Sarah100
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- Hi. I struggled with infertility and miscarriage from the ages of 25 to 33. I became a mother through adoption and through an unexpected successful pregnancy. I have a cousin in her 40s who is a successful independent film maker (at Sundance and...
- I just read an article about a study that shows that IVIg stops the progression of dementia. Could there be a positive side to MG?
- I know some of you are really well versed on supplements. My daughter is having trouble sleeping and has used melatonin in the past. Has anyone tried the new NatureMade sleep aid? It contains L-theanine, melatonin, chamomile flower extract,...
- We were told yesterday that our daughter (who has generalized MG) needs her wisdom teeth removed. The ortho said we probably have a 2 yr window at the most before the roots take hold. She said we could probably find a head/neck surgeon to do it in...
- Has anyone had any antibody testing for glaucoma (either kind)? My 15 yr old daughter recently was diagnosed with NTG. She already has some vision loss in both eyes. We thought it might be caused to her blood pressure dropping at night but a...
- My 15 yr old (who was diagnosed with generalized myasthenia gravis at 13) has just been diagnosed with glaucoma not related to high blood pressure. She also shows "loss of visual field" in one eye. They are trying to get her into a pediatric...
- My 15 yr old w/ generalized MG went to eye doc yesterday for annual exam. As part of exam, they take a photo of the optic nerve. They told me she has very little padding around the nerve (and this is likely genetic. She is adopted and we don't...
- This is a little weird. I just joined this site this week to get some advice about my mom's upcoming surgery and I realized that one of the people on this site is a friend of one of my sisters who lives in another state. Even though I don't know...
- My mom is having colon resection surgery on July 6th. She is 74 and frail for her age. She lives alone in another state where she moved after my parents' divorce (to be close to a cousin she enjoys). The initial biopsy was clear although...
- Does anyone who is young and female with generalized MG feel they have a great doc who listens to them and gives them specialized care? Thanks. Sarah
- My daughter continues to have periods of extreme fatigue, dizziness etc. but docs insist it can't be MG because she "passes" the muscle weakness exam (even though she says her shoulders feel weak and she has trouble with carrying things). Don't you...
- Is anyone worried and/or spoken to your doctor about how this new flu might affect a MG patient? I've read that some of the primary symptoms are respiratory so I'm concerned for my daughter. Are the anitviruals ok with the MG? What about...
- Has anyone had to get involved in getting their insurance to cover IVIg for treatment in a "non-crisis" situation? Our insurance requires trial with steroids and/or immunosuppressants before approving IVIg treatment. My daughter can't use steroids...
- Seriously, you have the coolest photos etc. in your photo space and they are always different and unique. I am so computer delayed. How do you do it?- if you don't mind sharing. Thanks. Sarah100
- My 14 yr old (who was diagnosed 1 yr ago w/generalized MG) has been experiencing worsening of her symptoms lately. Specifically, she has been sleeping a lot and has increased muscle weakness. She also has been complaining of severe abdominal pain...