Lifespalette
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- Have been on the Somatuline now for almost 3 years.....before that it was the Sandostatine (12 years). Though the levels are fine (actually the best they've been), it seems the effectiveness of the shot on quality of life is on a continuous...
- I think I'm more apprehensive about this MRI on Monday than I've been about any of the ones I've had during this battle since I was diagnosed. My wife asked me last night "what's wrong" and I realized I had retreated back into myself dealing with...
- Having battled this beast now for 15 years.....I have come to the realization that cold weather is bothering me more and more. I used to love the cold weather........skiing, hiking in knee deep snow on a photo safari, fly fishing in streams where...
- Well, 2014 is history. Next week it will be a full 15 years that I've been battling this beast. In 2000 I finally had answers to what was going on......little did I understand just how life altering that one word was going to be. Acromegaly. One...
- Some of you know I switched Edno's last November. She was upset that my previous Endo didn't have a full team to monitor my condition and that I hadn't had an MRI in 2 years. She put together a team of other specialist (Neuro, Cardio, Vision,...
- What with everything that has been going on, we got one great result on Saturday.........got a final decision on the Social Security Disability claim......after 2 years and 9.5 months of battling with them, was finally approved for full disability...
- Well sometimes you just have to stir things up..........early this month I finally made the jump to switch my Endo. While my old one was a nice guy and a good Doctor, I got the feeling that we were stuck in a rut. Blood work and examine every 6...
- has everybody been diagnosed or been fighting this condition?I was diagnosed in 2000 with a 2.5cm macroadanoma tumor and the resulting Acromegaly condition. I had been experiencing constant problems for maybe 2 years prior to being diagnosed with...
- Having battled this beast for the past 13 years it has been an up hill effort the whole time...........this beast (Acro) just keeps on giving those little surprises. The physical changes were one thing, the chronic fatigue, the mental aspects, the...
- I've been on the LAR monthly shot now for about 3.5 years.....the past year or so, I've noticed that about 10-14 days before my next shot is due, it feels as if the shot's effectiveness starts to diminish. I notice the fatigue (both mental and...
- Over on the FB Acro site, there is a discussion going on about the memory and cognitive skill levels of those who have been diagnosed with Acro........I was just wondering if those here are facing the same issues. It was rather surprising the...
- have another MRI scheduled for in the morning. My primary care doctor wants to see what's going on. For the past 4 months I've been plagued with sever headaches that have now progressed to everyday and lasting the major portion of the day. ...
- it's been a while since I've posted, Just had my quarterly examine with my Enod and the blood letting (I swear the tech is a vampire - 5 viles, she took) anyways... got lectured by the Endo for missing the last three month's LAR shots, so it will...
- I'm just wondering if anyone else has experienced heart problems with their Acro. Two years before I was diagnosed in 2000 with the Acro, I collapsed at work one day at my desk. My coworkers said I was blacked out for a couple of minutes. The...
- Well gang it's been ages since I've been back........I've let things get a little too hectic I guess. Health wise doing good........no lasting nerve damage with the shingles and save for a few small blister scars, you would never know I had...