Oh I'm really sorry Kate - hope that you get good results and are sent home very soon.Try not to worry and make the most of the "room service"! Love Sandi x

Thinking of you Kate and sending lots of healing thoughts. I know it's a scary time but they'll sort you out. Hope your "room service" is as good as what I got :-)

Karen xx

I HAD TWO MASSIVE PE LEFT LUNG LOWER LOBE ON 10-14-08. WAS PUT ON HEPRIN IN HOSPITAL FOLLOWED BY COUMADIN AT HOME. WAS BACK IN THE HOSPITAL 5 TIMES COUGHING UP BLOOD BECAUSE OF THE INR WAS TO HIGH. THEY COULD NOT REGULATE IT SO NOW IM ON TWO SHOTS OF LOVENOX A DAY AND HAVE HAD NO PROBLEMS SINCE. RELAX IT IS MORE THAN LIKELY FROM THE INR BEING TO HIGH. YOU WILL GET NOSE BLEEDS AND SOME COUGHING UP BLOOD,PEEING BLOOD AND IVEN PASSING IT IN YOUR STOOL IF INR IS TO HIGH. ARE YOU ON A PROTONIC TO PROTECT YOUR STOMACH? HOPE THIS HELPS.
HUGGS
HOPE

Aw Kate...I'm so sorry to hear that you are back in hospital...you poor thing! thinking of you and hoping you are feeling better soon xxx

Hi Kate, I'm sorry to hear you are back in hospital. Hope everything will be okay. Thinking of you, hope you are home soon. Love Wendy

Gosh, Kate, I hope they are able to regulate your INR quickly. Thinking of you...

Karen

Hi Kate, I hope they admitted you because your INR was high and you had some bleeding. They should be watching you closely until they get you down to a normal range, and keep you ther so that any further bleeding can be delt with promptly. I hope you don't have another PE-especially with an INR that high - from what I am told, if I have another PE while on therapeutic coumadin, then an IVC filter would be in order. Sending prayers your way. Blessings, Teri

Hi folks

many many thanks for all your support and lovely messages.

The great news is no PE!

Not sure quite why have the pain. The usual wild guesses are being put forward blah blah!

When my INR sorted should be able to go home. Still worried about what the pain is but at least I know what it is NOT!

Even if not right physically and least I havent got a PE Yipee

Thanks again

kate xx

Oh that's fantastic news hunni!! *giant hugs* I know how scared you were but thank god it wasn't another. Bet you'll be soooo glad to get home :-)

Karen xxx

Hi Kate,

Excellent news that you have not had another PE. It sounds like you are quite stressed out at the moment - no wonder with all the visits to the hospital. I really think we all need to go through these PE scares to realise that we are not having more of them - horrible I know - but you'll get stronger as a result. The positive side of this is that your A and E are really looking after you and CT scanned you quickly. It will get better - I still have pains and I am not on Warfarin anymore - I am learning to deal with them, whilst still keeping a close check on things. I cricked my neck on Fri and knew it was a pulled muscle, but phoned NHS direct and, you guessed it, because of my PE history I had to get checked out by my DR - I guess this is going to be the prcoess now for everything!!

At least we're being monitorred and so another bonus is that hopefully we will not get any other surprise illness coming our way - as much as we can control that anyway. I notice my pains are worse when I am stressed. I hope you're not doing to much - NHS milking you dry so to speak!!!!

I have finally, since May 2008, got an appointmnet for a doppler on Weds 25th - only been asking for about 10 months now - I am sure I will be ok, but I really want to have my leg pains checked out. Also I am having another ECO for my heart. My heamotologist wants to get a good baseline of all my tests before we embark on starting a family - I really do have confidence in her - a good Dr at last.

Anyway, take care and let me know how you get on.

Love Dawn x x x

Kate, fantastic news no PE, i am so pleased for you. Keep us all informed of how you get on and when you get out of hospital. Wendy

Hi all

Just to let you know I am home. Still got some pain which they are telling me is not lung related but I am sure it is.

The pain is so bad that they have sent me home with some morphine.Not really happy to take it without knowing the cause of the pain. If I end up having to I am going to go back to the hospital and insist they sort it out.Good old NHS!

On top of that my INR was only 2 when I left hospital but they REDUCED my warfarin dose! My normal range is 3 so now worrying a bit again till tomorrow when get INR done again.

I suppose it will get sorted and your advice not to get too anxious is so right so I am doing my best to be calm.

Let you all know how it goes.

Thanks again for all your messages,dont really know what I would do without them.

Kate xx

I hope you star feeling better Kate. I wonder if the pain isn't chest wall pain -which I have pretty much most of the time -or asthma -which mine flaired up this winter and finally got better with inhaled steroids. The chest wall pain is worse at night or in the cold, I have tried acupuncture -not sure whether it is helping or not. I have been diagnosed with fibromyalgia about 6 months after my PE, and the chest is one of the areas that can hurt. I take a lot of supplements and I had been taking Effexor foe depression initially -been on it for a couple of years. Well, in an effort to decrease some of my medication, I weaned myself off of it. It is in the same class as Lyrica -the antidepressant tauted for being a great apin rekiever and recommended for fibromyalgia patients. Well, ALL the pain and fatigue came back with a vengence -I tried to endure for about 3 weeks -plus it turned me into a crabby witch and gave me vertigo -dizzy spells. SOOO. much to my dismay, I went back on the medicine, BUT, the pain is getting better as well as the fatigue -so it must have been helping in that sense, and I didn't know it. I wonder if medicines in that class would help a lot of us who still experience chest pain long after our PE's? Just a thought -sorry so long in getting to it! I am with you as far as them getting to the bottom of where the pain is coming from rather than just throwing pills at it to cover it up -it is our body's way of saying that something is wrong -why do DR's just throw drugs at it if they can't figure it out -that drives me crazy. Try not to worry yourself too much, take good care of yourself -eat right, get enough rest, read all you can, get lots of opinions, and follow your gut instinct -they are usually right. Blessings, Teri

There are a lot of anticoagulants out there. We mainly here about warfarin and Lovenox but you are on Clexane - an example of an alternate. I have been writing a HubPage on "blood thinners" It isn't up yet but feel free to contact me for lists of the ones out there.

I have been in the ER twice since my PE in July. Both CTs were clear. The 2nd one diagnosed me with reactive airway disease. It is a lot like asthma. When my airways are triggers they now constrict. This gives me chest pains, tightness in my chest, burning, coughing, shortness of breath. I am on some medications to calm that now and it has really helped. The worst part is getting a dr to believe that I am a mess at times and it isn't just because I was in the hospital.

You might want to to explore when your lungs and pain are worst. You may have some patterns. I am worse when near allergens, mold, car washes, and when my cat thinks my face is more comfy than my lap! It might be worth exploring things like reactive airway disease or yoga breathing practices to help out.

----
Lena E. Welch
http://snipurl.com/clotting

http://hubpages.com/_lew/hub/CoumadinQuestions
http://hubpages.com/_lew/hub/Factor-V-Leiden
http://hubpages.com/_lew/hub/BloodClotQnA

Hi all

Thanks again for messages.
Flipper and Lena your ideas are certainly worth considering and you are right it is not safe to just take pain killers when you dont know what the cause of the pain is.

They have actually given Morphine which I will not be taking if I can help it. Just about managing with codiene and a heat pad which does helps some.

I really am not going to let this go. Have a haematolgist appointment on monday so will see if he has any more suggestions. If not back to GP to investigate further.

By any chance has any one experienced Gall stones as this is in the same sort of area as my pain happens? Just a thought as is one of the ideas put forward.

As I predicted all this has messed with my INR completely. Back to 1.4 today so back on clexane injections again! Feel like I cant win but with all the help from you lovely people I will get there I am sure.

Hugs to all

Kate xx