on those effected to show those who do not understand what sufferes deal with. If anyone is willing to comment below ways they have delt with the...
  • collectordeb

    looking for information

    7
    my name is debbie and im from mn. i have been struggling with cfs for over 30 yrs. i've been unable to locate a dr in the twin cities area that specializes in cfs. im hoping one of you will be able to give me a reccommendation. thanks so much!
  • Rosi

    Has anybody on here had cancer/chemo besides CFS?

    3
       I was debating weither to post this or not.   But then I said,  What the heck?   One more thing to deal with and you never know,  I'm not the only one who has had cancer by any means.   This has been unfolding for a few months as I went to get a second opinon about a blood disorder I've had for some 12 years.   Now,  it's progressed and I'm told that it's treatable.  I'm not...
  • Momj

    New here, struggling

    Every day is a fight for me. Was diagnosed several years ago with fibromyalgia and chronic fatigue. Now they've added depression and type 2 bipolar to the list. Am married with 2 kids which makes the struggle harder because I often force my self to do much more than I should because I want to be there for my kids. Hubby is a 'suck it up and get on with it' kind of person so no support there....
  • cmiat

    Fibromyalgia pain mystery solved.

    1
    Found this on Facebook.  I don't have FM myself, but I know a lot of others here do.  Maybe if you're in that group too you can share it there if it hasn't come up already. http://fibromyalgiaresources.com/fibromyalgia-mystery-blood-vessels/
  • Nina1959

    Our thoughts are with FL/GA surrounding areas

    2
    Mother Nature is really letting the southeast of the US have it this season...Hoping all are hunkered into shelters and will be safe from Irma's wrath. 
  • LouiseS

    We know what's causing our CFS

    4
    Hi everyone.  My mother and I became ill in late Dec. 2010 with flu like symptoms and irritable bowel. In Feb. 2011 my mother had a colonoscopy and was diagnosed with an enterovirus infection.  Our antibody tests confirm we have Coxsackie B2 and B6 viruses.  According to Enteroviruses.com and the Enterovirus Foundation, we may also have one or more Echoviruses, but we haven't been tested for...