kate37
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- Hi AllNot been on for a while. I had Mutiple PEs 7 years ago and have been on anticoagulants since, Warfarin and then from December last year I was changed to rivaroxaban which is so much easier on life!I have been very reluctant to fly since my PEs...
- Hi AllI have been a member here since I had my Bilateral extensive PEs in 2008. I found this site a huge support in the early days and hope I have returned that support in whatever I can give to new members,As there was never a cause found for my...
- Hi AllI had multiple PEs 3 years ago now and during the first year this site this was invaluable in the help and support everyone gives each other and you can nearly always find someone who has had /is having any of the problems you may run into. So...
- Hi AllHave seen lots of 'Newbies' here recently and as well old friends who have supported me and answered loads of my questions and stopped my going totally crazy!As it is 2 years to the day since I was diagonsed with extensive mutiple bilateral...
- Hi allFor those who are Coronation St watchers I have just read that Claire (Ashleys wife) is going to get a DVT followed by a PE! If only we all had that sort of warning!Anyway it says the middle of July so will be interesting to see how true to...
- Hi allThis is going to sound like a very silly question but know you guys wont laugh!I had multiple bilateral PE in March 2008. Before it I occasionally noticed what I can only describe as a fluttering feeling in my lung. Almost like paper rustling!...
- Hi allHad bilateral PE in March 2008 and like many people here am still getting quite a lot of pain especially on the right side.Have had it 'diagnosed' as everything from another PE to anxiety.All I know is it a very real, sometimes unmanagable...
- Hi allSorry for another moan but feeling really down at the moment and I know there are people here that will understand a whole lot more than my family and friends do. Although they do try bless them!I had my PE March 2008 and had been doing fairly...
- Hi allWas lazing about watching the TV yesterday and happened to watch the programme 'Diagnosis Murder'Basically this woman had killed two of her husbands using warfarin/cumadin in their food. One died of a stroke and the other from a brain bleed...
- Hi allIt is one year today since I had my PE and so I thought it might be useful both to me and hopefully to others to get my story and feelings down on paper.I had about a 10 day history of being increasingly breathless but put it down to having a...
- Hi allI had multiple PE a year ago now and after 6 months I was seen by a chest physian and advised to stop warfarin which I did for a month.Then I saw a haematologist who said that as I had an unprovoked PE (no birth control, long flight etc) he...
- Hi allHaving a nightmare. Got a really bad pain again Thursday and coughed up a bit of blood! Now I am in the hospital again after having another CT scan.Results wont be back till tomorrow so in the meantime am back on clexane so INR all over place...
- Hi allSorry but I have just come on for a moan!Having had about 6 weeks of feeling great (Almost back to normal I would say), I have for the last few days felt very tired and short of breath again.It is not like the breathless I had just before PE...
- Hi allWas really interested in Ferrs question about the possibility to living to be 140!It got me thinking that perhaps the warfarin actually protects us from other problems as well as venous clotting.I know it is used in Atrial Fibrilation and...
- Hi allWent for my final thrombophilia results today and the good news is that they are all negative.BUT during the 4 weeks I was off the warfarin for the testing my blood showed signs of starting to clot again so I have got a clotting disorder of...